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Kathleen Smith

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    New Jersey

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About Me

I was diagnosed about 5 months ago with celiac disease by blood test and endoscopy. Looking for supportive community and knowledgeable people for help.

  1. Hi Everyone, I havent been on in awhile. I am diagnosed and gluten free just over two years. The fisrt year was rough as it is with most, learning hidden gluten, not feeling great and then accepting you may be one of the ones that can only eat whole foods. I am lucky to have a super great nutritionist who assists me with supplements (all gluten free...
  2. Hi Everyone, I have been gluten-free for two years. The last 6 months have been the most healing. That is mostly due to eating whole foods. I cannot digest alot of processed gluten-free foods, I just feel nausous and feel like I am glutened when I am not. Eating plain whole foods (mostly fruits, veggies, some chicken and some nuts with the occassional...
  3. Hi Lucia, I have been going to the Celiac Disease Research Center in Columbia myself! I went there because I am a year and half into Gluten Free diet and my GI symptoms of nausea are horrible. It seems no matter what eat, just by eating i get sick. Good luck to you!
  4. Yogamommy~ I have also been gluten free a year but my blood tests for antibodies did respond. My endoscopy showed active celiac still and I am nausous most days no matter what I eat. Also constipation. I am going to a specialist in NYC and she said not to freak out over "refractory" (she had sent my biopsies for special stain testing for refractory...
  5. Hi All, I am researching (or trying) both FODMAP and the Specific Carb Diet b/c I am gluten free a year and still having nausea and constipation. I am getting a breath test done next Monday but all other tests are good. Which diet is better if you are symptomatic or if you have smaill intestineal bacterial overgrowth (SIBO)?? The FODMAP seems...
  6. Thanks for the info Kayo. I am going to research the FODMAP diet a little. What are some foods that you avoid and some that you eat each day?
  7. Hi Everyone ~ On to my next test, I am getting a bacterial overgrowth test done in two weeks (main symtpoms are nausea and constipation after year of gluten free). My bloodwork is all great, but my endososcopy shows active celiac still. Who performs the breath test usually, is it the Dr. or a tech? I know it takes a couple hours, but are the results...
  8. Donuts. I really got grossed out this past weekend when I went through the Donkun Donuts drive thur with my sister. It was just the drive though and the smell of the "dough" I guess was almost repulsive. And again at work they had a couple of dunut boxes sitting around and it smelled bad to me (really bad)......a good thing I guess.
  9. I am going to start this. no corn or corn chips either right? I can have potatoes and sweet potatoes though?
  10. I have seen all the posts and was thinking about trying that.
  11. Thank you all for your replies. I am confused too if my bloodwork is so good. I went to the celiac specialist for nausea that wasnt getting better and I couldnt link it to anything specific. My main symptoms since going gluten-free are nausea and constipation. This doctor looked at my all my other records and wanted to redo the bloodwork and endoscopy...
  12. Hi all My doctor just left me a message that is scary. I went to a Celiac Research Center in NYC after a year and half going gluten free and still getting nausous all the time. My bloodwork was great. No antigens all negative which she said shows no signs of gluten being ingested and autoimmune repsonse good. My vitamen levels are all normal. It...
  13. This happens to me too. I am a year and half gluten free. I just went to the Celiac Center in Columbia and my bloodwork is SO GOOD!!! No antigens showing I am ingesting gluten by cross contamination (or cheating as they would say). It doesnt show an immune response. All my vitamin defieciences were corrected!! I only need the mulit vitamin. So it...
  14. Thanks! I was reading about the barely grass but I think the risk of CC is too high for me to be comfortable with, Thanks for advce
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