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twinkle-toez

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Everything posted by twinkle-toez

  1. twinkle-toez
    I don't mean to butt into a conversation, but I just wanted to clarify... What makes bratwurst potentially unsafe to eat in a restaurant is the spices in it? So the actual inside is completely meat and no gluten filler? I too am going to be backpacking through berlin for a couple of days and am a celiac with very limited german skills (introductory...
  2. twinkle-toez
    Ciao Veronica, My name is Alyssa and I am going to Italy in 9 days! I've heard that Venice is one of the worst parts of Italy for a celiac to find safe foods to eat... is this true? I don't speak italian (although I have learned the phrase "Io sono celiaca" and 'senza glutine per favore" as well as various other menial phrases (e.g. grazie). I'm a student...
  3. twinkle-toez
    I can understand why you would have used your celiac as an excuse - it can be oh-so-tempting. For me I found the frustration to be the other way around - until people truly believed me that I am a true celiac, they thought I had manufactured the story to make my diet more restrictive. The odd thing is, my diet became much less restrictive after going gluten...
  4. twinkle-toez
    I had (have) an ED - I've struggled with anorexia and the occassional 'binge' (not technically binges, but eating more than feels comfortable) for nearly 15 years now. I can definitely understand the frustration of feeling like you've conquered your battle, or made significant headway with it, only to feel yourself losing grip and sliding back into that all...
  5. twinkle-toez
    As an update - I was formally diagnosed with lupus last Friday evening. I meet 6 of the 11 necessary diagnostic criteria, plus a slough of the extra 'non-diagnostic' criteria. It seems I've had symptoms of the disease for the past 12 years - so since age 14. I'm really glad that I didn't know back then. Comparatively speaking, my lupus is mild, and for...
  6. twinkle-toez
    The sort of night sweats you are describing is one of my biggest symptoms of being gluten-ed. Pre-gluten-free I was waking up 3 times a night and literally wringing out my pyjamas (and putting dry ones on) and wringing out my hair. As for the bedding - it woudl just be drenched, so I always had a stack of towels next to the bed that I could put down b/c it...
  7. twinkle-toez
    CassP: I have indeed considered intolerances to foods other than gluten - namely: dairy, soy, eggs, nightshades, nuts. I know that I'm sensitive to diary and soy and have removed those from my diet, and I don't consume corn products so that can't be a contender either. Basically I eat a very 'whole foods' diet. Wolicki: I have indeed checked for cc ...
  8. twinkle-toez
    I heard on a nutrition podcast (a highly credible series actually) that alot of glutamine supplements are derived from wheat protein. Have you heard anything about this or know if there are safe brands?
  9. twinkle-toez
    Thanks for the response. A rheumatologist is probably the next step I'm assuming. Prior to the malar rash discovery of last night (or rather my cluing in to what it actually was that was happening on my face every time I dance ballet) there was still alot more guessing room. My rashes obviously haven't cleared up in the 7 months I"ve been gluten free. I...
  10. twinkle-toez
    I'm currently under the care of an extremely competent neurologist. He is monitoring me, but I don't want to go on the typical meds for lupus - the anti-inflammatories can do horrible things to your intestinal lining from what I've read, and steroid treatment isn't desirable either. I do believe there is a great deal of power in diet. I guess my thoughts...
  11. twinkle-toez

    ARCHIVED Lupus?

    twinkle-toez posted a topic in Related Issues & Disorders

    Hello, It's been a long time since my last post, and I'm not entirely sure exactly why I'm posting here; probably just for support and to vent I suppose. I have been gluten free for 7ish months, and free of dairy, soy, corn, legume, grain and refined sugar for 5 weeks (although those items have only constituted minor portions of my diet for the past...
  12. twinkle-toez
    Is there anyway to make the pregnant appearance/ feeling go away quicker? I'm already doing the probiotics and they're not really having any effect. And I can't do dairy - Gah! I hate this!!! I dance ballet and it's just awful!!! I can't imagine being like this for months... any advice?
  13. twinkle-toez
    Hi Guys, I've posted on here before - mostly asking questions about neurological issues and the like. I'm a female 26 year old female, and I discovered that I have a problem with gluten this past summer. Aside from a few accidental ingestions (shudder)I've been gluten free since July 2010. At that point I also eliminated dairy, soy, and corn and added...
  14. twinkle-toez
    Ok. Sorry about that.
  15. twinkle-toez
    I understand why the bloating occurs - because of inflammation and a GI tract which is still damaged. What I'm struggling to understand is the time line for the onset of the gas/ GI discomfort. Specifically, why immedediately after eating? The damaged portion of the GI tract (so far as I know) is the small intestine, with odour-producing bacteria residing...
  16. twinkle-toez
    While I've never tried to actually conceive children, my menstrual cycles have been irregular since, well since I started menstruating 13 years ago. I was diagnosed in the summer of 2009 with polycystic ovarian syndrome, a shock to everyone as I am NOT the typical phenotype (I"m very slim, heavily involved in athletics, normal glucose tolerance and not insulin...
  17. twinkle-toez
    Rice crackers and corn chips with guacamole, hummus, etc were things that I was thinking of that could serve as 'snack-y' type things. I hadn't planned on serving gluten-free bread b/c it's so iffy, and I think it would be a red-flag that I was doing something particularly "weird" and very "Twinkle-toez" regarding the food (which by the way, is not a...
  18. twinkle-toez
    Thank you all for the wonderful ideas - I believe that doing a gluten-free wedding isn't that big of a deal and I don't understand why the people who made such a fuss did. The only people whom actually have to know are my parents, b/c they are chipping in for a portion of the cost and it's probably wrong to leave them in the dark on this one. Other than that...
  19. twinkle-toez
    Oh dear... now there's a conversation that won't go over well... I mean, my fiance would be fine with it. He's greatly cut down on gluten - his only overtly-gluten containing guilty pleasures now are the crackers left over in the cupboard that I can't eat as well as cereal. He eats more gluten outside the house, but is pretty good about it inside the house...
  20. twinkle-toez
    Okay, so I called the office of the neurologist and spoke to the receptionist. Apparently the neuro-dude (my neurologist has a mullet, hence why he gets to be neuro-dude instead of Dr. xxxxxxx)and the actual results have not been seen, but the fact that the MRI was done has been sent over. Apparently there was a mix-up - Neuro-dude, as per our conversation...
  21. twinkle-toez
    Thank you Ravenwood. Your response has helped alot. I've found the gluten-free diet to help hugely with the chronic discomfort that I had for years in my GI tract area, as well as with the migraines. I realize it's a longer route for neural healing - I'm just really scared I guess. I'm doing my best to stick to an entirely gluten-free diet that's also free...
  22. twinkle-toez
    I'm sorry if I shouldn't post this here, but I"m sitting here alone crying and I didn't know what else to do. I've been having neurological problems - parasthesias and dyasthesias, horrible night sweats, muscular weaknesses, bladder issues (increased frequency and urgency), very rarely double vision lasting a couple of hours... I've been seeing a neurologist...
  23. twinkle-toez
    Thank you Tidings for the heads up. I used to put TONNES of artificial sweetener in my tea (or in the rare occasions that I drank it - coffee) and I did get raised eyebrows from some people, but I always just told them that "I had bigger fish to fry, and when I was done with those I'd move onto the tinier ones"... I am aware about the high controversy over...
  24. twinkle-toez
    I have the night sweats whether I drink or not (I hardly ever drink) and I've had my liver enzymes checked for function so I don't think it's that. Caffeine - I don't typically do coffee as I can't stand the taste and it makes my stomach and GI tract burn in a most unpleasant way. I do tea, but I've done tea since I was 16 and have never had this problem...
  25. twinkle-toez
    Hi All, I'm not sure if what I want to do is feasible, or whether it would be vastly uber expensive... I don't know whether I'm fully celiac or not, but I am definitely gluten intolerant. I have accidentally ingested it on two separate occassions now, and both times I have ended up being very ill. I am getting married next summer (July) and...
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