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MsCurious

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Everything posted by MsCurious

  1. MsCurious
    Yep, what Mushroom said! If I were you... I'd go gluten free starting... RIGHT NOW!
  2. MsCurious
    Hi JustForJen... Don't know if you want my two cents or not...but here it is. I think its great that you're here trying to figure it all out, but Jen is the one who needs to log in here and really read, and learn, and whine and cry and laugh, and learn that it isn't punishment, its freedom! If/when she comes here... she will no longer be feeling sorry for...
  3. MsCurious
    Thanks so much ... all of you for your suggestions. Silly as it sounds ... EVERY tip and suggestion for palatable replacements is VERY MUCH appreciated! Very very helpful! It doesn't feel quite so ominous with choices... but when its all unknown and there are no choices... that can feel overwhelming. So THANK YOU!
  4. MsCurious
    Ooooh...thanks so much for the info! I had NO IDEA that was available! I'll give it a try! Thanks to you too salexander421.
  5. MsCurious
    Allergies tend to flare up readily after contact/consumption (usually immediately ...up to two hours after). Have you considered a wheat or yeast allergy or something like that? Seeing your allergist is a good start. Intolerances tend to act up anywhere from a few hours to a few days after consumption of the offending food. It does almost sound like you possibly...
  6. MsCurious
    I will be hanging around the "pre-diagnosis" forum for another month! Saw new GIJoe today, and he was SO much better. He actually listened, wrote things down, asked questions, told me of his concerns, and ordered some new lab tests and is going to do (8)biopsies mid April. Instructions were to stay on gluten ...and cut out the dairy completely (sheepish...
  7. MsCurious
    Kudos to you for getting your son into a Celiac Clinic! That is probably the best thing you can do for him. As you can see from my signature, I am also DQ2 positive, and had negative tTG and EMA. I'm still in the throws of finding a doctor who KNOWS about celiac disease and NCGS, which is harder than it would seem. Once you have acheived that, your son will...
  8. MsCurious

    I'M just curious :>)...how are you doing today??

  9. MsCurious
    Hey NancyL, How did you do with your gluten party? I'm fairly miserable today... just as anticipated.
  10. MsCurious
    Thanks everybody, for all your suggestions and personal experiences! That really helps me out in finding a Vitamin Supplement to replace Centrum. Thanks again!
  11. MsCurious
    Hi confusedandworried, I'm a little bit "in your boat" and its been FRUSTRATING and at the same time a little frightening to navigate this maze of medical brick walls, and in my case "idiocy"...to find a doctor that even remotely knows that celiac and NCGS (non-celiac gluten sensitivity) DO affect people other than children with bloated stomaches and diarrhea...
  12. MsCurious
    Me too love2travel.... better safe than sorry! Besides, the more calls we make, the more aware these companies are ...of our needs, and our numbers... so to that I say... INQUIRE ...INQUIRE... INQUIRE! There IS strength in numbers.
  13. MsCurious
    Its official.... Lifesavers Gummies Bunnies and Eggs out for Easter are Gluten FREE! Yummy little delights ...not too sweet ...not too tangy... Just right! And ... Ohhhhh soooo CUTE! Fun for "Gluten Free-ks" of all ages! ENJOY!
  14. MsCurious
    Congrats on having the biopsy hurdle behind you! And good luck with the results. Happy for you that you can go gluten-free again starting now!
  15. MsCurious
    Hi Mary, Wish I could give you an answer, but I have more questions than answers, at this point. How was the endo? Does it take long, does it hurt, or is it uncomfortable? Any after effects? Did they tell you how long until you will get the official report from the lab? I'm also curious to see what other people have experienced, so hopefully you'll get...
  16. MsCurious
    Well, NancyL... I joined you in glutening myself tonight.... with PIZZA! It was soooo good going down, after 3 days of totally gluten-free. After talking with my regular doctor yet again, I may do the biopsy, and didn't want to get too far into the gluten-free thing. I read your post and laughed! What are the odds we'd do that on the same night. Its been...
  17. MsCurious
    Well, the bottom line is, her answer to the question "Is Centrum Gluten Free"... was NO! They have no clue anymore than we do, because they have no control of the ingredients before it reaches them and she said they have MANY sources for ingredients (not always the same one for the same ingredient) and there is no way to track that at this point. The...
  18. MsCurious

    Thanks for double checking the centrum vitamins. I thought I read somewhere before that they couldn't guarantee they were gluten free and since you have to take them everyday, it is so important that they can say they 100% gluten free. Love your profile picture! :)

  19. MsCurious
    Hi Sylvia, Because I'm new to the world of gluten free, and trying not to make too many "mistakes" right out of the shute, I couldn't find anything on the bottle, so I called the customer help line... twice! LOL The first time the person, said I can't really say one way or the other, and that answer wasn't good enough for me. It sounded like she was...
  20. MsCurious
    You are a GEM! Thanks cyberprof!
  21. MsCurious
    Thanks for answering so quickly. I am really curious... just read a study where something like 177 people ALL diagnosed with postive celiac were given blood tests (EMA) of those 177 ... 22 had NEGATIVE results. They were ALL "older" and all had significantly more advanced celiac and more digestive symptoms than the others that tested positive. I just had...
  22. MsCurious
    When is your biopsy scheduled? How long till your challenge is done? Good luck to you!
  23. MsCurious
    Hey cyberprof, if you see this... may I ask you a few questions? Which blood tests did they do on you that were negative? I'm so curious, how long you think you might have had symptoms before you were diagnosed. Like you I have DQ2.5 marker and negative blood tests. Doctor suggested doing biopsy AFTER I try gluten-free for 6-8 weeks! OMG... I told him I...
  24. MsCurious
    I, probably like most of you, feel a huge difference when I don't take a daily multivitamin. I feel draggy, run down, no energy, etc. Its REALLY apparent if I forget to take it (which probably is because all my levels are low, but Dr didn't feel the need to run those tests other than Vitamin D)... Anyway, long story short... Centrum is a no go for gluten...
  25. MsCurious
    Great BIG "Group Hug" to all you wonderful Gluten Free-ks !!! Just when you THINK the roller coaster is slowing down so you can jump off... WHAM !!! Here comes another BIG OLE DROP! ... Then come the screams! LOL And you've heard me scream enough! But, I can't tell you how... well I guess you already know just from feeling the support yourselves...
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