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Leah's Mom

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Everything posted by Leah's Mom

  1. Leah's Mom
    This sounds so much like my daughter's behavior before she was diagnosed with Celiac's in 2nd grade. My heart breaks for you...it is not easy. However, if it is the extreme stomach discomfort that is causing her behavior issues, there is a prescription drug for intestinal cramping called Dicyclomine. It can be given as needed for such emergencies. We have...
  2. Leah's Mom
    I totally feel your frustration. Many shampoos have wheat germ or some other gluten . . . my daughter had a horrible reaction for about a month, and we finally figured out it was because we switched shampoos and it was dripping down her face when she rinsed it out. We went back to suave naturals. Is her toothpaste gluten free? During dental proceedures...
  3. Leah's Mom
    I totally feel your pain. Have him try Udi's bread . . . it's the closest gluten-free bread we've found to regular (soft and not grainy like other rice breads). On the bright side, I think it's been easier since we went 100% gluten free in our home. No chance of cross contamination (double dipping the butter knife, etc.)and our daughter feels "normal"...
  4. Leah's Mom
    Actually we were told by a McDonald's manager that there isn't cross-contamination issue . . . he said that big clear spoon with the hollow square end in your McFlurry fit's onto the mixing machine. Every McFurry has it's own stirer. We watched and that seemed to be the case. I would be more suspect of the Reeses Pieces. . . . Hershey has been very disapponting...
  5. Leah's Mom
    Hershey now says that all Reese's products may contain gluten...(yes, even the cups) as may several other candy items we once thought safe . . .So beware! They have a Reese's candy bar out now. Outer label is identical to the cups, but on the big ingredient list is wheat flour. They don't, however, list wheat under allergen information at the bottom which...
  6. Leah's Mom
    The key is creativity at holiday meals . . . it doesn't necessarily have to be more costly. If you google "gluten free thanksgiving" you'll find tons recipes for the holidays. I personally like the following link: Open Original Shared Link There are 11 recipes for gluten-free side dishes including traditional favorites like stuffing, green...
  7. Leah's Mom
    First things first, you are Not Helpless in the matter. You are your child's best advocate. Since the biopsy is an ordeal . . .my suggestion is that since your household eating habits are already gluten free for the whole family, make sure she follows the same diet when away from home too(no cheating). Make sure you know her vitamins and meds are also gluten...
  8. Leah's Mom
    The only conclusive test I know of is an endoscopy, and that would require anesthesia. However, it sounds as though you and your husband are skeptical, and may need a test with 100% accuracy. My husband and I were also skeptical (and we don't even have a history of Celiac Disease or a gluten allergies in either of our families), but our daughter's tantrums...
  9. Leah's Mom

    Our daughter was diagnosed in 2nd grade with Celiac Disease through an endoscopy in 2006. For 7 years prior to her diagnosis, she had horrible stomach cramping, eczema, she alternated between diarrhea and constipation, headaches, and horrible behavior problems (to the point we took her to several psychologists and psychiatrists). Now that she's gluten-free, she's a completely "norm...

  10. Leah's Mom

    has not set their status

  11. Leah's Mom
    On Tuesday, the gluten-free labeling petition was the #1 most active petition in the U.S. Now we are down to #10 most active and have only 195 signatures . I've got to say I'm surprised and disappointed. I contacted every Celiac organization in the United States(including universities with medical depts. studying Celiacs) on the Internet, and gave them...
  12. Leah's Mom
    Just a heads up--I thought I was safe in the rice isle--but beware: Wal-mart's Great Value brand of instant brown rice states it may contain wheat! Are you kidding me?
  13. Leah's Mom
    Just a thought . . . . are you sure all medicines that your son takes are gluten free . . . including the Miralax? We've found that most vitamins, stomach and pain meds actually contain gluten(they use it to bind togther the ingredients in solid pills and thicken liquids.) If you call the manufacturers directly and they can guarantee no gluten is present...
  14. Leah's Mom
    Since the US is the leading manufacturer for pharmaceuticals, legislation mandating labeling would help people with gluten allergies in every country:)
  15. Leah's Mom
    Mandy, I know you probably feel like one of the unluckiest people in the world right now, having a one year old diagnosed with Celiacs. In reality, you and your child are so lucky they discovered it so early. We spent the first 7 years of our daughter's life in the pediatricians office on a regular basis and even took her to psycholgists and psychiatrists...
  16. Leah's Mom
    Hi everybody! I was hoping you'd take a second to go to the link below and sign the online petition I created to mandate pharmaceutical companies to label their products as "gluten-free" or "containing gluten". For those of you who are new to the world of Celiac Disease, believe it or not, there are no current laws regulating this labeling on medications...
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