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lilbit

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lilbit

  1. lilbit
    I whole-heartedly second that! I've only been diagnosed for about a week now, but my GI told me I didn't have Celiac EVEN THOUGH I had damaged villi! I had to take the pathology report to another doctor before I could get answers. Always! Always! get your labs. Blood tests, biopsy... everything. You can google just about everything you read on...
  2. lilbit
    I'm so new to this stuff that I haven't stopped gluten-ing myself accidently on purpose... but I read that lunch meat has gluten unless it says gluten free... Is that correct?
  3. lilbit
    I'm just curious, I wonder why noone has done a PSA or a commerical. Do you think its because its a diet change and not a drug therapy?
  4. lilbit
    I recently underwent alot of testing and part of it was a small bowel biopsy. The GI doctor told me that in his oppinion I did not have celiac. I requested the pathology reports and thank goodness I did. The biopsy results actually showed villous blunting. I took the rports to another doctor who confirmed Celiac. The one thing I have learned on this...
  5. lilbit
    Question- Did you actually see your biopsy lab results? My GI doc told me that there was nothing wrong and I requested my lab results... and whaddya know... I had celiac! Don't forget- Celiac is notoriously difficult to diagnose! Best of luck!
  6. lilbit
    Has anyone dealt with the Beth Israel Deaconess Medical Center in Boston? Any recommendations for a doctor there? Thanks!
  7. lilbit
    I feel like jumping up and down and waving my arms in the air yelling " ooh! ooh! Me too! Me too!" I love this board! For me it started when I was 25 and just kept getting worse! (33 now) and I went to the doc who said well, its not diabetes... Don't drink so much! I try to force myself not to drink alot because its frustrating to get up every...
  8. lilbit
    I'm going through the testing for Celiac right now... I've had a CT, colonoscopy and next week is the upper endo. I had never even heard of Celiac until a few weeks ago! I haven't been diagnosed yet, but the doctor is pretty sure that's where we are headed and I just had to respond to you because 10 years ago I went through a crazy weight gain I could...
  9. lilbit
    Has anyone read the book "Recognizing Celiac Disease"? What did you think? Is it worth the purchase? Thanks!
  10. lilbit
    Ravenwoodglass Thanks I feel likda stupid hoping for a disease... But its one of those the lesser of two evils kinda hoping... Just curious, did the doc tell you it would clear up after you went Gluten-Free?
  11. lilbit
    I had my abdominal CT scan (normal)and earlier this week I had my colonoscopy... The EGD/ small bowel biopsy is next week. The visual exam showed diverticulosis and internal hemorrhoids. The doc took a bunch of biopsies including of my colon (looked abnormal) The question: Has anyone else had this show up on a colonoscopy prior to going glutten free...
  12. lilbit
    I'm just curious. Has anyone here been diagnosed with Celiac while serving in the military?
  13. lilbit
    I still haven't had the EGD (that is next week) but I had the colonoscopy and the initial word is: diverticulosis internal hemorrhoids biopsies done including biopsy of the mucosa... I'm fairly young (early 30's) and in shape and I eat pretty well- I read the diveriticulosis happens with a high fat low fiber diet (def not me!) so, what do the...
  14. lilbit
    Thanks bluebonnet! I'm having to colonoscopy monday and the endo the following week... The doc seems ok so far. At least he didn't tell me it's just stress or I'm getting older! Is it ok to ask them to take alot of samples? I don't think I'll be allowed another biopsy...
  15. lilbit
    First they did just a chem panel (I think) noticed that I was really low on B12 (started getting shots) and calcium was really low. I don't have the blood work in front of me but most of my viatmins and minerals were either low or in the normal low range except sodium that was in the normal high range... I haven't been diagnosed with anything yet... I...
  16. lilbit
    OK, so this might be a really dumb question but I figure it's easier to ask here than to call my doctor AGAIN Earlier this week I had my first GI appointment. After listening to my symptoms and reviewing blood work from the referring doctor, he tells me he can't diagnose me based on just that and he needed to run some further tests: He orders a CT...
  17. lilbit

    ARCHIVED Doctor In Newport, Ri?

    lilbit posted a topic in Doctors

    I've been sent to see Dr. Pianka in Newport, RI... Well his office is in Portsmouth I think... I was curious if anyone on the board had been to see him and what their experience was like...
  18. lilbit
    I'm pretty sure he did the IgG as well, but he wasn't too concerned that the results came back negative. He just referred me to the GI right away (granted I had to wait 6 weeks to get in). He actually said he could still be Celiac's or some form IBD... I'm kinda voting for Celiac's since I'm not a big fan of taking all kinds of meds. I tried to get...
  19. lilbit
    I'm pretty new to Celiac's, I didn't know it even existed until about a month ago! I will ask my question up front incase noone wants to hear all the gory details How common is it to have negative test results and end up with a positive biopsy? I went to the doctor in early March becuase I was throwing up everything I ate. I ended up getting scoped...
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