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MacieMay

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MacieMay

  1. MacieMay
    This is exactly what I experienced with my toddler. She is 21 months now. It would take more than one cracker, for her symptoms to appear. She is not Celiac, she's had ALL the tests (including gene). GI diagnosed her with the intolerance. We have been Gluten-free since Sept. 1st and she has been SO MUCH BETTER. : ) I hope one day we can re-introduce...
  2. MacieMay
    Does your son have any weird rashes going on? Anything on his hands, knees or elbows, bilateral? My daughter has Juvenile Dermatomyositis, which is a muscle/skin autoimmune. The body attacks itself just like Celiac but this effects the muscles and the skin. She has a gluten-intolerance too. That's why I follow this forum. Celiac is an overlap disease...
  3. MacieMay
    How old is your daughter? My daughter is 21 months, she also tested negative, blood, biopsy and gene. We have been gluten-free since Sept. with GREAT results. GI gave her the gluten-intolerance diagnosis. What kind of Dr. suggested you reintroduce the gluten and is following your daughters progress? I think a lot of kids can outgrow food sensitivities...
  4. MacieMay
    Only 27...I could see why your Dr. wouldn't want to do both procedures then. I hope you get your answers too. Good luck!!
  5. MacieMay
    Have you given any thought to a probiotic or an omega supplement? That could help boost things. How is her diet? Is she getting enough healthy fats? I think it's important for growing kids to get plenty of healthy fats. Olive and canola oil are great. We pop our own popcorn almost daily in canola oil. We put olive oil instead of butter on our corn...
  6. MacieMay
    What kind of test is your pedi doing with the poop? Besides the celiac blood panel and the biopsy I don't know of any other test that Dr's will do. Is there something new?
  7. MacieMay
    Is it difficult to have them tested? I would just ask pedi to do the celiac panels. It sounds to me like you have a legit concern.
  8. MacieMay
    Why do you think your older ones are having issues? My gluten-intolerant toddler has two older sisters too. Just wondering..could I be missing something? thanks!!
  9. MacieMay
    Hi there! Have your kids been gene tested? Is it possible your son, has a gluten-intolerance and not celiac? And can't Celiac be triggered at anytime in someones life? Maybe your 6 year old didn't have Celiac when blood tested two years ago. If I were you, and your GI Dr. was willing, I would have your daughter blood tested again and then try her...
  10. MacieMay
    Putting the test results aside... Why would GI make you wait for the colonscopy? How old are you? You might as well just have both procedures at the same time. Then you get all the answers at once (hopefully). If you have had GI symptoms for years, then you could have damage to your colon. You don't know what is going on in there. My step-father died...
  11. MacieMay
    Do you use gluten-free soap and shampoo in the tub? Babies always get water in their mouth and swallow it in the tub. That was issue for us. Do you water down her apple juice? Too much apple juice might not be good. No cheese...right?! Do you keep a food diary?
  12. MacieMay
    If celiac doesn't run in the family, maybe she just has an intolerance and will outgrow it. That is what I am hoping. My daughter had a lot of the same things going on, the rashes and lots mushy poops were the biggies. We were allergy tested and did the full celiac work up, she has had two celiac panels and the scope (endo and colon). Everything was negative...
  13. MacieMay
    Another option... sit them down and talk to them. BEG (if you have to) to get them to respect your wishes. Remind them that YOU are their mother and YOU know what is best for them. Try to remind them what it was like when they were raising their own kids and how they would feel if they were you. You are only trying to do what you think is right for your...
  14. MacieMay
    The fresh and fruits and veggies can really add up. I am not a big fan of canned veggies we do a lot of frozen, especially in the winter months when nothing is in season. Strawberries off season can cost a small fortune here. We've just learned to live without the bread. It's not that great anyway and weren't eating a lot to begin with. Have you...
  15. MacieMay
    My 21 month old has been dx with gluten-intolerance. We have been strickly gluten-free for a few months now and she is doing so much better. I'm just wondering how common this diagnosis is? We know she is not Celiac because she had the full work up and has had the gene testing. We have kind of been dismissed by GI and I'm wondering if we should follow...
  16. MacieMay
    HI There! I haven't had a chance to call the manufactor of this toothpaste. I've looked online but i'm not getting an answer there. Does anyone know if Orajel Flouride Free toddler training paste is gluten-free? We have the pinkie fruity flavor. Thanks!!
  17. MacieMay
    Does anyone know if ANY fast food fries are gluten-free? I've looked on several websites and I see nothing about Gluten. I see info about allergies and wheat but nothing about gluten. Thanks!
  18. MacieMay
    Hi there! My daughter has a gluten intolerance and a dairy intolerance. I am looking for something I can use to season a pot roast. I used to make one with cream of mushroom soup and a can of golden onion and everyone in the family loved it. I've picked up quite a few cans of soup and it looks like most have wheat. Im usually and at the grocery store...
  19. MacieMay
    Are Quaker oats safe? My daugter is 19mos and is gluten-intolerant. I wondering if she would do OK with these? She loves Oatmeal and we have the quick oats in the cabinet. I'm looking to try new things. Thanks
  20. MacieMay
    Does anyone know of any gluten-free sunscreens out there? I don't even know where to start! Thanks!
  21. MacieMay
    I see on here that a lot people eliminate corn from their diet. I'm just wondering why? Is is because of the possiblity of CC. Or because it causes GI symptoms? My 18 mos old has been gluten-free and DF for a while. Yesterday, we tried some gluten-free corn pasta, which everyone in my family liked but I don't think it agreed with her. She had a couple...
  22. MacieMay
    Thanks for the feedback. It doesn't sound like, we have the same thing we have going on here. I do think my daughter has a gluten intolerance or maybe even celiac, but she has something else too. It's heartbreaking, when your kids are sick. I hope you find your answers, it's so difficult to get a diagnosis for a small child. I just take it one day at...
  23. MacieMay
    It will probably be tough to get a Derm to do a biopsy on him. Have you done any research on DH? Do you think it is DH...or just a hive like reaction? Gluten can cause both. I too am having problems with my 18 mos old ( I think i've replied to one of your previous posts ). She is growing OK but the rashes are CRAZY. How long would you say your sons...
  24. MacieMay
    These are my 18 mos olds skin biopsy results... Any insight will be greatly appreciated! R, arm punch: Vacuolar interface dermatitis with perivascular and periadnexal lymphocytic inflammation Comment: The histologic findings are consistent with a connective tissue disease I don't understand why there is nothing about antibodies here?!?! If her rash...
  25. MacieMay
    If you have DH or a gluten rash, should you use ALL gluten-free skin and hair products? Thanks!! Also...can anyone recommend a gluten-free tear free baby wash and shampo? Thanks!
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