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ms-sillyak-screwed

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Everything posted by ms-sillyak-screwed

  1. ms-sillyak-screwed
    Wendy you said, "I am also intollerant of corn, and I have had wierd reations to pecans." WHAT IS YOUR REACTION TO PECANS? They say to stay way from Walnuts. Wendy I'm new on thryroid med with compounding doc (3 months.) Not sure what thyroid drug company to choose from for those of us that are also corn and dairy intolerent. I just read in the book...
  2. ms-sillyak-screwed
    Hi my celiac disease and thyroid cyberspace friends! I wanted to report back and let you know that the medication Levothroid, Levoxyl and Synthroid I was taking wasn't effective because it has ingredients that I can't tolerate because they were toxic to my system - Fillers binders, with corn, dairy and etc. Some of us celiac's can't do corn, rice, potatoes...
  3. ms-sillyak-screwed
    I posted this in one other spot -- Singles W/celiac Website To Meet Other Singles, Celiac Single's to meet and find LOVE. I think it's under Celiac Disease - Coping With Okay this idea came about from another posting about those of us kissing people who are NOT GLUTEN FREE... I would love to know if there is, or should we some how start, a Gluten...
  4. ms-sillyak-screwed
    Okay since we are in the kissing mood... I would love to know if there is, or should we some how start, a Gluten Free web site for SINGLE people of all ages to meet, date and find love??? There are so so many of us [sINGLE] people with this dreadful illness... I have been sick for so many months, I'm getting better now that the compunding...
  5. ms-sillyak-screwed
    darlindeb25 - I went to Walmart yesterday and I priced the Sound Machines. I found one in the candle and aromatherapy isle where they have some mood music celiac disease's and cassette tapes. The one I found is called SOUND SCAPES it sells for about $19.00 and it looks good. It has about half a dozen types of sounds to choose from. I don't know if it would...
  6. ms-sillyak-screwed
    darlindeb25 - Glad you moved away from your stressors. Wonderful to hear about your sweetheart. Being in a loving enviroment can heal a lot. I also believe the power of loving touch does wonders as well. I noticed I became sicker (this time I had a flare up) when I called of my engagment. Plus it stressed me out in addition to several other things....
  7. ms-sillyak-screwed
    lovegrov - Thaaanx again! Sorry I'm stillll stucck with sticky keys. Today I did soome research. I found twoo compounding pharmacissts in Boca Raton, Florida where I aam. I am very disappointed in my docs theeey didn't suggest a compounding pharmacy! There iss one in east Boca he said wwould maake up the pillss for me no...
  8. ms-sillyak-screwed
    lovegrov - Thaank youuuu thankk yuo. sorrrry I'm still stucck with sticky keys on this junky1. My other 2 computer(S) got the trojaan virus wwhile looking up drug iingrediteents on a evil boguss web site. Did as you suggestedd. Caalled the companies. I found out some thyroid meds that thee pharmacy said was gluten daairy free has...
  9. ms-sillyak-screwed
    Hi my cyberspace friends! I'm baack with more questions and a baad computer with sticky keys. My other 2 computers were infeected with thee deadly trojan virus while looking up drug ingeridents alast night. Please bear with me. Mel I undersatnd what you are going thrrought. I send U and email last week don't think you got it. You...
  10. ms-sillyak-screwed
    Hi I'm baack with more questions and a baad computer with sticky keys. My other computers were infeected with thee deadly trojan virus while looking up drug ingeridents alast night. Please bear with me. I'm looking not only for gluten free but corn, an dairy free drugs. My ssysteem cann NOT tolerate CORN or DAIRY. The new thyrroid...
  11. ms-sillyak-screwed
    Hi my celiac cyberspace friends! YES, I have a big problem with CORN, RICE & POTATOES too. Great book you have to buy. BREAKING THE VICIOUS CYCLE by ELAINE GOTTSCHAALL B.A., M.Sc. The author believes some of us can't eat, corn rice & potatoes. Hi I'm baack w/ a baad computer with sticky keys. My other computers were infeected...
  12. ms-sillyak-screwed
    Hi I'm baack with more questions and a baad computer with sticky keys. My other computers were infeected with thee trojan virus while looking up drug ingeridents alast night. Please bear with me. The thyrroid medication I'm taking is giving me diarrhea. I take the pill and eat 30 mins later, within 10 minutes in in the bathroom with diarrhea...
  13. ms-sillyak-screwed
    Kaiti I think that a book is a wonderful idea. I have noticed many of your postings. You are a smart and beautiful young woman. Put you beautiful face on the cover, it will get attention. I'm glad you are going to spread the word about this hidden disease that doctors don't want to acknowledge because they can't get kickbacks from the drug companies. My doc...
  14. ms-sillyak-screwed
    SOUTH EAST FLORIDA CELIAC SPRUE SUPPORT GROUP I created this web site for them you can visit it for more information... Open Original Shared Link Copy and paste it in your browser window if a link doesn't pop up.
  15. ms-sillyak-screwed
    I'm Sleepless in Florida ~ Hi all my celiac cyberspace friends! Since I was a kid I was up late, I was born at 1:00 am if that matters. My body clock seems to be set much different than most people. I alway had a problem getting out of bed in the morning. I remember as a kid, and teen years, my dad would pull the covers off me, grab me by...
  16. ms-sillyak-screwed
    judy04 - Thanx for the info about AMBIEN. My thyroid doc game me a Rx for it and I was unable to get it filled at $130.00 for 30 pill. The sticker shock got to me (Ooch! I have no health insurance). I went back and she game me somethng else the other day (I wish I wrote it down so I could share it with the group) it had dairy in it. I returned it and never...
  17. ms-sillyak-screwed
    Hi to all my celiac disease and thyroid cyberscpace friends! I'm back again with more questions... I had the radioactive iodine treatment to burn off the HOT NODUEL off my hyperactive thyroid about 3 months ago. Last monday the thyroid doc examined me and by feeling around said the noduel was gone and now I'm HYPO, not HYPER. MY T4 was 0.7 - T-Uptake...
  18. ms-sillyak-screwed
    Thank you all my Celiac cyberspace friends! I printed out your posting and dad and I read though them. Thanx! You have all made it easier for us to understand and cope... And perhaps someday when I meet a nice guy and can travel again to europe or some far off fun spot like I use to do, I can use all this helpful information all of you have given me...
  19. ms-sillyak-screwed
    Thanks for the ideas... Please keep in mind the WEEK-LONG wedding is in a tiny spot in CanCun on a beach. There will little for me to choose from on a menu. The B*tch Bridezilla has planned this wedding there because she HATES me and my dad, its a known fact. It's the real reason. She knows my health issues. My Rock Star brother has a problem with shyness...
  20. ms-sillyak-screwed
    Hi my celiac friends in cyberspace! I'm looking for some help with cross-contamination issues. I have my 84-year old diabetic father that lives with me winters here in sunny south Florida. He eats everything, and anything he shouldn't, wheat, bran, flour, bread, oatmeal, cookies, dairy, ice cream everyday (he says "It says NO sugar added! It's okay!"...
  21. ms-sillyak-screwed
    Hi all my celiac friends in cyberspace! Please I welcome your thoughts and ideas. My brother (is with a famous Rock'N'Roll Band) and is getting married in December on my Birthday in CanCun, Mexico and he is flying in all the guests. (but not a private chef) I have been deathly ill with celiac and thyroid problem I still don't have under control. I just...
  22. ms-sillyak-screwed
    mela14 -- I also had a total hysterectomy about 10 years ago at a very young age (30's) I took hormone replacement through a little patch I wore on my fanny or tummy. I also had many gyno surgeries and suffered my entire life with endometriosis too. My Gyno doc by accident gave me a double dose of patches I wore for about a month prior to >>> I peeled...
  23. ms-sillyak-screwed
    mela14 -- Hi I suffer from the same thing. NO potatoes at all anymore!!! I was told by a nurse that [some of us] can NOT process RICE, CORN & POTATOES. Because it's some sort of carb. I found this to be true following my last flare up. If you notice my profile following understanding the celiac illness I was faced with - I instantly went on a...
  24. ms-sillyak-screwed
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  25. ms-sillyak-screwed
    Yes, I'm taking ENZYMES and having good results. I am unable to eat dairy products, so I haven't tried the acidophelus (how ever its spelled) type. I'm taking INFLAM-A-WAY from the company PREMIER LABS. The label says "HI-Potency ENZYME Formula Clinically Tested." I get it from the doc it is very expensive $$$$ 40.00 a bottle of 180 tablets. The doc...
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