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tbritt

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tbritt

  1. tbritt
    Have any of you had a reaction after eating Udi's Chia and Millet bread? I loved it at first, but had been having symptoms after starting to eat a few slices in a PB sandwich every few days. The store ran out and I couldn't be more glad. My symptoms disappeared. Just curious. Maybe it was something else I was consuming. I was just having bad digestive and...
  2. tbritt
    I used to stop myself from being hateful, but when somebody is rude about me eating gluten free, I just tell them I hope they get to experience the kind of pain I experience when I eat gluten. Sometimes I mention explosive diarrhea and excruciating joint pain that kept me awake for nine months. So what if they think I'm nasty. I think the same of them...
  3. tbritt
    "A little bread won't hurt you!" I guess we're supposed to wash it off. I wish I had gluten cleansing holy water to pour on all of the things I suspect my be cross contaminated.
  4. tbritt

    ARCHIVED Joint Pain

    tbritt replied to tbritt's topic in Coping with Celiac Disease

    I am actually a violinist and violin teacher by trade, so the tendon issues are a problem. My shoulder pain kept me from playing for a year. Doctors kept blaming it on the violin. I don't think the violin was ever the problem. I think it was malnourishment. I am hoping to shake it over the next few weeks. The exercises have been keeping it from getting...
  5. tbritt
    I was planning my wedding and my mother-in-law was insistent upon getting a "glutton" free meal for me with the catered dinner from a barbecue joint in Fredericksburg, TX. No, Thanks! I'll just eat a PB&J on Udi's bread at the meal that will honor me and my new husband. John eventually talked her out of the catered meal. Then they made "gluten free" burgers...
  6. tbritt

    ARCHIVED Joint Pain

    tbritt posted a topic in Coping with Celiac Disease

    Last Friday, I suspect I ingested gluten some time that afternoon (although I'm not sure from what). I handled dog treats given to me by the bank and didn't wash my hands afterward. I think I had a snack just a bit later. I spent the dinner hour that night on the toilet (and had no appetite). The following day, I was dizzy and "hung over" feeling. On Sunday...
  7. tbritt
    When I got very ill, it manifest as pain in my shoulder and as terrible stomach pain and gas. My doctor thought I had a parasite so gave me Flagyl (without having done a test for parasites). I got better on it, probably because it killed off the overgrowth of bacteria. Once I was off it it, I got even worse. The doctor put me on 21 days of it and I got better...
  8. tbritt

    Thanks for adding me to your friends list& for sharing your extraordinary recovery! Love the photo of you playing and FULLY living your life!! You have given me renewed hope. I never give up, yet some days, it has been VERY difficult to keep going. I am lucky my husband is so supportive and loving. I shared your story with him and he said "See, we'll get there,too Babe...

  9. tbritt
    I still get mystery glutenings. I have found most of the culprits. Sometimes I think feeding my dogs their food might do it. I can't figure it out. I eat very strictly. I think sometimes foods that are labeled gluten free are not actually 100 percent of the time. Maybe one day packaging that says gluten free will mean something. I used to try to eat at a...
  10. tbritt
    I don't eat at restaurants. Even well intentioned folks don't have any idea of how bad this is. We are space aliens. I was in physical pain the last four times (in the last six months) that I have eaten at restaurants. It's not worth it. At the last place, the chef came out to speak to me and I still got glutened. I have folks make me food gifts all the...
  11. tbritt
    I forgot to mention I am also a violinist. The pain nearly made me quit. I am back to playing in symphonies and teaching six to seven hours a day. Hang in there.
  12. tbritt

    Thank you for your story of healing. It helped me immensely. I have a few dozen awful symptoms but the excruciating pain is the worst. Shoulders, neck, elbows, hips...just misery and no PT or MT or doctor has helped. For YEARS. I cry every day from the pain. Maybe in a few months, I'll see an improvement. Thanks again for sharing--I am grateful to hear you are feeling so well!

  13. tbritt
    I have not been here a long time, but I have been here long enough to get better. All my life I struggled with this mystery, but didn't know what it was. I had seizures, dizzy spells, anemia, lethargy, skin rashes, sore throats, acid reflux, ulcers, bowel problems, the works. About 1 year ago, it reached the point that I got pain in my shoulder and...
  14. tbritt
    I talked to them about it and they didn't realize that some people don't tolerate oats. I told them they should at least label their ingredients on items so people could decide for themselves.
  15. tbritt
    A designated gluten free kitchen and bakery have opened in my town. I was so excited because I can't seem to eat anywhere and trust that the food is safe. I was given a gift of some beautiful granola from the place and as I went to grab my first handful, I realized that it had oats in it. I have had the Bob's Red Mill Gluten Free oats in the past and...
  16. tbritt
    I don't think many doctors think professional violin playing is much of a livelihood. I had many tell me that I must have just overdone it playing the violin. It was a horrible kind of pain that couldn't have come from playing the violin. And it got better only when I gave up gluten. (Not when I gave up the violin.) I am convinced that the gluten free diet...
  17. tbritt
    Thanks for the info. I actually had some vitamin deficiency on my last round of tests before going gluten free. I can't even get health insurance that I can afford right now because I had "idiopathic" neck and shoulder pain. Several companies turned me down. The high risk pool is too expensive. I was told by the rheumatologist I was possibly "gluten intolerant...
  18. tbritt
    I have been on a gluten free diet for two months now and most of the pain in my neck and shoulder have gone. The swelling in my elbow and shoulder is no longer going on. I feel almost normal. There are still some remnants of the illness (the muscle is still smaller in my bicep), but overall I feel great. I no longer have gas. I am hungry for the first time...
  19. tbritt
    How long did it take to get 100 percent better? I feel I am around 85 percent better. It used to feel like something was attacking my body. Now it just feels like there is some tendon and muscle pain. (Before it had gotten to the nerve and was just unbearable.) I really thought I was dying. (And on the days I didn't think I was dying, I wished I was because...
  20. tbritt
    Hi all. I posted here about two weeks ago. I have been in EXTREME pain in my neck and shoulder for six months along with nausea, general ickiness, gas and tiredness. Strangely, I took antibiotics and I felt better for a time, but upon stopping the antibiotics, the pain returned. I did a second round of antibiotics and the pain returned again. I apparently...
  21. tbritt
    The other weird thing about my condition of shoulder pain is that it has responded positively to an antibiotic (more than once). Sounds strange, but basically, I feel better (70 percent) when I took this antibiotic, but it gets worse again when I go off of it. THERE IS ABSOLUTELY NO EVIDENCE THAT I HAVE AN INFECTION, THE DOCTOR JUST TRIED THE ANTIBIOTIC BECAUSE...
  22. tbritt
    I have been reading this message board for a little more than a week. I suspect that I have celiac and was just screened in a blood test by my new rheumatologist. I have been suffering from strange illness that have come and gone all my life: Age 7 - Anemia Age 12 - Dizzy Spells Age 13 - Seizures Age 16 - Psoriasis/Eczema so bad it would crack and...
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