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ms-sillyak-screwed

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Everything posted by ms-sillyak-screwed

  1. ms-sillyak-screwed
    TALK TO THE HAND is something I feel I have to do living with celiac disease. Ha! I did send an email and invited them to read my blogg how I had to pull Auntie's feeding tube. In cyberspace do people read emails or wearout their delete buttons? Open Original Shared Link Don't think people want to buy books that get bad reviews. [lol]
  2. ms-sillyak-screwed
    Yes, I have it too. I was hyperactive as a kid and all my adult life, you know A-type personality. Then super major chronic stress hit me, didn’t sleep, I ate bad food. In 2001 I got hit with both of these diseases at the same time. Which came first anyone know? About 5 years ago I realized the food I was eating was causing steatorrhea diarrhea t...
  3. ms-sillyak-screwed
    I was wondering also about autoimmune diseases because I honestly -- know nothing. All I know is about 10-years ago my ex-hubby (not a doctor but we owned a chain of medical centers) he marched me around to all his doctor buddies they diagnosed me with all sorts of things, migraines, IBS, and etc. One was an autoimmune disease, A-type? I think I’ll g...
  4. ms-sillyak-screwed
    teebs in WV -- I will write too. Do you have addresses of the major news media outlets you can post here?? I really think we will have better luck, since the peanut kiss death...
  5. ms-sillyak-screwed
    Very informative posts... My head is spinning trying to understand good and bad tests. I started seeing an ALLERGIST last year who said he treats celiac disease patients. I had a series of blood tests by a clinical lab called METAMETRIX. A huge waste of $$$. I believe the tests are not accurate and after I went through all the tests the doc admitted...
  6. ms-sillyak-screwed
    I'm the same way... I keep a celiac journal everything that goes in my mouth, everything I do and little things like if I have had steatorrhea or just diarrhea, also night sweats and etc. I can't find and common thread. Anyone know what is the cause? Could it be you were having fun with hubby (love & laughter heals a lot) and that's why you were...
  7. ms-sillyak-screwed
    Anyone read da vinci code? -- catch the part about food alergy death?
  8. ms-sillyak-screwed
    Poison Control 1-800-222-1222
  9. ms-sillyak-screwed
    BetseyCo -- I wish I has some answers how to gain weight. have you had your thyroid checked? Hyper - Hypo? I have since got my thyroid under control. Also for the past few month I felt sicker after I broke a back tooth and the filling came out. OUCH! I went on antibiotics pennicilen (sp) based. I alway have problem with them. Not this time....With in a...
  10. ms-sillyak-screwed
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  11. ms-sillyak-screwed
    Everyone here is on the right track... I got an idea. Since the deadly peanut kiss death of the couple in Canada. The local Fort Lauderdale newspaper has had all sorts of stuff about food allergies following her death. And the reported numbers of deaths related to food are begining to climb 200+ a year. More then 50 I read someplace else. We all know...
  12. ms-sillyak-screwed
    Update -- I brought the WSJ article with me and asked my new GASTRO DOC (treats celiac disease) if he had read it. He said NO I DON'T READ THE WSJ. So, I gave him a print out. I just got off the phone with my cousin that works as an art director in NYC in advertising for the medical industry (RX companies)... She said DOCs don't read the WSJ (unless they...
  13. ms-sillyak-screwed
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  14. ms-sillyak-screwed
    Hi all! I just found a wonderful doc who treats celiac disease he's from NY and moved to Boca Raton after the hurricane. I went to see him two days ago. He gave me a sample of DONNATAL he did day it had a narcotic (sp) in it. And this med it best to take at night bed time. He said it will act as a sedative. I did look up the ingredients myself on the net...
  15. ms-sillyak-screwed
    Deb -- Sorry about hubby. Many thanx! And God bless you. You both have helped change and bring about awareness for celiac's, people and doctors. I agree! Any ideas? Don't laugh. Call me Open Original Shared Link. I think I'm going to send the article in my Xmas cards this year. So people will get 'it'?!
  16. ms-sillyak-screwed
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  17. ms-sillyak-screwed
    Thanx for posting and all the links! I printed it and I'm taking w/me to my gastro doc apt today... We made it front page WSJ lets celebrate!
  18. ms-sillyak-screwed
    Hi Celiac cyberspace friends! Grieving is many things for many people. Love, compassion, guidance and understanding does help me, although they are very hard to find (except here) thanx! The grocery store has become a quick visit 1-2-3. I don't look around at what I can't eat. As I write this, it dawns on me, all of you have a family, boyfriend...
  19. ms-sillyak-screwed
    frustratedneicey -- Do like I do. Go on PROTEST. I protest those peope, friend and family. When I was married to my last hubby, before Celiac. I would make gourmet meals, he would pour vinagar all over it. So, I went on protest and [wouldn't cook] at all. Try it. It's [your kitchen], remember, you are the [boss]. Don't let them muscle, guilt or shame...
  20. ms-sillyak-screwed
    Susie Essman has Celiac? That's wonderful, not really. But we need her help. She might be able to do a comic act about sillyak. THANX! --jerseyangel
  21. ms-sillyak-screwed
    Great news! With the hurricane so did changes... I found a doctor that treats celiac disease, very nice office staff. DaddyO and I, both have an appointment with him this coming week. The girls in the office have called me back three times. I told her I can refer 100 Celiac's from a local group. Open Original Shared Link The group requires a membership...
  22. ms-sillyak-screwed
    Contacting Emeril Lagassee and Martha Stuart is a great idea! And there is also a less known cook but she's a power house -- Rachael Ray. How about some of the culinary schools too? The other night in the middle of the night (my daddyO plays a radio really loud on talk radio when he sleeps) so I couldn't help but hear it. I stood outs side his door and...
  23. ms-sillyak-screwed
    gabrielle -- Your right about your work-friends. I know how you feel. I think it was Kaiti that got the point across to her friends. Get her to tell you the story. I hope I get this right. I remember a little where they ordered pizza, (they knew she couldn't eat it) so when it came and everyone dug-in she sprinkled [Comet or DrainO] on hers and offer her...
  24. ms-sillyak-screwed
    Grieving the loss of my sweet handicape Auntie and a wonderful life I once had. Toxic food more then just celiac disease has me many times overwhelmed. I too also am in denial. I just turn my head and pretend it doesn't bother me. I can never eat BIRTHDAY or WEDDING CAKE! Does that mean no new hubby and or birthdays to celebrate? No more Dunkin Donuts...
  25. ms-sillyak-screwed
    Hi my celiac friends. I am also going to the dentist because of a tooth problem. I will say this -- I have read that loss of tooth enamel is common in C D. I have experieced it. It's painful. But I noticed -- Rusla -- you are on thyroid medication. I read when your T's I think it's T4 is too high it causes tooth loss tooth problems... and my T4 was off...
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