cleanfreak73

Kayo,

yes the t-4 being at 193, if it was a "free" t-4 reading that would suggest hyper, range(.80-1.80) the tsh at .53 isn't really low, when I was diagnosed it was like 000.5 or something like that, undetectable.I wish you good luck in finding out. If you are truly hypo, which I think you are, you can get meds for that, at least. Hypothyroid is VERY common.

Oh sorry....the face and neck puffiness, that's a real sign too. Do your eyes look swollen, like the lids, or do you have bags under your eyes? Sometimes some women are affected like that too.The overall puffiness. Are your fingers swollen looking too?

Hi! I'm with Reba and whomever else suggested thyroid. It sounds like before, you were hyper(couldn't turn off your brain, super vigilant etc...) now you've turned hypo. This bone chilling cold you describe I have heard MANY times from hypo people. Described just like you say. I have been made hyper by anti thyroid meds when I was hyper and I have felt cold like this among other symptoms. The brain fog is CLASSIC. Have your tpo's and anti thyroglobulin checked too besides the "free" t 3 and 4. Also get a copy of labs, docs LOVE to say"oh, you're normal" when your levels are really low! My daughter's doc said Hashi and celiac are definitely linked.

I think it may all depend on how sensitive she is to gluten. Some are very sensitive, my daughter not so much.It depends maybe on how sick she is or was. The experts will give their advice,I'm still learning since my daughter was diagnosed.

Some people get that feeling when their thyroid is out of whack too. Like carpal tunnel and the like.

  On 4/10/2010 at 4:37 PM, sa1937 said:

Speaking of Betty Crocker gluten free brownies...I made some for lunch yesterday and added extra chocolate chips and a small pack of pecan chips and my son and daughter-in-law loved them. They do not have celiac and could not tell they were gluten free.

I haven't tasted them yet as I made them for lunch yesterday after we got home from my having an endo/biopsy. Didn't think I should push it by having chocolate so I'll try them today.

Yes..the B. Crocker brownies are good, the cake not so great BUT,I was at my daughter's house yesterday, it was her birthday party the day before so she made the B. Crocker one for her and whoever else wanted to try it (some people act like it's poison or something!) anyway the day after the party we were both like"oh well, the brownies are good" so I said wait, I'm gonna try a piece heated.....well it was actually pretty good! We both thought well, you have to heat up the bread for it to be halfway decent, why not the cake? She said it was kind of like the "molten lava" cake they have at some restaurant (I forget which). I wouldn't go THAT far but it was BETTER!

Hi! My daughter who was diagnosed celiac and I (who hasn't had blood tests yet) both ate corn pasta and both had a stomach ache that night.It was like a pit of the stomach ache though, not really intestinal. Almost like an ulcer pain,or gastritis, which I seem to get a couple of times a year. The rice pasta doesn't bother us but the corn, it was like too heavy and harsh? Is that what you mean?

I think you're going out of your way to explain yourself, you shouldn't have to with your parents but I think it all boils down to ignorance. If people close to you don't bother to research celiac, then it's shame on them. If they would educate themselves (maybe print some articles for them)it would be so much easier for them and you. I think knowledge is power and I feel so much better researching this disease in order to help my daughter cope with it.That's just me though, I try to become an expert on whatever disease I or a loved one may have, it seems to help me a lot.

Thanks for the cider recommendations. I think I saw those there. She likes Arbor mist, so that is a wine option.Good thing she's not a beer drinker like so many in my hubby's family or in laws fam. I don't know what they'd do??

  On 4/4/2010 at 12:32 AM, AutumnSong said:

I'm careful about produce coatings, and those grown with straw.

What produce is grown with straw?

don't know about straw but cc is CROSS CONTAMINATION

Okay I do get the collander thing now. I guess you should have your own if the rest of the household isn't gluten free. I do know what you mean by people not understanding but my daughter's in laws have been very understanding and I sent her mil stuff about being very careful with the gluten in her kitchen not coming in contact with anything she prepares for my daughter when she visits. She even bought her snicker doodles and only makes meat, potatoes and vegetables when they come for dinner.She's one good mil! The father on the other hand was more like"so when do you get over this?" He's better now after his son told him the biopsy WAS positive too. I have to admit everyone (store people) I have told about this were very sympathetic and understanding and helpful. I was trying to find her a gluten free like wine cooler but all the guy at the liquor store could find was malt ones. He then proceeded to call people that might know but there was nothing in the store that came in a small bottle in a 4 or 6 pack. Do any of you know of any? I saw some mudslide things but wasn't sure. She said she's not going to go out and buy a bottle of vodka or something else as she's not a real drinker but did enjoy the Smirnoff coolers once in a while.

I just have one question....why the colander thing? Can't you just wash it like other stuff? Doesn't it get clean enough? I mean does everything have to be separate? I get the dipping with the crummy gluten bread thing but why the colander? Sorry...daughter (married) has it and we're trying to figure out what is paranoid and what is the truth. Her nutritionist said you have to just have common sense but not live in fear, that's not good, is it? She doesn't really get sick either which can be worse.

  On 4/3/2010 at 12:13 AM, Reba32 said:

except possibly the ones who have hyper thyroid and are hot all the time.

yes i haven't been tested for celiac but my daughter has it. i have a combo of Graves and hashi's and am usually cold, it does run hand in hand like someone else said. My daughter's gastro doc told her to keep on top of thyroid levels and since I have it....anyway don't take a doc's word for it when they say"normal", get copies and make sure they test 'free" t 4 and 3. tsh doesn't always show a real problem, the frees usually show it, also antibodies for hashi's. You can have a 'normal" tsh and have really low free t's. Usually you have the cold feeling, tired, constipation, joint pain(wait a minute, that's celiac too!) it casn be confusing, uh brain fog too...

Hi! My daughter got a printout from her nutritionist and caramel is on the question mark list,why? Is this why maple syrup (certain kinds) are not gluten free? Thanks!

It's hard to explain, that's for sure, and there's no pill for it,I think doctors have a hard time with it too, like it can be controlled by diet??? My daughter was diagnosed with it and her husband has been pretty good with it except he thinks the gluten free food is like "taboo" to him, like he'll get sick if HE eats it? Men are weird anyway. I just bombard people with articles I researched. How can you argue with medical documents?? Just print some and hand them out to people, or put them where your boyfriend can read them or email them to him. I just served gluten free mac and cheese to my husband and besides being kind of "al dente" he said it was fine and he was afraid to try it, WHY I don't know?