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MsCurious

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Latest Celiac Disease News & Research:

Everything posted by MsCurious

  1. MsCurious
    LOL... Sorry for laughing but ... IMO the only money for research will come from gluten free food companies! The big pharmaceutical companies have zero interest in Gluten Intolerance and Celiac, because it is not treated with drugs, and people already know it can be successfully treated with diet. University research, and independent research hospitals...
  2. MsCurious
    Bleh... hiccup! Please removed if/when you see this, kind moderator. Sorry!
  3. MsCurious
    There are a few other things that "mimic" villous atrophy in the small intestines, and it could take an expert lab tech to tell the difference, but having said that... if you do have symptoms of Celiac, that could very well be what it is, without positive serology. Hopefully, you have a good doctor, and good lab that can make the distinction for you...
  4. MsCurious
    Can you post the genetic test results?
  5. MsCurious
    Nuttmegs17, So sorry to hear you're feeling so bad, and having such a rough time with doctors. Your frustration is echoed in so many posts on this forum, that I wish all doctors would just sit down and read through them for an hour... they would be FLABBERGASTED... and embarrassed and ashamed! Nobody should have to feel bad and worse until their lab tests...
  6. MsCurious
    Your question about your genetic testing is similar to one I just responded to yesterday in the "Celiac Disease - Pre-Diagnosis, Testing & Symptoms" forum ...the thread was "So Confused About Test". Rather than retype inserting your genetic info... take a look at that post. Your situation is a little different, in that you received HLA-DQB markers from...
  7. MsCurious
    Thanks! This put a BIG SMILE on my face! It's been YEARS since I've had ice cream!
  8. MsCurious
  9. MsCurious
    Coconut ice cream? And coconut coffee creamer? I've never heard of that...is there a specific brand that is exceptionally good? I've never tried the coconut milk either... how does it compare to Almond Milk? I like that, but then I love almonds. Thanks for the info!
  10. MsCurious
    I don't think it IgA and IgE affect each other either, but I'm not an expert. Open Original Shared Link There are five antibody isotypes known as IgA, IgD, IgE, IgG and IgM. IgA antibodies are present in tears, saliva, and mucus, as well as in secretions of the respiratory, reproductive, digestive, and urinary tracts. IgA functions to neutralize...
  11. MsCurious
    Thanks IGG for the positive thoughts and support... that means a lot to me... and it helps with the wait. I'm so glad to hear you're doing better and better!
  12. MsCurious
    I believe you are misinterpreting the post. The first two genetic sequences are the DQ2 and DQ8 markers that they look for when testing. They are listed for REFERENCE purposes only. (They listed those on my results as well, as a reference). The FINAL test results listed are the actual alleles found during testing. In this case those two alleles together...
  13. MsCurious
    Thank you its nice to know I can give back a little bit. Good luck with your son!
  14. MsCurious
    University of Maryland School of Medicine Researchers Identify Key Pathogenic Differences Between Celiac Disease & Gluten Sensitivity Thursday, March 10, 2011 Open Original Shared Link Dr. Alessio Fasano directs the Center for Celiac Rsearch. "Scientists at the University of Maryland School of Medicine’s Center for Celiac Research h...
  15. MsCurious
    Does he break out in the rash pretty easily from ingesting gluten? If it is dermatitis herpetiformis the skin next to the rash can be tested for antibodies and give you a celiac diagnosis. In his case this might be a lot shorter time period on gluten to get a diagnosis, than the 3 months it takes of ingesting gluten to do an intestinal biopsy. I don't have...
  16. MsCurious
    Just remember, you need to keep eating gluten until all of your celiac testing is complete. Good luck!
  17. MsCurious
    These tests are so confusing aren't they? I did a lot of research when I got my test results back. Keep in mind this is just what I "think" this means, from all the reading I have done. You have TWO HLA DQ markers, one from your mother, one from your father. Within each DQ marker there are two alleles. In your case they are DQA1*0201 and DQB1*0202...
  18. MsCurious
    You must be relieved to know you don't have Celiac! Good for you that you realize you have NCGS and will continue gluten free. That is exactly what I plan to do, regardless of my biopsy outcome. I will just be happy to know I don't have celiac, but having DQ2.5 marker and the symptoms I have, and knowing gluten-free makes me feel so much better, as soon as...
  19. MsCurious
    If you have postive blood tests for celiac, and your symptoms are relieved with gluten free diet, I would just go with that. If you want a more firm diagnosis (aside from that endo that costs way too much for something you already know works)... I would ask doctor to run a genetic test, to see if you have the celiac gene(s) just as confirmation that you are...
  20. MsCurious
    He really didn't say ... but he did run another blood test... SPEP (Serum protein electrophoresis)I think? My new GI doctor did see something else that prompted him to look at this and then order some other blood tests ...which I don't have done until the morning of my biopsies... so I'm just mystified and curious. I hate all this waiting! I guess I just...
  21. MsCurious
    Hi missj! As I was reading your post... I had to look again to make sure I didn't write it! LOL I went through the same thing! After ONE test (negative tTG) and him dismissing my concerns, I told my doctor I wanted the genetic test so that I could feel comfortable dismissing celiac as a possibility. If it was negative... fine, I'd look elsewhere...if it...
  22. MsCurious
    Hi All, I posted this before but didn't get any response, so I guess it confuses the rest of you just like it confuses me, but ... Can anyone give me thoughts on what would make this IGA level so elevated? IgA 615 Range: 40 - 375 mg/dL (seems elevated out of normal range to me? Any idea why?) IgG 1020 Range: 600 - 1600 mg/dL (seems mid...
  23. MsCurious
    Hi IGG, Nope, has nothing to do with the biopsy...its just making me sick! LOL Minor side effect. Between the lactose intolerance and gluten sensitivity... its just a lot to handle. Just need to get through the month and the minute the biopsy is over... regardless of the outcome... I'm going totally gluten-free, since I have a ton of symptoms, and DQ...
  24. MsCurious
    It seems you're aware that a positive genetic DQ2 or DQ8 simply either eliminates the probability or includes you in the pool of possibility for celiac disease. It basically does nothing for a diagnosis, although with symptoms, it is a pretty strong indicator of gluten intolerance of some sort. I was going to just go with that too, but after doing some reading...
  25. MsCurious

    ARCHIVED Dr Said Not To Eliminate Gluten

    MsCurious replied to kayc's topic in Doctors

    An innocent child is sick and can't defend herself in a world filled with ignorant, and selfish adults! That makes me upset and very sad for the child. Don't give up! It sounds like you're the only one looking out for her! Maybe your sister doesn't want to be bothered with a special diet. Maybe her husband has convinced her that its no big deal, but...
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