grannynanny

Would love to meet others in beaches area to share recipes, restaurant info, etc.

Hi Steph, I'm taking Three-Lac, sold by Global Health Traxx. I believe it's considered a probiotic, but it's definitely touted as helping to control the candida overgrowth which our celiac symptoms have created over the years. Sue

I recently moved to Sussex County, Delaware and must start all over with doctors! Anyone know of a celiac-knowledgeable doctor in the beaches area? Also, any support groups around? (The CSA website gave me only one link, and it didn't work.) Thanks. Sue

Celia, I did ask the waiter to make sure that they didn't add croutons to the salad and explained to him that I had a gluten allergy, which meant no bread or pasta. He even asked me a little more about celiac, out of curiosity. So I really don't think that contamination was the issue. I'm just about convinced it was the dressing, or perhaps the marinade...

To Laura: No, you weren't too harsh. I understand your passion and where you are "coming from." And I appreciate your concern. To all: I think eating out is a huge challenge unless we are assured, IN WRITING, that we are in safe hands. Seems to me the only way to know for sure is if the restaurant provides a gluten-free menu. Then we know that...

I guess CarlaB knows more about Maggianos than I do. I usually stay away from the Italian restaurants because of all the pasta offerings. But I would add to your list of Chicago restaurants Wildfire, which has a gluten free menu. They have steaks and chops, but a wider variety of other offerings. They have a location a few blocks from N. Michigan St as...

Russ, You're not going to believe this, but not only do I have Celiac, I am also Malignant Hyperthermia susceptible! I know the two are completely unrelated, but I just thought I'd share that little item with you. In fact, not only am I MHS, but I founded MHAUS in 1981 and attended the ASA meeting in Chicago in October where MHAUS had a 25th anniversary...

PEANUTS????????????????????!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Didn't see anybody mention Dr. Fassano at the Univ of Maryland Medical Center in Baltimore. He is one of the best known celiac experts in the country and is usually quoted or featured in any articles you see in the popular press. He is a pediatric gastro (?) and only does the celiac clinic on Fridays, but I made an appointment with him for this Friday,...

Okay, here goes! I hope I can write this in a way that is both cathartic for me and doesn't bore the hell out of the reader. My MAJOR symptoms (and stay tuned, I'll talk about my minor symptoms later) began to occur about eight years ago, following two fairly major surgeries (which involved some bone transplants). After eating out one night (and it...

Sinenox, It does sound like you need a good workup for rectal bleeding. BUT, if nothing of note is found, I'd just like to relate my sense that it might POSSIBLY be related to intestinal/stomach damage due to celiac disease. My father had severe internal and intestinal bleeding for years and nothing could be found during his many hospital stays. We...

I've been on the gluten-free diet for 2 1/2 years, mostly with good success. But yesterday, I ate lunch at an Olive Garden, ordering about the only thing on the menu which appeared to be gluten-free -- the chicken caesar salad. About half-way through my meal, I began to experience mild celiac disease symptoms and have been dealing with them ever since ...

Electra, I, too, had a trip to the ER by ambulance a couple of years ago (before I knew I had celiac disease) with pain and bloating. It was like being in the final stages of labor, but the pain was just under my ribcage. I was on a morphine drip for the pain and after numerous MRIs and CAT scans with barium, it resolved (I think the barium acted like...

That's so interesting . . . and such an epiphany for me. Thanks.

I used to get exactly what you're describing all over my scalp -- I would pick at the sores because they bothered me, then they would crust over. Since going gluten free, the scalp has improved alot, but the shampoo and conditioner I use has probably helped, too. It is Frederic Fekkai and is VERY EXPENSIVE, but worth it in several scores. I never knew...