Jump to content

MsCurious

Advanced Members
 View Profile  See their activity

  • Posts

    291

  • Joined

  • Last visited

  • Days Won

    3

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by MsCurious

  1. MsCurious
    Did taking the supplements again resolve the issues?
  2. MsCurious
    Did you get your tests scheduled? Get back on that awful gluten diet... get the tests and soon you can go gluten-free and feel all better!
  3. MsCurious
    Thanks Carolyn for your kind words. If I had a double DQ8... I'd go gluten free so fast and never look back. If you're having symptoms and gluten-free is working... your doctor is probably spot on. Glad you at least got those results. I'd be pretty assured with that, and I wouldn't poison myself by going back on gluten to get the tests. In fact, if I have...
  4. MsCurious
    I know how you feel. I have had unexplained fainting many times, once slicing tomatoes with a very sharp knife. Thank goodness when I crumpled to the floor the knife went one way and I went the other. Another time I fainted in church and my face hit the pew in front of me and my tooth went through my lip. Another time I was showering... and felt the ...
  5. MsCurious
    I'm still sorting through what's what, too... but here's how those two things affect me. Lactose intolerance and gluten intolerance BOTH make me feel the same ... bloating, gas, diarrhea, cramping... all that fun stuff. The difference for me is gluten seems to make me feel really tired, brain fog, sometimes joint pain if I really had a lot. Lactose intolerance...
  6. MsCurious
    Thanks for sharing your story... I'm definitely going gluten-free, I already know I feel 100% better, but I would like to find out if it is celiac or a non-celiac gluten sensitivity/intolerance. They both are awful to live with, same symptoms, but one damages your internal body, the other just makes you feel sick. If I'm non-celiac gluten sensitive/intolerant...
  7. MsCurious
    Just got a call from the doctor's office, and STILL no results! This waiting is killing me! I guess I'm getting a little impatient, because I KNOW I feel so much better when I don't eat gluten, but I can't go gluten-free until the results are back and we know what direction we're going in. I don't want to mess up the biopsy results if that's next. Its been...
  8. MsCurious
    Thanks for all the replies, and good advice, everybody! I was curious how difficult it would be to do both, but I think I know what we will do. Put all the gluten toxins on a lower shelf as suggested, and once those things are gone, go completely gluten free. My husband is supportive.. he said we'll do "what ever it takes" to make it easy for me. I do most...
  9. MsCurious
    Pretty possitive it was shingles. Started with HORRIFIC stabbing pain that felt like I was being stabbed through my back and a few days later it felt like stabbing through my chest. Then rash developed in a line from my back to my chest... only on one side of my body.. EXCRUTIATING pain, following a nerve path. It lasted for five weeks. Wouldn't wish it on...
  10. MsCurious
    Oh, I guess I should ask why you asked about the scarring? Is there something I should know? Also, the reason I asked him to do the genetic marker testing was that I wasn't comfortable with the negative results, and wanted to either completely rule out celiac disease, or have reason to continue my search for answers with regard to celiac disease or...
  11. MsCurious
    Yes, they did, well... purplish red.. but they are fading a little. Hopefully, they will be gone in a few months.
  12. MsCurious
    Hi again, Just wondering how you all adapt the gluten-free lifestyle within the home. Does the family go gluten-free, so it is a completely non-toxic environment at home? I am sure my husband would do that, and of course indulge in a normal diet when away from the house. How do your spouses and family feel about it? This is all new to me, so I'm not sure...
  13. MsCurious
    Hi Mushroom, Nice to meet you! Thanks for the tip, sounds like that would work... I'll give it a try!
  14. MsCurious
    Irish Heart, Thanks for posting this...it gives me hope and encouragement! I don't know if the genetic markers will show up or not, but after knowing what I've been through for a lifetime, like you... even if its not there, I am going to try gluten-free diet, because it could be a gluten intolerance. I am so hopeful, and so eager to start the gluten...
  15. MsCurious
    Oh, and also, my doctor knew which tests he wanted to order, but didn't really seem to be up on the latest tests, and the sequence of how most celiac doctors test and diagnose. I found a video lecture (done by Dr Joseph Murray) from Mayo Clinic in Rochester, MN, which was directed to other doctors, and I forwarded it to my doctor. I hope he watched it. I...
  16. MsCurious
    Hi Dixiebell, Thanks for your reply. After reading about celiac disease I asked my doctor about it, and he said based on my symptoms "it is reasonable to test" for celiac disease, but I'm not sure what the results mean. The other results I've seen have had much lower numbers even in the normal range, so I don't know if this was a different set of tests...
  17. MsCurious
    Hi Scotty, Hope you, and Nancy and I all figure this out soon! And anyone else who is searching for answers. I'm wondering if you or anyone knows of an online food diary site that isn't public? I already poured out enough info to the world... I'm thinking a private diary would be good for me.. so when I mess up posting, everybody doesn't see it! I'll be...
  18. MsCurious
    I have so much to learn too, like how to not mess up when posting! Peek back at mine if you have time.
  19. MsCurious
    Hi Nancy, I'm still on number 8... after this post! LOL .. Lucky you! I think I accidently posted my story under your original post in the other thread. Sorry about that! I'm a NOOB on all fronts in here! Nice to meet you, and congrats on being FREE! LOL
  20. MsCurious
    Hi community, I'm new to all of this and trying to make sense of it... any help or thoughts would be appreciated. I have tried to figure out what these test results mean, and I'm waiting for HLA-DQ2 HLA-DQ8 results ... that should be back this week, but these mean nothing to me, can anyone explain? TISSUE TRANSGLUTAMINASE IGG 0.40 <0.90- Index...
  21. MsCurious
    moved to new topic - sorry
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.