rmmadden

I use the rice/tapioca wrappers for burrito's. I just wet them until plyable and fill with your favorite eats. They don't taste like anything and they hold-up pretty good to the filling.

Cleveland Bob

Anybody.........Bueller, Bueller.........Anybody?

I've been drinking Good Earth brand Decaf Green Tea for over a year with no problems. I drink it without any added sugar/milk, etc.

Best of Luck!

Cleveland Bob

Watch out those of you are sensitive because the sausage at Bob Evans contains MSG! I don't know about the bacon but, I avoid the place anymore because of it.

Cleveland Bob

Anybody eating the Caramel Peanut Detour Energy Bar? I saw that Trader Joe's lists them under their gluten-free Bars section online but, was wondering if anyone had anything to say about them....either good or bad (Reactions, etc.)

The ingredients seem okay but, I would like to double check before I risk a weeks worth of feeling lousy.

Thanks,

Cleveland Bob

Amanda,

First I would bring some snack items with you from home. This will get you through the actual traveling to your destination. The airlines and airports have practically nothing for a celiac disease person to eat! Then (If you are staying for any length of time) find a local health food store in the towns you are traveling to and stock-up on some safe foods. Also, try speaking with the kitchen staff at any hotels where you will be staying in advance of your trip. See if they know what a gluten-free diet is and, if not, educate them.

For breakfast try ordering Egg Beaters. These are usually prepared in a separate pan and the risk of CC is far less than regular eggs. For lunch I usually snack on some of the items I bought at the health food store (Fruit, Lara Bars, nuts, etc.).

For dinner I look for Atkins menu items. A lot of them can be made without the sauces/gravies. If not then I stick with plain foods......Grilled chicken breast and/or steak. I survived a week-long convention on this diet and felt great.

Best of Luck!

Cleveland Bob

Lara Bars have satisfied my sweet tooth! I keep some at work and take some with me when I go out. I also enjoy Bumble Bars although they are not as sweet tasting.

Cleveland Bob

I've eaten McD's fries twice since going gluten-free and both times I had issues. The first time was last March around St. Pat's (Had To Have My Shamrock Shake ) and I had mild symptoms afterward. The other time was over the summer and I had terrible pains afterward. Based on these experiences I have obstained since then and will continue to do so.

Cleveland Bob

This thread sounds so familiar. I had asked about the same thing last year when I first came down with celiac disease symptoms.

It's a good suggestion to take the liquid vitamins (B complex and others) as they not only get into your system but, do so quicker than tablets. I also started eating smaller meals more frequently throughtout the day. I also carry energy bars or fruit with me when I go out.

After time you will slowly start to see improvement where you can resume physical activity. This past summer I played co-ed softball (1x / wk) and golf. I would get tired but I was able to enjoy it.

Keep your chin-up.....You will get better!

Cleveland Bob

Debbie/Tracy,

I (luckily) only have celiac disease at this point. I just had my 1-year check-up done and all my numbers look good (Knock-on-Wood). It's not been an easy year but I do feel encouraged that all my sacrificing has helped.

Tracy--I went to Ohio University and have friends in Pomeroy (right along the Ohio River).......Beautiful country! How long have you been diagnosed w/ celiac disease?

Cleveland Bob

Debbie,

Hello fello Buckeye. I live just outside of Cleveland and have been gluten-free for 14-months now. I know the frustrations involved with being Celiac but, it's better than the alternative. I just had a 1-year check-up (okay, a 14-month check-up) and have shown improvement on all my Celiac numbers so it does give me a ray of hope that someday I will fell "normal" again.

Best of Luck!

Cleveland Bob

I'm no cheese expert but, as I understand it the mold in Blue Cheese is started from bread. I don't know the details about how much (if any) gluten gets transfered over in the making/aging process.

I think this is one of those personal decisions.....How sensitive are you type things.

Best of Luck,

Cleveland Bob

Michael,

Welcome to the board, fellow-Clevelander!

I have a Dr. Appt. today w/ the Cleveland Clininc Gastro-Specialist who diagnosed me so I will ask her what her thoughts are. If I get any kind of positive response I'll let you know.

Otherwise, best of luck and GO TRIBE!

Cleveland Bob

Before I was diagnosed with celiac disease I used to get (this is hard to explain) these little food globs stuck in the back of my throat. It made me feel like I constantly had to clear my throat. They seemed to come-and-go thru the years and didn't bother me other than as a general nuisance. Every once-and-a-while I would even hack one up and they would be light green (sorry for being graphic) in color and smell absolutely terrible.

After a while I noticed that they would be more prevalent when I ate bread, pretzels, etc. and if I stayed away from these items then I'de be fine. The texture of these globs of food would be soft and I could actually see them sometimes in the folds of skin at the back of my throat.

Since going gluten-free I haven't had any problems and have been wondering if anyone else could relate / similar instances?

Thanks,

Cleveland Bob

I use ground flax seeds as a filler in my meat loaf. It gives the loaf a nice "nutty" flavor and flax seeds are good for you, too.

Cleveland Bob

I've been gluten-free for a little over a year......And I was wondering how often is it recommended that one get a check-up?

I asked my GP the last time I saw him and he said he didn't know......Another clueless doctor! I have a call in to the specialist who did the endo on me and haven't heard back from her yet.

Just curious to hear what some of you "Celiac Pro's" do for scheduled health screenings?

Thanks!

Cleveland Bob

Lara Bars and Bumble Bars are both gluten-free and say so right on the package. They even taste good!

Lara Bars have 5g of Protein;3g of Fiber and, a total of 230 Cal.

Bumble Bars have 6g of Protein; 4g of Fiber and, a total of 230 Cal.

Cleveland Bob

I've been to PF Changs twice (Once here at home and once on vacation in Vegas) and had a great experience both times. The gluten-free menu has plenty to choose from and it is reassuring to know that the kitchen and wait staff are aware of the gluten-free needs. I almost felt like a "normal" person and enjoyed eating out without all the added stress.

I will return again and again.

Cleveland Bob

I prescribe to the Juicing = better asborption theory. I have been juicing on-and-off for the past year (It is a lot of work but it's worth it).

The expense can be great but if you're diligent you can find ways to cut-the-costs. Last fall I went an picked 3 bushels of apples ($10 per bushel....1 bushel = 2 paper grocery bags filled) and store them in my garage. The apples keep for months as long as the temps stay cool (I have eaten apples in March that I picked in October). Not all brands of apples store well so you should talk to your local grocer or farmer etc. to find out which brands are heartier than others (Melrose and Johnathan are good keepers). I also buy organic carrots and other items when on-sale to save money.

I prefer apple/carrot/celery juice. I also have enjoyed apple/beet/ginger. Cucumber also adds a nice flavor for a different slant on the same-old.

Hope this helps,

Cleveland Bob

I'm a "Pepto Person," too. I only take it when I'm having a really bad day and then I just want to sleep.

Hope this helps......Best of Luck!

Cleveland Bob

I see reactions about 24-36 hours after. It makes it hard to pin-down the offending food sometimes. I started a food journal which helps in looking back but, it's still frsutarting.

Cleveland Bob

It's also "Frustrating" when you can't spell and/or type!!!!

Cleveland Bob

I'm a left side pain person.

I suffer from lots of gas bubbles and get pains anywhere from the lower abdomen up to the armpit and pectoral area. I've been to the Dr. many times and even wore a Halter monitor for 24-hrs to check-out the old ticker and everything is fine (with the exception of the gas pockets). I hope that as my intestine heals I notice less pains and get back to feeling like a "normal" person again.

Can anyone else relate?

Cleveland Bob

Interesting point. I think you are right with all the gluten involved in traditional holiday celebrations.

Thanksgiving weekend '04 I almost passed out from all the stuffing, pies, cookies, etc. I was diagnosed 1-1/2 weeks later in early December '04 and have felt a lot better this holiday season.

Best Of Luck!

Cleveland Bob

I, too, didn't have any GI symptoms before being diagnosed. It just sort of one-day appeared and boom....celiac. Well, it's been one-year since my diagnosis and I am feeling better. We all know how tough it can be to start being gluten-free. And, the progress can be slow especially at the beginning.

We all get the cravings for our favorite (Past) foods....But, DON'T CHEAT!. Cheating only makes things worse even if you don't show the "classic symptoms". Unfortunately this lifestyle is pretty much and all-or-nothing deal. Once you get better acclimated to the diet you'll see that it isn't as bad as you think. It's still not easy for me after a year but, it's not as bad as I first imagined it to be.

Hang in there!

Cleveland Bob

I get that when I'm glutened. I don't ever notice it any other time only when I'm suffering from a gluten slip-up. And, like you describe there is never any pain. I'm just conscious of my heart beating.

Merry Christmas!

Cleveland Bob