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AerinA

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AerinA

  1. AerinA
    I think the best thing about it is when you do something that used to trigger a headache -- like, for me, going out in the sun without my sunglasses -- and then remembering that it isn't going to hurt I appreciate everything so much more because of it!! I would never say I'm glad I had such awful migraines for so long, but I will never take not being in...
  2. AerinA
    For me the nausea turned out to be low blood sugar. I think it was withdrawal/body in starvation mode/"ohmygodwhereismygluten." I think our bodies are trying to make us eat gluten because that's what you're used to and a lot of people do have some form of withdrawal. I was actually hungry all the time PRE-gluten free diet and had vitamin deficiencies, after...
  3. AerinA
    I would guess that going gluten free might make other food intolerances more pronounced. You might cut out the soy for awhile and see if it helps or try an elimination diet and see what is bothering your stomach. I get really really bad pressure/cramping when I accidentally CC myself so you might need to look at your food prep processes more closely (or...
  4. AerinA
    Just to update, I have had exactly ONE headache since I started my gluten free diet (post-withdrawal, at least,) that interrupted my day-to-day activities. I was getting them several times each week before I went gluten free. Other neurological issues have also improved, but by far the most significant change is the lack of migraines. It is liberating...
  5. AerinA
    Yeah, sometimes our bodies don't really know what's good for them, so we have to just show them who's boss. And it doesn't always feel very good I hope you start feeling better soon. It will get easier. <3
  6. AerinA
    Lots of people also react badly to soy... and some have also developed problems with corn, potatoes, etc. Look up some of the forum posts on "leaky gut." If you are still having problems, try cutting out some of the more common offenders, it might help. And CC is very very common in restaurants, especially those that are not aware of how very careful...
  7. AerinA
    You can line the shelves with shelf paper to prevent wheat residue from getting on the packages. Doesn't sound like a big deal, and sometimes it isn't, but take a box of gluten free crackers out, get crumbs on your hands, then touch the crackers = possible cross contamination. Also remind your roommate of things like, if you have an ice maker, don't touch...
  8. AerinA
    I agree that he should see a doctor. Over time, the body develops a dependance. I don't know how long / how much he has been drinking, but in some cases it is dangerous to detox at home--he should definitely get a medical opinion (even if it is determined "safe" for him to detox, you should be made aware of what to expect as far as withdrawal symptoms)...
  9. AerinA
    When I started the diet, I got one plastic cooking spoon and one cutting board and a separate strainer for pasta (imagine trying to scrub all the gluten off those--good luck!!) We have one pan that I make gluten free pasta with, and the skillet has become gluten free. I try to keep everything as separate as possible, including in the fridge, because I know...
  10. AerinA
    I had a whole laundry list of seemingly random symptoms, all being treated as separate conditions, all unsuccessfully, until I got a new doctor who suggested I try the gluten free diet. So far I haven't found any other food issues besides gluten, but having been gluten free for a bit now I can say for sure that gluten was a BIG part of the problem. I saw...
  11. AerinA
    Thanks a lot for the reply, I'm feeling so much better all the time, it's really amazing! And my weight has started dropping off without much of anything being done to provoke it, just as you said, eating smaller portions and not feeling starving all the time. I still think I should start working out, for fitness sake though, not so much for extra weight...
  12. AerinA
    Pick my brain any time. I started to feel my energy level climbing after about 3 days. Of course I still felt kind of lousy from withdrawals and I thought it was the placebo effect, and maybe it was, but things have continued to improve at a pretty steady pace since I started the diet. I feel more "normal" all the time. I had another migraine this...
  13. AerinA
    Hey, I've totally been there. I felt like I was living in a haze that was getting thicker, the migraines were getting worse, and nobody seemed to have any answers. I wasn't that hopeful about the diet honestly, I hoped I would absorb my medicines better, but I had no idea it would have such an awesome effect and fix so many things. Your symptoms sound...
  14. AerinA
    Unfortunately the FDA doesn't define "gluten free," which causes two problems : gluten can be considered a "natural flavor" or a thickener or any number of other things, and they don't have to declare it on the label (I'm still shocked that Mrs. Butterworth's syrup has gluten in it). Also, products that contain no gluten are not always labeled "gluten free...
  15. AerinA
    I always check brand names to make sure they're not processed with wheat, too... never know what the peanuts might have touched before getting squished @.@ --not that I know anyone who's had a problem with it, I just check EVERYTHING. Also found out a lot of peanut butter has added trans fat and other things. I couldn't bring myself to buy it once I KNEW...
  16. AerinA
    I started to feel better after about two weeks, after the withdrawals went away. You might feel them sooner or it might take a little longer, I know I probably messed up with the diet a few times at first. By the way, if you can get a microwave, you can scramble an egg in a dish and microwave it for a few seconds... I do that at work in the mornings...
  17. AerinA
    Anything from anywhere other than your own kitchen could be cross-contaminated, eating out is always a risk. For example, did the people who filled the lettuce bins just handle croutons? You don't know. Is there gluten in the salad dressings? Again, you can't know. Did someone accidentally drop bread crumbs in something, or did they slice the tomatoes...
  18. AerinA
    Actually she's not an expert... ironically my endocrinologist was the one who told me about gluten intolerance, after ALL the other docs I've seen. She knows someone with celiacs with similar symptoms to mine and has since been watching for it in her patients with vitamin/absorption issues. Kind of makes me laugh. I'm not due to see her for a few more...
  19. AerinA
    Yep, this happened to me. It got way worse after I had my thyroid out, they called it mixedema mania I think, a symptom of low thyroid that mimics dementia. Well, they're getting my thyroid back on track and it's still a problem, in fact it was getting worse. I feel somewhat better after being gluten free for a month, I hope it keeps getting better but...
  20. AerinA
    My migraines have totally gone away since I started the diet, I was also on various anti-depressants to "prevent" them for years, and at best they helped a little bit. Don't stop taking them suddenly. If you've decided you don't want to take them (and honestly I think they're pretty useless, at least that was my experience,) call your doctor. He can't...
  21. AerinA
    I'm so glad it's not just me, I really thought I was going to have to go to the hospital, except it started feeling a LITTLE better so I figured I probably wasn't dying, haha. I knew I'd get more sensitive but holy cow... did not expect that violent of a reaction. I figured that had to be it because I've never felt that kind of pain before. One other...
  22. AerinA
    I get lattes from Caribou all the time, their syrups are gluten free... last night I ordered a caramel high rise, which has caramel SAUCE on it (sometimes). I didn't notice whether they had put the drizzle on this time or not, but I hadn't even thought about it. I've heard a lot of people have delayed reactions and I have NO idea what could have done this...
  23. AerinA
    I have to update this... I'm pretty sure I got contaminated pretty hard at some point over the last few days. I've been having bouts of extreme stomach pain, it seems like my guts are clamping or something, it's extremely painful, and there is a really sharp cramp that I get to the right of the middle of my lower abdomen (if that makes sense.) Sometimes...
  24. AerinA
    My personal opinion is that people shouldn't BE doctors unless they know what it's like to be sick, or have lived with / been close to someone who has been. Most of the docs I've met have been convinced my issues were in my head... which they would never have dreamed of assuming if they had ever experienced a medical mystery of their own.
  25. AerinA
    It seems like everything is inter-related, and it gets so frustrating when doctors focus on one specific thing and blame that... I had my migraines, semi-narcolepsy, brain fog/"ADHD," and thyroid issues (not absorbing my meds after having thyroid removed) being treated as totally separate problems, when in fact all my symptoms seem to have had one common...
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