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StacyA

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    Northeast US

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  • Beste28

    Beste28

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About Me

Diagnosed 2009 via bloodwork and biopsy.

  1. "Idiopathic Hypersomnia" basically means 'excessive sleepiness without a known cause', with 'Central Nervous System' thrown in for good measure it sounds like (gotta love how giving something a long name distracts us from realizing we still don't have an answer) - so if you still have the problem once your celiac disease is under control keep looking for...
  2. Someone else mentioned a chiropractor for your tmj, and I'll mention the same, although I guess it depends on what is wrong with the joint. If it is out of place then a chiropractor is the perfect person to see. My jaw was out of place for a month - not the same as years of pain, I know - but if I had relied on the advice from my primary care physician...
  3. I know someone else posted last month about the Gluten in Medication Act (HR 2003) proposed on May 15, 2013 by Tim Ryan, but I thought I'd put another post. The act is sitting in committee, where most bills end up dying, so we can help by calling the committee's chair - Joe Pitts - or our own lawmakers and ask for their support. I've heard politicians say...
  4. I use maifun noodles now as my main pasta. I never found a 'gluten-free' pasta that I liked (in taste or texture) and they are all horribly expensive, so on a whim I tried the cheap rice noodles found in the 'ethnic' section of nearly any grocery store. They are gluten free - at least the brands I've found - cheap, and stay firm instead of mushy for hot...
  5. Has anyone gotten zapped by Jack Daniel's BBQ sauce? I know it is supposedly gluten-free, and it is marked alcohol-free, but it has an alcohol taste and the ingredients list 'whiskey flavoring' - and I've gotten zapped before by liquors that supposedly are so distilled that not enough of the rye protein should be left.
  6. A thread on Ohio restaurants from 5 years ago has gotten so many views lately that I thought it may be time to update the conversation - specifically NE Ohio since that's what I'm looking for. These are restaurants I trust or others trust that are around NE Ohio: Outback (of course) Maggianos Carrabbas Bonefish Grill PF Chang's Eat'n Park Chipotle...
  7. I switched to gummy vitamins (several brands are labeled gluten-free) because most standard vitamins also made me nauseated afterwards - not glutened, and I don't suspect any gluten cc at all, just nauseated - perhaps something about the coating and my system. It has worked well because I also take omega 3 gummy vitamins which taste bad but if I chew the...
  8. Everyone is right, you'll go through some mourning if you find you need to live without certain foods the rest of your life. Consider it this way - although you don't want to have food intolerances - you also don't want to have them and not know it. Once you get used to gluten-free shopping and cooking, though, you'll be very pleasantly surprised at...
  9. Consider the possibility of the dried fruit being cc'd during processing. I have done just fine with Ocean Spray craisins, however I suspect I got glutened by Sunmaid Tropical Trio dried fruit two years ago. The 'Tropical Trio' mixture did not contain raisins, but what I got from the experience was to be leery of dried fruits, particularly Sunmaid - not...
  10. UKGail - can you provide a link or a little more info on the article you mention above? My mother has been dxed with PMR and is having a rough time, so I am looking for more info, particularly since I have celiac disease.
  11. Almonds mixed with M&Ms. They keep for a long time in my desk drawer. I get an immediate sugar and pleasure boost from the chocolate, and staying power from the almonds. Plus they aren't messy.
  12. I suggest calling two weeks in advance of an appointment, in case they need to research their ingredients and order different ones. For cleanings, I just take in my own toothpaste for them to use during the polishing.
  13. I drink liquid boost every morning, but I don't like that I'm using so many plastic bottles. In the last year or so I saw that Boost came out with a powder mix in my area, but it's made on shared equipment. I had trouble with Carnation Instant Breakfast that was made on shared equipment. Anyone use the Boost powder mix and be okay? I've tried other...
  14. I was traveling and went to an Outback a few weeks ago and the waiter told me Aussie fries were now gluten-free. The printed menu didn't reflect that, but he told me it had just happened, that they get them frozen now. I asked him if they were deep fried in the same oil as the bloomin onions, and he said he'd check with the chef. He came back and said...
  15. Thanks for the input! I challenged Singulair recently and had horrible diarrhea. Singulair never bugged me before my celiac's was triggered - but now it does. I may have to look into other options for my asthma, including food.
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