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kpryan

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Everything posted by kpryan

  1. kpryan
    I hear you... I definitely hate the bloating most of all. I too had looked into fructose mal....it was so frustrating though b/c that cuts out a lot! I was even thinking that my abdominals were just really out of whack after having 2 kids so I really amped up my ab workouts...but the bloating is just not normal.
  2. kpryan
    I had been on a strict gluten-free diet prior to the challenge for a good year. And initially I felt completely better. I later gave up dairy b/c some of my symptoms had returned and then felt better again. But most recently saw this doctor mainly bc of bloating. When I first started the challenge, I had the same usual symptoms (though the intestinal...
  3. kpryan
    So I had my endoscopy yesterday after a 1 month gluten challenge. I know that many argue that 1 month is not long enough (I was gluten free for about 1 year to 18 months). The biopies won't come back for 1 week. He also took biopsies for H pylori. The immediate endoscopy results were: - Z-line irregular - Small hiatal hernia present - Gastritis (localized...
  4. kpryan
    So I had my endoscopy yesterday after a 1 month gluten challenge. I know that many argue that 1 month is not long enough (I was gluten free for about 1 year to 18 months). The biopies won't come back for 1 week. He also took biopsies for H pylori. The immediate endoscopy results were: - Z-line irregular - Small hiatal hernia present - Gastritis ...
  5. kpryan
    Did you go to a gastro for yourself? If so, you could prob bring your child to them...that's what my gastro said. It sounds like you like your doc so I would go that route or ask them for a recommendation for your child. The fact that their doc seems reluctant would make me want a 2nd opinion esp with such a family history. Good luck!! I am getting...
  6. kpryan
    I just realized today that i do get this too!! I've been on a gluten challenge for 1 month and all month I've been feeling irregularly hot and my face gets very flushed. I just finished eating my last gluten meal (I have my endoscopy tomorrow) and my face is hot...like I have a fever... Strange!!
  7. kpryan
    That definitely sounds like it could be gluten related. I would firstly see a diff gastro...one that believes you and your symptoms. Have you had celiac testing? How about a biopsy? Your symptoms definitely sound like celiac/gluten intolerance.....
  8. kpryan
    I will let you know how my test goes! Personally I would still see a doctor. When I saw mine he wanted to do an endoscopy anyhow to check for anything else. It was my decision to add in the gluten for a month (which I don't know if I was even worth it).... But if you can see the right kind of open minded doc, I would see one that can understand...
  9. kpryan
    I agree...and your symptoms are EXACTLY mine...every last one. I'm getting my endoscopy next week...
  10. kpryan
    Wow! Awesome info! i will read up on all that! i am going for blood work monday for Tissue Transglutaminase and Endonsyial AB ( I think thats what the scripts says).... For me, I can't do the 2-3 month challenge. i know I don't react well to gluten so i'll be off it come monday anyhow. And he wanted to do an endoscopy anyway to check for other things...
  11. kpryan
    Thanks for the info! That is great! I did doubt when he said "a month should be enough time". He wanted to do an endoscopy anyhow and said it was up to me if I wanted to reintroduce gluten. At first I was very hesitant, but then decided to do it in the hopes of finally getting some answers. I say I've been gluten-free for 2 years, but unfortunately...
  12. kpryan
    Hi there. I have been on a gluten challenge for almost a month now (after being gluten-free for about 2 years). I'm being biopsied on Tuesday. When I first started the challenge I had all the usual symptoms (although on a surprisingly lesser scale). But then I started taking Nexium (which my gastro perscribed) and since taking it, my intestinal symptoms...
  13. kpryan
    Yes you can definitely be gluten intolerant...have you gone gluten free yet before your tests? If so how long did you eat gluten again before the tests? That can affect how accurate your results are as there are many differing opinions on how long and how much you should be eating gluten prior to being tested. This guy has a great book that goes into...
  14. kpryan
    I def find that apples and honey big time bother me...and they have very high levels of fructose. There's a lot of research in Australia about fructose intolerance...I actually have a cookbook from an Aussie nurse that is quite good. It's so frustrating though....feels like you can't eat much of anything.
  15. kpryan
    Get tested specifically for Vit D as well... hope you find an answer soon!
  16. kpryan
    If I were you, I would see a different gastro. I've been gluten free for about 2.5 years without a diagnosis. I had the return of bloating and the same symptoms you mention so I am just now going to a gastro who I really like. He's going to do an endoscopy and blood work after I've been back on gluten for 1 month. It's not been fun but I'm hoping...
  17. kpryan
    I have to say that since starting the Nexium, I don't have the painful internal gas anymore and no heartburn (although it was just mild before)....so that's an improvement! The bloating is still bad but that i think that is due to the gluten. 11 more days! Then I'll have my endoscopy and go back gluten-free... Then depending on what he finds and how...
  18. kpryan
    I recently just went back on gluten myself after 2.5 of being gluten free. And I am experiencing the same symptoms as your son! I expected much worse, but have the same poop characteristics LOL... I am having an endoscopy in 2 weeks... But it is very confusing.... Good luck to you and your son!!!
  19. kpryan
    Hi there! Had a few questions for all you experts! I'm a 34 year old female with 2 kids. While I've had stomach issues my whole life, they worsened after the birth of my first child and that's when I thought it might be celiac or an intolerance. I went gluten free on the advice of my allergist and felt immediately better. I was blood tested a few months...
  20. kpryan
    That's a very def possibility too.... so lesson I guess is I can only make the food I eat....sigh.
  21. kpryan
    Heat is just taxing on the body no matter what. So if you are not at 100%, I am sure it'll be more taxing. Like you said trying to keep cool and hydrate would be the best course of action. I am dairy free as well. Can I ask what you commonly eat? I often get so sick of my stand-bys ....esp in terms of snacks. I also notice that I have adverse reactions...
  22. kpryan
    I don't know...I think that heat is difficult for anyone. Do you work out? I know when I am in better shape (and exercising outdoors) I can better handle the heat. Where do you live? Has it just gotten hot there? If so, your body may not have had time to adjust yet to the high temps. Here in NJ, it's been in the high 90's for a few weeks which is...
  23. kpryan
    Great ideas...thanks!!!
  24. kpryan
    Yeah the burger was plain....must be CC...so frustrating...like even the grill could be contaminated which never occured to me.... And I guess I just have to be super diligent when we go away this weekend...
  25. kpryan
    Ugh we were at my in-laws yesterday and they really make an effort to accomodate me. I had a burger (plain) and some gluten-free macoroni salad that my mother-in-law made. She's made it before and it has Brown Rice pasta, mayo (Hellmans), onion, carrot, celery, egg, salt and pepper. I really think that is all the ingredients. Well ever since eating...
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