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Loey

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Everything posted by Loey

  1. Loey
    I had posted in another forum that my insurance company hasn't approved the capsule endoscopy for Monday. I don't think my new GI is taking me seriously. I get the feeling he thinks I want pain medication. I don't need to get it from him and have chosen not to take any that I have because I don't want to mask the symptoms or create other problems by taking...
  2. Loey
    What is DH? Loey
  3. Loey
    Hello again. I'm thinking I need a second opinion because no blood work has been done (to my knowledge) to see what vitamin deficiencies I might have. I haven't found a GP here yet. Just went to the GI to get the ball rolling for me and to have my son genetically tested before he left for college. I am beginning to feel that when I call the office I'm seen...
  4. Loey
    Thanks for the post here. I'm really frustrated right now because I just called my GI to check about my test (capsule endoscopy) on Monday (I have to prep for it Sunday night) and BC/BS hasn't approved it yet and he's not sure they will. I'm ready to cry. My old GI and GP got the tests I needed authorized immediately before I moved. Thanks for listening...
  5. Loey
    I purchased the Triumph Dining Trio (not cheap but if you buy it on thier website it's affordable). It includes two books (grocery guide and restaurant guide) and laminated dining cards. The grocery guide lists products that are gluten-free (and specific Walmart products are listed in there) and the restaurant guide lists restaurants in every state (and most...
  6. Loey
    Hi GFinDC, Thank you SO much for the information. I was eating a lot of the products on the list because they were gluten-free. Today I eliminated milk (before I read your post about just eating 5 foods to try the elimination diet). Also when I saw my new GI last week he said there was still gluten in my system so it had to mean that I was still eating...
  7. Loey
    Hi Kitty, I am new to this forum and to Celiac. I also relocated to a new state. I was diagnosed a week or two before I moved after being bedridden (due to Celiac symptoms) for 6 weeks prior to the move. I think I like my new GI but know better than to expect him to have all the answers. I'm in the middle of a really bad three week flare right now and...
  8. Loey
    I didn't think about cross contamination coming from produce. I was buying items either at the supermarket (next to the bakery) or a farmer's market (where I don't know how they handle the produce). As a newcomer to this disease I'm still trying to find my triggers and I was going to try and just stick to rice, protein and fresh vegetables and see how that...
  9. Loey
    Thank you for the helpful advice. I wasn't sure how you went about setting it up. I've made contact and am looking forward to meeting someone who lives here. She's offered to take me to the Support Group when it resumes it's meetings. I agree with you that we take a chance every time we put something into our mouths. As a newcomer to this disease I'm...
  10. Loey
    I'm new to this forum and have benefited from it more than I can say. I was very fortunate and found someone who not only lives close by but shares my interests. I just moved here from another state and I would like to get together. I'm not big on my personal information being out there on the Internet but I would like to be able to email her from home in...
  11. Loey
    Hi Kathy, I'm new to the forum (I don't know why I'm listed as advanced on some threads) and I have a list of medications that are all supposed to be gluten free. We still need to read all the labels carefully. Loey I hope that his helps you: Open Original Shared Link
  12. Loey
    I had never had a problem taking Augmentin until the spring. It triggered the illness (later diagnosed as Celiac) that kept me bedridden for 6 weeks. I agree that you should get in touch with your doctor right away. You can take an antibiotics for many years before ever having a problem with it. It is gluten free but I'm personally stearin clear of it. I...
  13. Loey
    Hi Allison, I just moved to RI in June (the day after all of my test results came back). I love it here but am very homesick because I haven't met anyone up here yet. I'm looking into joining the RI Celiac Support Group (in addition to this forum) but it would be nice to be in contact with someone else suffering with Celiac through this forum. I'm an elementary...
  14. Loey
    I'm also a "newbie." I have already benefited so much from this forum. Everyone is willing to take the time to share their experiences and as you go to the different forums you'll find different stories. It seems to take some people more than a few months to feel like their "old selves" again but we all need to take it easy on ourselves. I am very lucky...
  15. Loey
    Thanks again so much for your replies. As you can tell by the time this was written I've been waking up early in pain. Today I'm determined to get out of the house to get comfortable sweatpants (I wear a size small but any pressure makes the pain worse). It's already very cold where we live (RI is surrounded by water on three sides so it's always 10 degrees...
  16. Loey
    Thank you so much for the very helpful reply. My house is entirely gluten free (to the best of my knowledge). Didn't make me a popular mom with my son over the summer but he tested negative (phew) and is enjoying any food he wants at college (that will change when he comes home for break). I don't even let my husband bring in leftovers from a restaurant...
  17. Loey
    Hello, I'm also new to the forum and new to the diet. We had recently moved to a new state and my old G.I. wanted me to have the capsule endoscopy. She felt that this had gone undiagnosed for a long time and wanted to make sure there was no organ damage. My new doctor didn't think that was necessary because I was doing well when I brought my son in for...
  18. Loey
    HI everyone, I am new to this forum and actually found it after goggling side effects of prednisone. I've recently had a lot of life changes (we moved to another state the day after my son graduated high school). I literally received my diagnosis the night before we left NJ. I was doing all right for about a month or two but for the past three weeks...
  19. Loey
    Hi chahill, I'm new to this forum and was just diagnosed in June. I found a website that lists medications that are gluten free (you should read the labels anyway): Open Original Shared Link I've been spending a lot of time in the forum about food lists. In general I'm just so happy to have found this web site ad meet people with the same problems...
  20. Loey
    Hi Britt26, That's why GFinDC's post was a great cautionary P.S. to the list of foods that was compiled. We all need to read the labels carefully and become our own detectives. I'm also learning that all foods that are legitimately gluten free can still trigger an attack for me. I hope this Forum helps you as much as it has helped me in the few short...
  21. Loey
    Hi GFinDC, Thank you so much forthe informative reply. My new doctor acted as if I was not following the basicgluten free diet when I knew I was and then I realized I had to be my owndetective and look for trigger foods. Do you know how the elimination dietworks? I think you eliminate one food at a time. My breakfast today didn't sitwell. I would...
  22. Loey
    Hi Lisa, Thank you for your welcome, sharing your knowledge and the link. Initially I was just sticking to basics. I think when I first moved, because I was feeling so well, I wasn't as cautious as I should have been. I may not have recognized some of my trigger foods or those additives that I don't know the meaning of and should just stay away from...
  23. Loey
    Hi GlutenFreeMN I agree with the answers already posted to this question. I'm new to this forum and was only diagnosed in the spring. I am hyper sensitive to anything containing gluten. I don't even allow my husband to bring his leftovers home if they're not gluten free (I have a really supportive mate). I am also a research geek (wanted to be a librarian...
  24. Loey
    Thanks for the reply and warm welcome! I was only diagnosed in the spring, started feeling well a few weeks after eliminating gluten and then had a major setback about three weeks ago. My G.I. in NJ thought I had it for a very long time and was surprised I hadn't been diagnosed earlier. I moved to another state the day after she told me my test results...
  25. Loey
    go to "my gluten free list" posted on 1/10/08 and you'll find a comprehensive list that a member has compiled. I purchased the Triumph Dining Series which has a book listing supermarket products that are gluten free (name brands, thus cheaper). a restaurant guide for all 50 states, and dining cards (laminated and written in the language of the cuisine on...
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