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RoseTapper

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Everything posted by RoseTapper

  1. RoseTapper
    I use a shampoo and creme rinse from the Dessert Essence Organics line--it actually states "gluten free" on these products.
  2. RoseTapper
    I can completely identify with your doctor problems. I also went from dermatologist to dermatologist and doctor to doctor to find out what was wrong. The last dermatologist I visited about it (17 years ago) also recommended that I see a psychologist to "Help you accept the diagnosis of severe acne." In the end, I figured it out myself. My son grew up...
  3. RoseTapper
    Since shampoo companies aren't required to list all ingredients, it's difficult to know if a shampoo/conditioner contains gluten. Wheat germ and Vitamin E are common ingredients, too. Therefore, I use only a shampoo/conditioner that says "gluten free," and the brand I use is Dessert Essence Organics. They have a whole line of gluten-free shampoos/conditioners...
  4. RoseTapper
    I agree that when we touch products that contain gluten, we can experience DH. Some products, though, are difficult to identify whether or not they are gluten-free. For example, I was experiencing a terrible outbreak of DH, so I started looking into all of my makeup supplies, toiletries, supplements, etc., to try to find the source. It turned out that...
  5. RoseTapper
    Jeannine, I'm glad you were able to finally get a correct diagnosis! That said, you might consider whether or not you would like to immediately jump into taking Dapsone. It can come with some pretty heavy-duty side effects. Have you considered going on a gluten-free diet to see if the DH will clear up? Mine began healing the day after I corrected my...
  6. RoseTapper
    I'm not sure what types of books you're looking for, but if you just want to be well informed about celiac, Dr. Peter Green's book "Celiac: The Hidden Epidemic" is excellent. I'm not a real fan of "Let's Eat Out." I simply just found it terribly boring and not very helpful. I've heard good things about Gluten-free Girl, but I haven't seen it in stores...
  7. RoseTapper
    Yes, from my reading (I believe from Dr. Peter Green's book "Celiac: The Hidden Epidemic"), people with DH have a tendency to test negative when an intestinal biopsy is done, even though their symptoms oftentimes are worse (especially iron anemia). This might be because the damage is in patches. Dr. Green states in his book that if you test positive for...
  8. RoseTapper
    From what I have read on this Forum, the time period can vary. For me, my skin cleared up very quickly, though the scars took some time to disappear. However, they reappear after I've been accidentally glutened, so it is going to be a lifetime battle. You might try eliminating both iodine (which can be found in milk and dairy products, depending on where...
  9. RoseTapper
    I didn't have any intestinal/stomach problems until I was 46; otherwise, my digestion had been perfect before then, too. However, I experienced DH from about the age of 20. If your rash goes away after eating gluten-free, you probably do have celiac (you could always test your theory and eat some gluten, and if the rash comes back, BINGO!, you have DH and...
  10. RoseTapper
    I would urge you to see another dermatologist. The one you are seeing obviously is not "up" on how to correctly biopsy DH lesions, and if he thinks that your lesions are not consistent with his understanding of where they should be, he is obviously not an expert. DH can appear anywhere, but the limited amount of information on DH in medical literature can...
  11. RoseTapper
    I vote for the iodine! While gluten must be present to have a DH attack, iodine serves as the "trigger." This information can be found in Dr. Peter Green's book, "Celiac Disease: The Hidden Epidemic." If you want an excellent resource on celiac disease and gluten sensitivity, this book is outstanding. Dr. Green discusses DH, as well, and I would highly...
  12. RoseTapper
    Definitely see a new dermatologist! I attended a workshop given by one of the top experts on DH in the country, and he said that he spends a great deal of his time training dermatologists on the correct way to biopsy DH. In order to end up with a "positive" biopsy, your dermatologist must biopsy the skin NEAR the lesions. If he biopsies the lesions themselves...
  13. RoseTapper
    I feel that since I've gone gluten-free, I am more sensitive to even the smallest amounts of gluten (and iodine). I have found that if you can control the iodine (through non-iodized salt and not eating seafood), even if you have a bit of gluten contamination, there will be no DH since it takes both iodine and gluten to be present for a reaction. That's...
  14. RoseTapper
    I would strongly suggest that you get your thyroid tested--the itching and brain fog are very common with hypothyroid; and, of course, hypothyroid is common in celiacs. I was plagued with these issues, as well, and then found out that my thyroid had indeed failed. The itching and brain fog are both gone!
  15. RoseTapper
    My muscles have always given me problems, too, and they pulled my bones terribly while I was still in my mother's uterus. I had to wear casts from the waist down for about six months after I was born in order to straighten the bones. However, my muscles have pulled at my bones (especially my spine, knees, and hips) for my entire life. Physical therapy...
  16. RoseTapper
    My best guess is that the salmon had iodine in it, which triggered possible DH. As you know, salmon can be caught in the sea and in fresh water, so sometimes you can have no reaction while, at others, you can break out.
  17. RoseTapper
    Yes, it could very well be the dairy products that are triggering the blisters. In fact, that's how I found out that iodine was a problem for me (way before I discovered the gluten connection). I had had horrible, itchy blisters on my face and neck for four years when I remembered that iodine used to cause similar blisters when I was younger. I had always...
  18. RoseTapper
    Okay, I've controlled my DH very well with diet for many years; however, because I really react to iodine, I've avoided every source of it. That, apparently, caused my thyroid to fail beginning list July. Unfortunately, all thyroid meds contain iodine, and that has caused an itchy rash across my upper back (not DH, though, just a regular "allergic type...
  19. RoseTapper
    My son and I get DH very badly on our faces, but we also break out on just the sole of the right foot. My son has also begun breaking out on only his left hand. Very weird indeed. This latest outbreak finally convinced my 20-year-old son to stop ingesting gluten and iodine.
  20. RoseTapper
    With me, I can break out within 30-90 minutes from exposure; however, I continue to break out in additional blisters over the next 3-4 days. The darned things last about 4-6 weeks before they completely heal. I get them on my face and soles of my feet. The feet tend to heal in 7-10 days, but my face always seems to take forever.
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