ms-sillyak-screwed
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Latest Celiac Disease News & Research:
Everything posted by ms-sillyak-screwed
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Hi my celiac cyberspace friends I'm back from the dentist. I think he's okay... The good news is a filling came out, now I need a root canal, with crown. 2K OUCH! The bad news is I need to take antibiotics for a week or so. My celiac question is... What type of ANTIBIOTICS are safe? Every time I have taken them in the past it wasn't a pleasent experience...
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ARCHIVED Lump On Neck
ms-sillyak-screwed replied to Hennessey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi again it's me. I've learned a lot about thyroid and food... If your thyroid is HYPER you need to eat [less of food with iodine] (fish), and etc... If your throid is HYPO you need to eat food that will stimulate it. The material on the net is VERY CONFUSING! It was for me. Don't mess around with this. I went to several doctors. I went to one alternative... -
ARCHIVED Lump On Neck
ms-sillyak-screwed replied to Hennessey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
YES, I had a lump on my neck. It was a hot nodule on my thyroid. If you would like I will take you back to what lead up to it for me. About 5 years ago I didn't know what it was. A family member a nurse (not blood related) told me about C D. I believe it was Celiac attacks, they were unbearable I would passout and etc. The thyroid doc said I had borderling... -
ARCHIVED Dying On A Feeding Tube
ms-sillyak-screwed replied to ms-sillyak-screwed's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Christmas Gifts - What gluten-free Books?
ms-sillyak-screwed replied to Lisa's topic in Publications & Publicity
Anyone read??? "FOOD ALLERGIES AND FOOD INTOLERANCE" A COMPLETE GUIDE TO THEIR IDENTIFICATION AND TREATMENT. By JONATHAN BROSTOFF, MD & LINDA GAMIN. One of the girls in the allergy doc's office handed this to me when I was waiting for my food allergy shot the other day. It looked good. It had info on IGA IGG and more. I will get it if anyone... -
ARCHIVED Oprah - Let's Get Cd On Her Show
ms-sillyak-screwed replied to floridanative's topic in Publications & Publicity
Any of you around the country hear about the young kids deadly kiss? She was allergic to peanuts. Her boyfriend ate a big fat peanut bitter sandwich, then kissed her a long loving slow kiss and it KILLED HER! Open Original Shared Link Maybe the bar will raise when the numbers come out those of us that are dying from celiac disease and toxic food... -
ARCHIVED Celiac Awareness Letter Writing Campaign
ms-sillyak-screwed replied to angel-jd1's topic in Publications & Publicity
Kaiti you are a doll! I just love you! You never stop amazing me. Thanks for all the info. I don't know you but, you have helped me on the darkest day of my life with the death of my Auntie her feeding tube and celiac disease testing. I am forever a fan. I thank God for your big heart and kindness. I'm going to do some letter writing. Open Original Shared... -
ARCHIVED Not Gaining Weight
ms-sillyak-screwed replied to gabrielle's topic in Related Issues & Disorders
debmidge -- thank you for the great idea. I can't eat COCONUT. It's my all time favorite. I can't eat dairy so I would get the Coconut Italian Ice I loved it. And Coconut thai food yummy. Well, my test came back [i'm allergic]. As a matter of fact I'm calling around today for a dentist that is celiac friendly that doesn't have coconut flavoring in their... -
ARCHIVED Girls Only - Need Advice On Putting On Weight
ms-sillyak-screwed replied to Matilda's topic in Related Issues & Disorders
I just love it here! [giggle] I feel like I'm sitting around in my livingroom with my girlfriends girl-talking. Matilda your posting was great. [giggle] I loved it! [giggle] You can buy boobs; I think the FDA approved them after all that time, (they really should have done that in the begining.) Anyways back to the shopping trip -- I'm a royal diva... -
di•eti•cian and nu•tri•tion•ist were the topic tonight. DaddyO and I were watching TV (something mindless I just can't seem to wrap my head around) but I was doing it to be with him. He was watching TRADING SPOUSES cute show, it had an attactive affluent Australian blonde living the NW and a disfigured and obese middle age hippy living off her two k...
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Well, I spoke to soon. I was doing good with my thyroid med and haven't had night sweats in months. Then the day before yesterday -- I ate a dark chocolate candy bar, I've eaten them before without a problem, but its been a few months (around the same time the night sweats stopped.) I have a major probelm with SOY, soy anything, soy lethin (sp) too. Well...
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I will tell you who I went to and my NO GO experience... Alalu Jaime MD 1325 South Congress Avenue, Boynton Beach, FL 33426 NO GO Alalu can't wrap his head around the words Celiac Disease. Don't waste your $money$ with him or his practice. They are in bed with the diagnostic testing place. They don't have a di·e·ti·tian or nu·tri·tion·ist . One...
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ARCHIVED Need A Dr In The North Miami Beach Area
ms-sillyak-screwed replied to mela14's topic in Doctors
Mel -- I'm in the same situation looking for a GI doc again in the Broward and Palm Beach county area too. Forget DR. BOTOMAN in Fort Lauderdale the office staff plays games. I wouldn't trust them. I'll let you know if I find one... Open Original Shared Link -
My pearly whites, aren't so pearly anymore. I believe the water is bad here in Palm Beach County Florida. They add things to the water to make it that green-blue color. I remember my teeth enamel and etc was effected more so when my thyroid went wacky. I'm still trying to figure out if is was the thyroid or celiac problem that came first. So...
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shayesmom -- I'm so sorry about your dad. I feel your pain. I'm sorry and offer my deep sympathy for your loss. I can't imagine my life without my 85-year old daddyO. He is all I have in this world since -- I also lost a loved one. My sweet 81-year old handicapped Auntie that was on a feeding tube and life support, all as a result of the medical community...
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ARCHIVED Starbucks Coffee
ms-sillyak-screwed replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I don't know if some of the other Celiac's with thyroid problems like I have -- have the same problem with SOY. Soy is not good for us!!! We in years to come are going to find out SOY is BAD. I have a problem with dairy, and have since birth. Soy however was my alternative. I love the way it tastes; Silk milk was my all time favorite, with rice cereal... -
ARCHIVED Starbucks Coffee
ms-sillyak-screwed replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
Starbucks is the worst coffee I ever had! bitter y-u-c-k-y and b-l-e-c-k-y! Ooops, did I say that? {giggle} Sorry, don't throw starbucks coffee beans at me I don't know what all the rave is. And I love coffee too. I, unlike most of you in Celiac-cyberspace that can tolerate dairy, I CAN NOT. Last night I had a houseful and made a gluten free Thanksgiving... -
ARCHIVED Dying On A Feeding Tube
ms-sillyak-screwed replied to ms-sillyak-screwed's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Light Sensitive Upon Waking
ms-sillyak-screwed replied to ms-sillyak-screwed's topic in Related Issues & Disorders
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Soy is a huge problem for me. My hair falls out in gobbs. Soy is bad for people with Thyroid problems. It's in the legume family. Big NO NO!
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ARCHIVED Light Sensitive Upon Waking
ms-sillyak-screwed replied to ms-sillyak-screwed's topic in Related Issues & Disorders
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ARCHIVED Help With Elimination Diet!
ms-sillyak-screwed replied to Alexolua's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi again! The MetaMetrix test results are confusing. And last week when I was looking for answers why I'm allergic to Soy and Legums more then dairy and gluten. Or so it says in this paper. The doc admitted the blood tests are [NOT as accurate] as the scratch tests. I have never been tested for celiac disease because the colonoscopy (sp) the gastro... -
ARCHIVED Dying On A Feeding Tube
ms-sillyak-screwed posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Till I'm Blue In The Face!
ms-sillyak-screwed replied to Nicolette's topic in Coping with Celiac Disease
Well, I'm on a mission to educated EVERYONE about celiac disease. If a stranger talks to me. I change the subject around and talk about celiac disease. I tell everyone, people in stores, at the post office, where ever, I don't care if they think I'm a little nutty. Maybe we can educate people we come in contact...? While my eldery terminal Auntie is... -
ARCHIVED Light Sensitive Upon Waking
ms-sillyak-screwed posted a topic in Related Issues & Disorders
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