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T.H.

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Everything posted by T.H.

  1. T.H.
    So sorry it's been so hard! I can totally relate. I'm in my thirties as well, was just diagnosed a few months back. For me, though...I had a sugar cane allergy as well, it turned out. THAT was my achilles heel. It really is an addiction, isn't it? I could be nauseated and feel horrible, but the urge to try something sweet is so overwhelming I just didn...
  2. T.H.

    ARCHIVED Casein? Rice?

    T.H. replied to CGally81's topic in Coping with Celiac Disease

    I hate to say it, but it could be the rice, yeah. No way to know for sure, though, until you try the experiment again, isolating the foods completely. I was having a bunch of issues like that, and literally had to go to single ingredient foods that I made all by myself, and do a food log, before I found most of them. Every single thing in the grass family...
  3. T.H.
    Hopefully, this is the right area for this topic! I have been sitting here for a while now, feeling frustrated over my route to being diagnosed as a celiac, and the way so many doctors treat it. I'm one of the 'Silent Celiacs,' who had no gut symptoms at all. I had soft tissue injuries constantly, was depressed, got sick with colds and flus a lot,...
  4. T.H.
    Kirkman was recommended to me, too. I know their multivitamins are gluten free, dairy free, egg free. I think nut free as well, and as for corn, they have a corn derived vitamin c in their multivitamin (but not all their vitamins) that is supposed be processed in such a way that there is no corn left. I don't know the process, however, so I suppose if...
  5. T.H.
    You might want to check out food allergies, as well. I was getting very sick after going gluten free, and then was off and on depressed/angry/stressed. Turns out, I'm reacting to most of the other grasses, like corn, rice and sugar cane (which is less processed in a lot of gluten-free foods, so I was reacting more than I had in the past when I didn...
  6. T.H.

    ARCHIVED Pediatric Gi In Phoenix, Az

    T.H. replied to JYancey's topic in Doctors

    I wish I knew of one! There's none down in Tucson, either, that I know of. We're trying to find one for my daughter in Tucson, too. :-(
  7. T.H.
    Hey KikiUSA, Ha, I live in AZ too! Down near Tucson! Nice to meet a fellow Arizonan! (If you care to, feel free to email: writetalk@gmail.com . No offense taken if you don't, though!) I was just diagnosed in July, so I know how you feel - a few months already and sometimes I still feel like I'm trying to figure out what the heck I'm doing. Those first...
  8. T.H.
    I wonder if going on an elimination diet might be useful for you? Just cut out almost everything down to the most basic foods, and keep track of how you feel when you start adding stuff back in after a few weeks. I ended up doing that, essentially, and right now, while I'll admit I'm on very few foods (because I"m reacting to freaking EVERYTHING), all...
  9. T.H.
    I don't know if there's a way to speed it up, but I can tell you what happened to me, see if it helps! I went off gluten in July, and within days felt horrible. Cramps, aching, headaches...very similar to what you're describing. It all went away, 100%, when I stopped eating - I was feeling so bad I thought I was ill, and just ended up not eating for a...
  10. T.H.
    Actually, my doctor was just discussing the sensitivities and healing after going gluten free yesterday! His answer? Maybe yes, but with a BIG caveat. Basically, he said that if you are ingesting foods you react to, your body isn't actually healing much yet. And it won't until you get off of what you react to. he was saying our bodies have the resources...
  11. T.H.
    On the off chance this helps...when I went gluten free, I got SO ill. Couldn't imagine why. And then we figured out that I was reacting to some of the common ingredients in the gluten free bread mixes and stuff, mostly the sugar cane! They tend to use less process sugar in the gluten-free stuff, and that's what was getting to me. If he was reacting to...
  12. T.H.
    I think it's possible, but honestly? I think it's even easier for us to feel like we can't trust ourselves, because most of us have had vague symptoms for so long, with often a lot of doctors/people treating us like we're a bit psychosomatic. :-P that said, my GI was saying this to me: celiac sufferers are VERY likely to have other food issues. Allergies...
  13. T.H.
    Agreeing with some of the previous posters - can be days or weeks before you notice an effect, depending on your body. Also, for an adult with celiac, it will be about 2 years before you are completely healed, according to my GI. This is also what my doc has told me: - did they do a colonoscopy to check for Crohn's or the pill cam that goes through all...
  14. T.H.
    so far, I'm in about the same boat, hunger-wise. I've been gluten free since the end of July. Still hungry all the time, pretty much constantly. I had tons of allergic reactions, so I'm doing the plain, non-processed foods just like you as well. Water hasn't helped me much. Feels like I have to eat all the time if I want to stay full, and often I'm just...
  15. T.H.
    I am pretty new to the whole celiac problem, and to food allergy/intolerances at all, but I'll share what I've been through, just because I think it might help. I had to cut out everything. I went gluten free, and about died, literally, as I started having reactions to foods so bad that I ended up in the hospital. When I started feeling bad, I did was...
  16. T.H.
    My son was diagnosed with a dairy allergy when he was very young, and we had to go through this same thing. Then last week my daughter was diagnosed with celiac, and we've had to go through this all over again, but with gluten for one, and dairy for the other! I know I'm very new to making gluten free meals for kids (I've only been celiac positive for...
  17. T.H.
    I'm only a couple weeks into my gluten-free diet, but it's definitely been much worse - tingling and aching issues with arms and neck, joint pain worse, etc... For me, it looks like my body has been responding to other foods, now that gluten is no longer an issue. I don't know which ones are sensitivities, and which are allergies, but I have had to cut...
  18. T.H.
    Thank you so much for your reply! I am so sorry that you have been going through such hell, but I am glad to know that I am not the only one. That does sound really similar. Carrots and quinoa are some of the only things that I can eat without reacting, as well. Thank you for your tips on how to cope. That is a very good idea, to record what I CAN have...
  19. T.H.

    ARCHIVED Recommend A Doctor In You State

    T.H. replied to a topic in Doctors

    Dr. Wataru Tamura in Oro Valley, Arizona. He's part of Foothills Gatroenterology. He's a bit quirky, but seems nice, thorough, and extremely knowledgable about celiac disease. I went to see him after my first GI doc. said, essentially, 'you have celiac. Here's a nutritionist to tell you what to eat. bye.' Dr. Tamura, on the other hand, started immediately...
  20. T.H.

    ARCHIVED Celiac Or Lyme?

    T.H. replied to AConSmith's topic in Doctors

    Jamie, When you spoke of your joint and muscle pain, I figured I would just mention something that's been happening to me since I've been gluten-free. I'd been having really bad issues with aches and pains, as I did before the gluten-free diet, but on my gluten-free diet I had to cut all my foods to the most basic (plain grains and fruits and veggies, etc...
  21. T.H.
    Thanks for all the replies! I'm thinking I may avoid testing any further for the little guy and simply keep good track of how he's reacting to the gluten-free diet. Thanks! T.H.
  22. T.H.
    I've only been on a gluten-free diet for 15 days now, and it's been hell, frankly. I suppose I was expecting something similar to what my father experienced when he went gluten-free - a slow change to less fatigue, less illness, and a general increased feeling of 'well-being.' Yeah. Not even close. Since my father has celiac disease and visits...
  23. T.H.
    This is my first post here, so sorry if it's a bit scattered! My father has celiac disease, and I was just diagnosed with it 9 days ago - eek, big changes! But since that made 2 in our family, I immediately requested the celiac blood panel for my kids. My 11 year old daughter came back positive for celiac, and my 8 year old son came back negative. ...
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