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Imanistj

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Imanistj

  1. Imanistj
    Bahrbdoll, I'm a retired RN, age 65. I am recently diagnosed with celiac disease, even though my biopsies were negative. Back in the late 80s I had a vertical banded gastroplasty. The surgery formed a very small pouch at the junction of my esophagus and upper stomach. The small pouch forced me to eat small amounts, or suffer vomiting spells...
  2. Imanistj
    I am negotiating with a local health food store, Nature Tyme, to see if they will carry it. I got a call today from the lady who makes such decisions (maybe the owner?) and we talked a little. I had left my original request with the man who checked me out on Monday. I told the lady the praise for Udi's is incredible and I really want to try the bread....
  3. Imanistj
    I have been honest and maybe somewhat negative, but I believe in being honest. Until tonight every scratch recipe, mix, or bought ready to eat baked good I have tried has fallen way short of my expectations of gluten-free substitutes. I have cooked or bought a lot of stuff that is so grainy and off tasting that I have thrown it out. Until tonight I had...
  4. Imanistj
    My celiac doc and I irritate each other. I think he would be a much better informed doctor if he went totally gluten-free for at least six months!!! That means buying and preparing his own gluten-free food. He ordered numerous blood tests and told me to take an iron supplement. He never mentioned bone density. I asked my primary physician to order a...
  5. Imanistj
    Wow! Thank you. When Lent comes around this year I will say very piously that I observe Lent every day of the year. Really! I think the Church should acknowledge everyone who follows the gluten-free diet and consider their year-round self denial to be a fulfillment of any Lenten discipline. And for any family member who opts to go gluten-free for a loved...
  6. Imanistj
    I too would take prednisone, carefully prescribed by a trusted doctor if I had no other choice. When I was told I had autoimmune liver disease and learned that prednisone would probably become a regular, and possibly long term medication, I was very disturbed. I was more upset regarding the probable use of long term prednisone than I was about having a...
  7. Imanistj
    Thank you!
  8. Imanistj
    I'm a retired RN and earlier this year, before I got a "sort of" diagnosis of celiac disease, I was put on prednisone for a while. I did feel really well, but I was very afraid I might receive a diagnosis that would require me to take this med frequently. It may be tempting to consider taking prednisone long term, but the med is a double-edged sword...
  9. Imanistj
    Is there a way I can access all the posts and replies I have made? Also, can I do this for another member whose ideas interest me so I can read what they have said in the past? Thank you.
  10. Imanistj
    I tasted "Against the Grain" recently at a celiac convention and I decided this crust was something I could actually use. Roda, I'm with you! I can ALWAYS taste and feel the difference in any gluten-free food that is substituted for the real thing. I would rather skip many gluten-free substitutes but I am presently trying to find "Against the Grain" locally...
  11. Imanistj
    It would help other members if you tell us what state and general location you are in. That way those who also live in that state can tell you the names and locations of stores that carry a good supply of gluten-free food. Most chain supermarkets publish online lists of their brands that are gluten-free. Health food stores tend to be expensive but I have...
  12. Imanistj
    I've had two children, one without any pain meds, a fractured foot, and two major abdominal surgeries. I also blew myself up once while burning leaves and was burned as badly as is possible without leaving scars. The worst pain I have encountered in my entire life are the cramps I get in my thighs. These are nothing like Charley Horses in the lower legs...
  13. Imanistj
    The New England Celiac Conference in early October, just outside Boston was wonderful and cost only $15!!!!
  14. Imanistj
    Angel0251, I tried to find all my previous posts but I am computerdyslexic and finally gave up. The briefest explanation I can make is: Chief Complaint, went to my fibromyalgia doctor--Severe muscle pain and weakness along with profuse sweating of head and face, plus exhaustion that develops after a brief period of any physical exertion. I can...
  15. Imanistj
    My friend and I ended up going to Nature Tyme today. As I went through the check out I asked the clerk if the store was interested in requests. He said they are very willing to consider new products and took the information regarding Udi's. He will give it to his boss tomorrow and call me to let me know if she is interested. That was really easy!
  16. Imanistj
    Thanks to all for the advice and information. WW340, the journal article is exactly what I needed. I do feel I have to "educate" my friend to prevent her from believing I am some kind of hypochondriac. I know she has been thinking I am far too worried about CC but the journal information explains it all. There are plenty of people who might think I am...
  17. Imanistj
    My closest friend and I are both retired RNs. When I was told I had celiac I did hours of research on the web and found that almost everyone contributing to a forum believes that minute amounts of gluten, as in CC, are important enough to avoid at all times. Issues like cutting my food on a board that is also used to prepare food with gluten, grilling on...
  18. Imanistj
  19. Imanistj
    I made my first attempt in early October to eat gluten-free in a Maine Olive Garden and left without ordering, almost in tears. It was painfully obvious the staff knew nothing about the gluten-free menu. I didn't sense that anyone had received any gluten-free training. Maybe they just haven't had any celiac patrons. I never enjoyed eating in OG even when...
  20. Imanistj
    I do shop at Nature Tyme and gnash my teeth at the prices. It is possible I have missed Udi's in the frozen bread section. There are no Whole Foods or Trader Joe's anywhere here. I wish all I had to do was drive across town to find another store. I live out in farm country and Auburn, a very small city is 35 minutes away. Syracuse stores are 50 minutes...
  21. Imanistj
    I read several forums and have seen many recommendations and much high praise for Udi's bread. It is frozen and comes from a Colorado company. It would cost me more than $20 to pay for and ship a loaf to me in the Syracuse area of NY. I am so picky I have yet to love a product that members praise as fabulous, but the enthusiasm that people have for...
  22. Imanistj
    Googles, Everything I cook is loaded with onions, peppers, tomatoes and a little garlic. My recipes won't help you until you can tolerate acidic food. If you find you can eat acidic again I would be happy to share my recipes. I live alone and often make a pot of soup or casserole because it will feed me for quire a few meals. Casseroles take a while...
  23. Imanistj
    I am fairly new to the gluten-free diet and still trying various bread recipes and mixes. I just tried Toro Celiac-Safe white bread mix that is made in Norway to European gluten-free standards. At the tasteslikerealfood.com site (the US distributor of this mix)- they say European manufacturers include some wheat gluten in their products to improve the...
  24. Imanistj
    My nearest BJ's is small so maybe the whole world knows this. I was in a Syracuse BJ's today (much larger than my nearby store) and the deli caught my eye. Then I noticed plastic containers of hot roasted Perdue chickens. I read the ingredients and they seemed OK, but I wasn't willing to take a chance. Then I noticed the label said all natural, gluten...
  25. Imanistj
    Hi lk917, We are in very similar boats. I saw my fibromyalgia MD with complaints of greatly increased pain and fatigue. He ordered blood tests and said one showed I had autoimmune liver disease! How did my liver become part of the problem? I wanted to see a liver specialist so the fibro doc sent me to a gastroenterologist who is also a hepatologist...
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