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Latest Celiac Disease News & Research:
Everything posted by mela14
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Thanks for all your well wishes! I really appreciate it. I took a hot bath while I was sauteeing some chicken for myself and hubby...just to try to relax......I made him some mixed veg and myself a baked sweet potato. I ate the potatoe and had one bite of the chicken and couldn't do it. I still feel so ill. My gut is distended and sore. My muscles really...
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ARCHIVED Ibs Vs Celiac Disease
mela14 replied to amiller1030's topic in Parents, Friends and Loved Ones of Celiacs
I was diagnosed with the IBS first........many years ago. Then it got really bad and the GI drs didn't bother to listen..Here it is many years later...and lots of illnesses later that this is finally coming to light. I don't think I'll evr get rid of the IBS as I am very sensitive to various ingredients and foods but at least I know that the gluten was making... -
HI NJ...ites....Anyone have any experience or know of a Dr Lawrence Pickover? He is in New Brunswick, NJ and was listed on a lot of the celiac sites for GI dr in NJ. I made an appt with him for Feb 4th...I will be in town that day and want to get started with a GI dr even before I move back up there. Hi associates name is Dr. Jack Rubin..they are affiliated...
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ok......I had lunch 3 hours ago and I feel sick to my stomach. I am swollen, raw and in pain. Right after I ate I started to feel sick....my heart started beating rapidly and nausea set in. I just feel awful...like after eating something with gluten. I had white rice and steamed chicken with some water chestnuts from the chinese restaraunt. I don't eat chinese...
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Thanks for the suggestion. I'll try that. I also remembered and posted somewhre else that I had tried a new vitamin with lunch yesterday and although it was gluten-free.....there was lots of supplements in there. I'm sure it was too much for me to handle. Needless to say I am staying away from vitamins for a while. Thanks for your help
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well........thanks for the support and reality check. You are sooo right! WE are ultrasensitive and have to work really hard at staying healthy. I am finally piecing together the different peices of this health puzzle for myself. Boy is it complicated! What do you eat for breakfast? I have so many other intolerances...like soy, milk, eggs, peanuts, yeast...
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ARCHIVED Metagenics Vitamin
mela14 replied to mela14's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks Jessica, I am NOT taking them anymore. In the past they have been more harmful than actually doing any good. Today my gut is sooooooooooo sore and it has gotten me so upset. I just want to go home and crawl up inot a ball! It seems that the more I try to do in so far as supplements...the worst off I am. Have a great day! -
Besides feeling ill quite often I find myself upset and angry over the whole situation. Angry at the doctors for missing this(for years) and still not able to feel better. I feel that it has gone on so long that I now have other intolerances and it is so hard to eat anything without feeling sick. Once I am in a flare up it lasts for days and then of course...
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ARCHIVED Metagenics Vitamin
mela14 replied to mela14's topic in Gluten-Free Foods, Products, Shopping & Medications
OK.....I checked the ingredients and here they are: Microcrystalline cellulose, stearic acid, silica, magnesium stearate, croscomellose sodium, silica, sodium copper cholorphylin, and modified cllulose coating. On one of the other products that this manufacturer makes it had : sodium starch glycolate........... so i thought it was in here too and I wrote... -
ARCHIVED Metagenics Vitamin
mela14 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
OK........I am officially sick to my stomach. I had a baked sweet potatoe and homemade baked chicken for lunch and feel ill. The only thing that I can think of is that I started a new gluten-free, dairy free, soy free, egg, free, wheat free mulitple vitamin today. My chiro recommended it and we checked to make sure it was ok to take. After having it in my... -
I just found a dr. Lawrence Pickover in East Brunswick, NJ..anyone know of him? He was listed on this website. thanks,
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I've noticed that I get nauseous after eating even when it's gluten-free! Does anyone else get this and what should I do for it? My gut feels sour and sore and things just don't sit right. Will this get better as my intestines heal? I also get some stomach irritation no matter what I eat. Lunch was baked chicken and baked sweet potatoe and I feel ill. I did...
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I'm hoping that this post gets on the board. I have not been able to post from home so I am trying now from the office. Does anyone have any experience with Columbia Presbyterian in NY? I made an appointment with Dr. Peter Green for the end of March but he does not take my insurace so I am thinking about going with another doctor there that does take my...
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ARCHIVED Feel Like I'm Sinking....
mela14 replied to anglepoise's topic in Coping with Celiac Disease
Just curious how long it took for the fibro pain to subside? Before I even knew about gluten I was diagnosed with fibro and have been treated for that for about 6-7 years. About a year ago they found that I have an IGG deficiency and have been treating me for that too with monthly immunoglubulin replacement therapy. I continued to complain about GI problems... -
ARCHIVED This Gene Is Inherited From Where?
mela14 replied to azedazobollis's topic in Coping with Celiac Disease
Just listened to it too. I wish I could get my mother tested. She has so many GI problems but of course always blames it on something else. -
ARCHIVED Feel Like I'm Sinking....
mela14 replied to anglepoise's topic in Coping with Celiac Disease
OK....you sound like I did a few years ago........Hang in there!! You will feel better but only if you take a better attitude. Depression will mess up your mind and not help your body to fight the best that it can. You have a lot of challenges to deal with. The fibro...(like me)...the food intolerances..(like me)...the depression ...(like me)....but take... -
Last night I awoke at 4:00 am with horrible stomach pain and lower intestinal pain. There was a lot of twisting and lots of cramps and gas pain. I heard a lot of noises too. It was so bad that it woke me up. I also had a terrible sinus headache to go with it so it's either I'm getting sick or I ate something that got me. Probably the latter as I snuck in...
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ARCHIVED Got My York Allergy Results!
mela14 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I finally got my food intolerance results. It's one thing to know that you feel sick after eating something but to have it in black and white through a blood test is something else. It seems that my worst intolerance is to eggs...both the protein and the yolk. ............hhhhhmmmmmmmmmno. At least now I feel better knowing why I was so ill for days after... -
ARCHIVED Went To New Gi Doctor Yesterday!
mela14 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had an appt with a new GI dr yesterday and he seemd pretty on the ball. I told him of the gluten issues which have come to light. he wasn't dismissive but suggested the endoscopy for a final diagnosis. I told hime that I had been avoiding gluten for about 2 months now. His response was you are still reacting and you could beggeting it form somewhere. I... -
I am looking for a good celiac dr. in Miami/Ft Lauderdale area. I have been working with a dietician but she is really not that experienced in celiac. At this point a GI dr is needed to help me with the IBS and other problems that come along with celiac.
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ARCHIVED Soy Milk
mela14 replied to BamBam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
soy make me sooooooooo sick! immediately too! I get bloated, feel ill, get a migraine....and the sore, sore stomach persists for days. My gut gets totally irritated and distended. I get thobbing pain low in the abdomen that only feels a littel better after a bowel movement. Now I check to make sure that soy isn't one of added ingredients too! -
ARCHIVED 10 Months Gf -- And I Still Have Symptoms
mela14 replied to celiac3270's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You are not alone. I have been having a rough time with all this too. I amy be better for a few days and then suddenly something sets me off and I'm sick for a week. The nausea, stomach pain and gas are always there at different levels. I've finally gotten better with the diahrea. I have been working with a dietician but it hasn't really helped as she is... -
ARCHIVED Alcohol
mela14 replied to XoHeatherxO's topic in Gluten-Free Foods, Products, Shopping & Medications
If you fear contamination try having a little something before you go out to have drinks at the bar. Drinking on an empty stomach is not a good idea. For me 2-3 drinks is a lot and I would probably be in a coma!!! oh to be young again... You need somthing to absorb some of the alcohol. It seems that you are having gluten-free drinks so that's half the battle... -
ARCHIVED What About Millet?
mela14 replied to u396's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't had millet in a while and don't remember if I was ok with it or not. So many things were going on at the same time. I was also using quinoa but remember that something started to make me sick so I stopped both. a few months I started using quinoa again but started to feel sick afterwards so that's I took that off the list. -
ARCHIVED Communion Wafers? Detox Time?
mela14 replied to Tricia's topic in Coping with Celiac Disease
I remember getting sick at mass....before I knew about the gluten problem. I just came back from mass and didn't take the communion wafer. I haven't had it in about 2 months since I've been attmpting gluten-free. How long will it take to detox? not sure but I've been at it for about 2 months and have my ups and downs. sometimes the gluten sneaks in there...