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bklyn

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  1. I ordered Cantonese Chow Fun off the menu which said "replace with rice stick noodles and gluten free sauce. When the food came, the noodles were wide and I told the waitress they didn't look like stick noodles. She spoke to the chef who said, this was the way he always prepared this dish. I was afraid to eat it so she took it back and the chef prepared it with rice stick noodles. They said they were going to check with corporate headquarters to see if both types of noodles were correct. Has anyone eaten this dish and how did it look?

  2. I believe I am going through the same "anxiety" issues. For several months now I have stomach pain/nausea (which I did not have before being diagnosed with celiac disease). I've taken several acid meds to no avail. I've had many tests and there doesn't seem to be any reason for my stomach problems. At first, my Dr. hinted at taking anxiety meds, but I pooh-poohed that notion. I also have extreme fatigue and shakiness. I do know that the diagnosis of celiac disease has sent me in a tailspin and I think about it 24/7. I think stress has taken its toll on me (physically and emotionally).

  3. Just my 2 cents worth - I've been following this thread and I'm glad to see that everyone is settling down and coming together. Since I was a newbie not that long ago, I relate to the person who found it hard to believe some of the "rules" of celiac disease. This is definitely a learning process and every day I get new info I use for my new "lifestyle." I'm just glad I have a place to "run" to when I get teary eyed and I'm feeling bad (a lot). It's great to know there are others who understand. Just think about how isolated someone was who was diagnosed before the internet!

  4. Cleveland Bob,

    Can relate to your problems - I was diagnosed in Aug.04(low iron) no gastro symptoms. Was gluten free for a few months and suddenly started having stomach pain/nausea. My GI dr. called it "acid" and put me on Prilosec, which made me feel worse. I woke up every morning sick to my stomach. I've cut out coffee, spicy foods, chocolate, everything I thought was irritating my stomach. When I went back to Dr. he suggested a CAT scan. I decided to go to the Celiac Center in New York for their opinion. Dr. Lee at Columbia thought the same thing (acid) and give me Nexium. Actually, I feel better without the meds! Had the CAT scan - nothing. My Dr. has also been saying "anxiety" but I don't think I could put any meds in my stomach right now. The strangest thing is that this all started since I went gluten-free. Dr. doesn't think it's celiac disease related because my antibody test was down to "5" from "194". Some days I'm OK and then others I feel bad.

  5. I like some opinions from this forum - I have to decide whether or not to have a CAT scan (with contrast) done this Monday. I've had stomach pain/nausea for almost 3 mos. I've tried many antacids (which seem to make me feel worse) and I've been to Celiac Center in N.Y. Also received antacids there. My GI doctor seems unsure what to do and wants me to have a CAT scan. I don't know if I should do this, I think he may be doing this to show me that all is OK. This test terrifies me and I not sure if I should expose myself to the radiation just because there is no definite answer to my problem. What would you do?

  6. I contacted Columbia Celiac Center and tried to make an appointment with Dr. Green. Unfortunately, he's not open until mid-June and I don't want to wait that long. I got an appointment with Dr. Suzi Lee (one of his associates) on 4-11. I have to get all of my records from my GI. I decided to wait on the CAT scan and see Dr. Lee first. I'm hoping she can give me some help with my stomach problems. It's a big trip to make (from Florida) but the plus side is that I get to see my daughters while I'm there. I also want some info from the experts because I feel my GI doesn't know enought about celiac to advise me.

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