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CMWeaver

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  1. I have two daughters who were approaching age 4 when we were introduced to the entire gluten-free terminology. One of them WAS very sick. Her bloodwork was clearly positive and she did have the biopsy. Simply because the bloodwork was SO high they intended to find a lymphoma in her instestines. The other, who was not showing symptoms had the blood testing...
  2. Testing for Celiac, waiting for the results, Daughter 10, new with questions, 1- Yellow poops, sometimes frothy, sometimes diarrhea, firmer after with enzymes, but still yellow to tan, never normal (brown and firm). Been like this forever, I thought this was a toddler thing years ago, (yes, I know....) We had pale sand colored poops with one...
  3. I have twin daughters who were diagnosed 13 months ago. Only one was showing symptoms and had the biopsies. In all honesty, it was hard at first. Those first weeks especially. I thought things were improving and then she'd have diarrhea again. I don't think that part of the disease improved until she was 4 months gluten free. I will say that those first...
  4. My 4 year old daughters were diagnosed last December (9 months ago now). Long story short, we were gluten-free right away but with one of them, it took a good 4 months for the poop to be "regular". I knew she wasn't getting gluten. I kept food diaries, etc. However, nothing was showing a reaction to something else such as dairy etc. I didn't know...
  5. celiac3270, I sent an email to you but must have my head in the clouds and didn't include the address. It is: Christineweaver@comcast.net Thanks SO much! These lists will be great!
  6. When we had my girls tested, they did it in two rounds. The first was the testing that was ordered for you. Their ped. had no idea what could be the problem. The only thing that came up positive at first for them was IgG which I didn't see. The second round run by a GI was Anti-tissue Transglutaminase Antibody (tTG), Anti-Endomysial Antibodies (EMA...
  7. We're newer to this board. Eventhough I have celiac twins, I can confidentally say that even they....like many others......do not cheat or try to sneak anything past anyone. I have been amazed at how they seem to "like MOST" of their gluten-free foods and snacks. This was a good question celiac3270.
  8. Doug, This situation is identical to what we experienced with one of our girls. Ironically, she was the larger twin, almost 7 1/2 lbs. She grew at a somewhat consistent rate (nothing causing concern) until about 2 1/2. She weighed 27.5 lbs for over 1 year! We went to the doctors a few times. Initially, we were told to increase her intake......then...
  9. Yes, just before Thanksgiving.....I went in for the same type of pains you describe. It kind of felt like a "twisting" on the upper right side. This was coming not too long after me having mono so they thought it may be connected (the inflamed spleen putting pressure on other organs). Before they figured out it was the gallbladder, I took everything from...
  10. We had a situation about 2 weeks ago where one of my daugthers spiked a fever of 105.6. Diarrhea as well. We finally ended up in the ER and they "claimed" that both ears were infected. Apparently infected enough to cause vertigo type symptoms (although she never complained of being dizzy). She did get antibiotics and the diarrhea subsided but not until...
  11. I agree with the others about finding another doctor. We have Cigna and they are covering ALL testing. I called them the other day and inquired if they would cover gene testing (since our two daughters have celiac) and they would if the doctor orders it and we have the testing performed through a covered lab. I would call your insurance company and ask...
  12. Ya know.....ironically, I asked the same question here about a week ago. I'm still undergoing testing but my daughters are celiac. My incredibly strong willed husband and father in law admitted to me yesterday that if given the need......they would have a nearly impossible time making the adjustment to celiac. So, you are definitely not alone in how you...
  13. I just called and spoke with Roseanne, a rep with Malt-O-Meal cereals. The four cereals they have currently being gluten-free (Corn Bursts, Puffed Rice, Fruity Dyno Bites, and Cocoa Dyno Bites) will have a recipe revision come summer of 05. They will be adding wheat starch as a last ingredient. She couldn't confirm that exact month the change will take...
  14. With my girls being 4, I too was very concerned with what to feed them when we began the gluten-free diet. The EnviroKids cereals are a favorite of theirs. The Gorilla Munch resembles the mainstream product Kix. There is also a PB Gorilla Munch as well as a Frosted Flakes that are gluten-free. You may also come across information about Malt-O-Meal...
  15. I'm currently taking Zoloft 50mg. My GI doctor suggested I take Zoloft also since the serotonin is not only utilized by the brain but the GI tract as well. I never heard of that before but hey.....I'm not a doctor (although I feel like I'm studying to be one sometimes!)
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