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kwylee

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kwylee last won the day on June 17 2011

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    Art, Photography, Writing, Brain Games
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    Mandeville, LA

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  1. kwylee
    Yes, good to be back. I should never have gotten out of the habit of checking in everyday. Very helpful, thanks so much!
  2. kwylee
    Been a long while since I have posted. Will try to make this as quick as I can. History: I had persistent brain fog 7 years ago and medical doctors and even a neurologist at the time couldn't explain it (no mention of gluten sensitivity to me, much less Celiac), so on my own I had stool sample test that was to gauge if I had gluten sensitivity as I read...
  3. kwylee

    ARCHIVED What Else Are They Missing?

    kwylee replied to bartfull's topic in Doctors

    Bartfull, your rant is right on the money, totally agree. You call to mind that the days are over where doctors are panoptically lauded as some sort of information gods. Yep, I grew up that way back in the 60's - your medical doctor had all the answers and whatever they said was taken as gospel. Until I saw enough of them in the 21st century who denied simple...
  4. kwylee
    Buckwheat is actually a seed, but if that is what you are reacting to, it proves the undeniable point that if your body doesn't like it, you'll know it. I second the notion of the food diary.
  5. kwylee
    Another alternative is clarified butter (ghee), which is butter with the milk proteins removed. I am very sensitive and find I can tolerate that just fine and I like the taste even better than regular butter. Excellent for baking too, as my gluten-free/DF/SF choclate torte will attest. Purity Farms is certified casein free ghee and happens to be the one...
  6. kwylee
    Horsehandsss, I felt dizzy and "off" for years before I stumbled onto the notion that what I was eating could have such a horrendous effect on not only my health, but my attitude, optimism and total feeling of well being. I never had a panic attack before I was 48, but I can vividly recall the intense feeling of dread that came upon me that day. I was luckily...
  7. kwylee
    I don't think you'll get many tips here when it comes to reintroducing gluten but that's not because people don't care. They do and that decision to start putting gluten into your body again could be a major step backward for you. Before I say anything else I want to clarify that a negative test or biopsy for Celiac Disease does not mean your body is not...
  8. kwylee
    Have you considered that it may not be the lactose (milk sugar) that you are having problems with on the dairy issue, but the casein (milk protein)? I had a similar problem when I first started. I was strictly gluten free so couldn't understand why I felt so poorly - for me mostly neural disorders. I stopped ingesting dairy and then even soy and that's...
  9. kwylee
    EXCELLENT INFO!! Thanks so much!!!
  10. kwylee
    Thanks for the input and so sweet of you to ask, but I'm OK. My question is purely research. But it has made me wonder about eating boiled eggs from a pan of questionable cc status.
  11. kwylee
    Yes, you are absolutely correct! The size of gluten molecules must play a big part in this, but I wonder if the gluten molecules could possibly be carried through by osmosis even if the water molecules could not??? Clearly, I'm no scientist! But thanks for that link. It got me thinking that perhaps I could do a test with food coloring in the water and...
  12. kwylee
    Thanks so much! I'm actually asking less for culinary purposes and more for research for something I'm writing. But I guess it would be a good thing to keep in mind if you're traveling. And, no - please don't worry about offending me. I have a pretty "hard shell" - OK, my feeble attempt at humor.
  13. kwylee
    I'm doing some research and have a question. If someone hard boil eggs in a pan that may contain traces of gluten, e.g., boiled pasta previously, could that cross contamination be absorbed into the inside of the shell to the egg? I would certainly expect cross contamination to be possible on the shell, but I'm wondering if anyone knows whether the egg...
  14. kwylee

    ARCHIVED Tongue

    kwylee replied to bossley's topic in Coping with Celiac Disease

    OK, at the risk of sounding nuts, I'll share the following: I've had that, and the burned tongue feeling eventually turned into a bout of CONSTANT dry mouth feeling that drove me crazy and lasted for months. Everyone kept just insisting it must be Sjogrens but tests were negative and I didn't have any other symptoms. It's under control now and only flares...
  15. kwylee
    If your goal is to be able to go to the banquet and not have to lug your own food, why not call and speak to the chef? Perhaps the best thing to do would be to make a clever suggestion. I do agree with the logic that they should be up to snuff on food intolerance issues, but unless they are, I wouldn't want them to pretend with me as guinea pig. You did...
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