McDougall
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by McDougall
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ARCHIVED New Grist gluten-free Beer Wins Medal At Gabf!
McDougall replied to grantschoep's topic in Gluten-Free Foods, Products, Shopping & Medications
Is great stuff! I get mine at Whole Foods, 2 local stores already had it, the 3rd I special ordered it and now they sell it like hotcakes. Nice taste, seems a touch strong, gets me loopy quick and the hangover is not the best, but it sure is nice to drink beer on Sundays with Football :cheers -
Deb, lost your email, my new email is higitiki@hotmail.com, gimmee a shout please, -Tim
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I hate the thought of the suffering people will have to go through in those next 10-15 years, so many of our relatives for instance. When I try to explain to people about Celiac I tell them in 10 years everyone will know about it and believe that to be true. I really believe 10 years is about 10 years to long though. Change needs to happen now.
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ARCHIVED Tired All The Time...
McDougall replied to Elizabeth-Elindel's topic in Coping with Celiac Disease
If I have a "minor" gluten accident, like my roomate used the same spoon for her food and mine for instance I'm wrecked for a few weeks. This is after 16 months "gluten free" with many such accidents. When I steer clear of any accidents (which is not easy I know) I feel better and better with each passing hour. I suggest being more careful about the accidents... -
ARCHIVED Tired All The Time...
McDougall replied to Elizabeth-Elindel's topic in Coping with Celiac Disease
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Thank God for bright Celiacs like you Karen. I only read the full thread in bits right now but will give it a more clear reading tommorow, but your idea is the one that just might work it seems to me. $ talks and maybe we just must work with that as horrible as that is. It is genius though, really! Maybe this idea is the answer, it very well might be...
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The medical community is completely clueless about our problem in the usa, that is absolutely clear. Why? Is it because there is no money in informing the public? Because prescribing drugs of all sorts is much more profitable? I can't think of any reason except ignorance. Sorry if this has been said before many times but maybe it needs to be said over...
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I've eaten twice at my local outback and once while on vacation, ordered from the gluten free menu all times and explained how very important it was each time. Got sick all 3 times. I work in a resteraunt and have off and on for 25 years. I know how these request's are just breezed over. I woudn't trust an outback anymore than Dunkin Donuts.
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I thought the British were smarter when it comes to Celiac, but maybe I'm wrong. I traced my recent sickness to distilled viniger and alcohol that I thought were ok. Kraft Mayo makes me gluten sick for example. I don't buy the trace gluten is ok for one second and no longer trust the distillation process removes gluten.
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I'd suggest bringing all your own food, except meats, veggies, fruits ect. Get a room with a kitchen to prepare your own food. I would not eat out. I don't think it is safe to eat out for celiacs, not in the usa and I doubt most places (maybe some countries like Britian but I'm only guessing) I work in resteraunts and have done most my life, to many hazards...
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The best thing is you now know why you have been sick and all you have to do is not eat gluten and you will be fine. The tough part is you need to be very careful with what you eat and how or who prepares it. Be more careful than the doc tells you. I would stay with whole foods for a while that you are 100% are safe and add foods only after you research...
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ARCHIVED How Do You Leviate Your Symptoms When Glutened?
McDougall replied to kari's topic in Coping with Celiac Disease
I trust my Sister and roomate with my life but not with my food. I prepare all my own food, I don't believe a non celiac could ever understand how careful they must be. Evertime my Sister or Roomate or Outback with their "celiac free" menu cook for me I get sick and it just isn't worth it. Prepare all your own food is my only suggestion. -
Viniger including some distilled vinigers in products. Also distilled alcohol, I have no faith in distilled viniger or alcohol anymore. Things like mayo, ketchup, whiskey and other items with "distilled vinigers and alcohol" I do not injest anymore. I trust very few "prepared" products at all anymore.
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My worst reaction comes about 12-18 hours after injesting gluten and last for a couple weeks.
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ARCHIVED Worse Before It Gets Better?
McDougall replied to frenchiemama's topic in Dermatitis Herpetiformis
My DH went from barely noticable to pretty bad when I went gluten-free. The worst lasted a couple months. Had a gluten accident a few weeks ago and my gluten-free has been bad since. I've read a few articles comfirming this as normal, it takes a while to work it's way out. Searching old threads on this forum turned up a few others who experienced bad... -
"One gluten mistake can send you right in a tailspin. I get sick for about 2 weeks and it's torture. I have noticed it really just sets your body back...your body has to fight this. For some people it can take numerous weeks to get back on track after a "gluten poisoning". Feel better soon " Thanks:-)
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"Its fine to rant - I do too! I have had this thing for over 6 years - if Im not mistaken may have had it while I was growing up but last 3 years have been dreadful! I have only been gluten-free for 5 days and feel amazing but last night I had an accident - and I am sick today and cant go out of the house at all - you feel like kicking yourself dont you?...
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"It seems like the longer I try to stay gluten-free, the more sensitive I become to the crap. " This is clearly how it works. My point. Be careful and feel good:-) Aloha
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I found out December 1, 2004 I was Celiac. I'm 38, male, my more unpleasant side affects were realized in 1999 when I had a compound fracture of my femur during a somewhat routine bicycle accident. When I learned why all my problems happened I became VERY careful not to eat gluten, I understand very much how serious celiac can be. My health and well being...
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Hey, you are celiac and eating gluten? I hate to say the obvious but that is a very very bad idea, maybe you get away with it for a little bit but it just is not worth it I promise you. Best thing you could do to help your Mom right now is stay healthy and stay gluten-free. Take care I hope you and your Mom get better.
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ARCHIVED Anyone Else Have The Chills?
McDougall replied to Twister2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I get the chills, not as much since gluten-free 100 days ago but still pretty persistent. It seems to be one of my celiac symptoms that is not getting much better. I'm in South Florida and need to wear sweaters when it's under 80. -
ARCHIVED Gagging?
McDougall replied to ncs913's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My gagging began with my symptoms about 6 years ago and has disapeared over the last month or so, I'm 100 days gluten-free. It was worst in the morning, coughing and when brushing my teeth and got worse and worse as time went on. It was one of the symptoms that really bothered me at the end. My gagging was clearly related to injesting gluten. -
It never ends the things I can blame on celiac that are improving after 30 days gluten-free. My toungue has always been a problem for me and it does curl summamitch, much better lately, best in years, how about that. All my life I've been made fun of for having long eye lashes, brows and I can blame that on celiac to? :-) It's all to wierd.