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MacieMay

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MacieMay

  1. MacieMay
    Any of the above willing to share some yummy gluten-free Thanksgiving recipes? I love to try a coffee cake and a spinach casserole. I'm looking for a cornbread recipe too. I want to have a gluten free thanksgiving/birthday dinner this weekend at home with my husband and 3 daughters (daughter age 2 is gluten intolerant). Trying to get the whole family...
  2. MacieMay
    HI There! I love orzo salad with fresh tomatoes, cucumbers and basil. Can anyone think of good subsitute for orzo? I'm thinking maybe a brown rice. Has anyone tried anything like this? Thanks!
  3. MacieMay
    My toddler has a Non-Celiac Gluten Intolerance. She had a lot of the same symptoms your describing, she had those terrible diaper rashes, no solid BM's, she would cry in her sleep and wake up in the middle of the night. She was growing OK so it was hard to get the Dr's to believe there was something wrong with her. She has been off all gluten and dairy...
  4. MacieMay
    WE eliminated dairy only because we thought that was primary culprit (whole milk) although she did improve when we removed diary she did not improve completely until we eliminated gluten. It turns out she was lactose intolerant secondary to the gluten intolerance (just like in Celiac). While this was all happening she started showing signs of her disease...
  5. MacieMay
    Hi Cara in Boston, I think it is 100% possible to have a gluten-intolerance that has the same symptoms of Celiac without the Villi destruction. My daughter is 2, she is gluten-intolerant, she started showing symptoms when we introduced solids. WE saw GI @ Childrens Boston too. Just as an FYI, if your sons endo come back negative don't rule out Gluten...
  6. MacieMay
    HI There! My daughter does not have RA but she has another autoimmune called Juvenile Dermatomyositis (JDM), they are similar. JA affects the joints and JDM affects the muscles and the skin. She is 2 and was dx @ 18 mos with JDM. She is also gluten intolerant. She started showing symptoms of the gluten-intolerance when we introduced solids. I would...
  7. MacieMay
    My daughter has a gluten-intolerance, she just turned two. She started showing signs when we introduced solids. It took us forever to figure out what was going on. She had Lots of poops, not D but mushy, smelly, pale and grainy (like there were pieces of sand in them). She had the distended belly. She had terrible terrible diaper rashes, like I had...
  8. MacieMay
    I would ditch the dairy too. My daughter could not tolerate milk. She just turned two. I can even begin to tell you the change I have seen in her since we've been dairy and gluten-free. She used to wake up in the middle of night too cry in her sleep. : ( She hasn't done that in ages. She is so much happier! Good luck!
  9. MacieMay
    Poor little guy!! All the sleeping is probably good for him. All the trama his little body has been through. He's probably just catching up. The body heals and babies grow when sleeping.
  10. MacieMay
    Just as FYI... My daughter has a gluten-intolerance ALL testing for Celiac came back negative. She was 18 mos when we went through all the testing. According to research and what I've read on here, testing in small children in unreliable. Keep this in mind if testing comes back negative. What you can do is ask your Dr. to follow your daughters progress...
  11. MacieMay
    My daughter just turned 2 and tested negative (two celiac panels, biopsy and gene). Her GI Dr. diagnosed her with a gluten intolerance due to a positive response to the diet. According to what I've read on here testing in small children is unreliable. My daughter was also lactose intolerant. Both of your sons could be Celiac or a have a gluten-intolerance...
  12. MacieMay
    Cheese Gluten-free pretzels Chips (we do lays because they are thin and dissolve easily) snap pea crisps raisins craisins popcorn gluten-free bread with PB yogurt cottage cheese
  13. MacieMay
    My daughter's tests came back negative too (she is 2 now) but had all the testing at 18 mos. She had the same problem with dairy. WE have been gluten-free since sept and she is WAY better. I agree with your husband, I would wait to do the challenge until he is older and he can tell you how he is feeling. Good luck
  14. MacieMay
    GI Dr. but I had to insist. After being sent away with no way no how does she have celiac. I called her back and told her about her positive response to the diet and that is what she based her diagnosis on. I was worried if I didn't get the diagnosis that we would run into problems while being treated for her other autoimmune disease. I was forseeing...
  15. MacieMay
    I should also add, that at the end of the summer, my daughter was finally diagnosed with Juvenile Dermatomyositis (JDM). It's an auto-immune. So, not only did she have the gluten-intolerance/lactose intolerance (yes...she had a problem with lactose too) she had the JDM. I think my husband was going through some sort of weird denial and couldn't accept...
  16. MacieMay
    Sorry you have to deal with not only having a sick child but a husband that is NOT supportive. I dealt with that all summer long. My husband fought me on EVERYTHING and Dr's thought I was crazy. I knew something was wrong, I just couldn't prove it or the get the attention of the right people. To make a really really long story short. My daugther has...
  17. MacieMay
    I agree with the previous post. It couldn't hurt to change his diet. I would ask your pedi to run a celiac panel before you take him off the gluten. It's a blood test. They tend to be unreliable in children under 5 but there are some kids whose tests come back positive. My daughter is two, she had a lot of the same kind of symptoms that you are describing...
  18. MacieMay
    Hi there! My daughter had a NEGATIVE blood, allergy, biopsy and gene testing. Dr. diagnosed her with a gluten-intolerance, due to her positive response to the diet. She'll be two next week. The gluten-intolerance is a real thing and very hard to prove. I can't help but wonder if we kept her on gluten if she would eventually been triggered into a celiac...
  19. MacieMay
    I felt like that when we first went gluten-free. I did notice a good change in BM pretty quickly but we still had the occasional loose stool and I couldn't figure it out. I've now blamed it on me, I was accidently giving her gluten. One time was in lipton onion soup mix and then some other mix seasonings. I didn't realize that natural flavoring can have...
  20. MacieMay
    Hi there! If it were me...I would not start subing in the replacements right away. Fruit, veggies, meat and rice is the healthier way to eat anyway. If you start subing in right away you'll find you'll throw tons of stuff away and you'll go broke. Plus, it's probably not a good idea to introduce a lot of new foods at once. Stick with the stuff you...
  21. MacieMay
    Any chance you are taking any kind of cold medicine? I've had pins and needles in my head from cold medicine. I think it was sudafed. It was a long time ago.
  22. MacieMay
    Hi there! I'm sorry your son is sick and I'm glad your pedi appointment went well. I have not done any stool testing at Enterolabs but have thought about it. My toddler daugther has a non-celiac gluten intolerance. She had all the same symptoms as your son but all her celiac testing came back negative. And she had ALL the testing (two celiac blood...
  23. MacieMay
    Congratulations! It's a good feeling when you know you have someone on your side. I've been there! Here's hoping all your questions get answered!! Good luck!
  24. MacieMay
    We've had negative results too (gene, biopsy, and two blood celiac panels) but that didn't mean there wasn't anything wrong with her. There was something wrong and gluten-free diet helped. GI finally diagnosed her with an gluten intolerance because of her positive result to the diet. Try it and see how they do. good luck!
  25. MacieMay
    Yes...I think that's it! Thank you!
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