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MsCurious

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Everything posted by MsCurious

  1. MsCurious
    It looks like he's fine, but I'm not a doctor. Just ask your doc to confirm that he's a-okay. Another thing you can do, just for peace of mind, is do the genetic test. Less (just about zero) chance of him ever having celiac, if he's out of the genetic pool. He may develop gluten sensitivity, but at least you wouldn't have to worry about the celiac part...
  2. MsCurious
    I agree, Mushroom... if you have bad reaction to gluten, its toxic to you, whether the medical community has a "name" for it, and a test for the damage or not. If it does nasty things to you, chances are its not doing pretty things to your insides. Celiac positive people are fortunate in that they DO have an idea what happens to them when they eat gluten...
  3. MsCurious
    This is actually kind of a good option, if you had positive IgG I think you said? The genetic test would do one of two things, it would confirm that you have the "typical" genetic markers that are related to celiac, pretty much giving you a positive diagnosis along with the positive serology and how you're reacting to the challenge, or it would tell you you...
  4. MsCurious
    Glad to hear the rice pasta was good. I'm a little worried about the new taste of things to come! Monday is a big day for both of us...hope you have good news, goodnews! I'm going out of state for 3 weeks, about a week after my biopsy... sure hope I don't go through the irritability thing... that would not be fun, when I'm FINALLY visiting family 20...
  5. MsCurious
    You're very welcome... glad I could help.
  6. MsCurious
    Hi Kathryn, I posted a reply to your question last night, but I must have just hit the preview button, instead of the post button. I do know that Mayo Clinic, Dr Joseph A Murray, head of Celiac Research at Mayo suggests 4 weeks gluten challenge consuming the equivalent of 4 slices of wheat bread per day. If at four weeks, the test is still negative, he will...
  7. MsCurious
    Thanks a bunch goodnews. We're just about at the same point... I will be gluten-free on Monday... and yeah, I think its already starting to sink in... that bittersweet feeling. It's odd, how some days there's no doubt at all, and some days you just wonder... I guess its because it seems so odd that something that causes so much trouble can be fixed with...
  8. MsCurious
    LOL, Mushroom! After the day I've had... I really needed a good laugh, and this did the trick. Thanks for that!
  9. MsCurious
    Thanks so much Igg... its been a rough day. Yeah, we have been going through a lot together, haven't we? There are several of us who started this testing process about the same time... and it seems like such a long time ago. I'm so happy that I could make things even a little easier for you... not that any of this is easy by any stretch of the imagination...
  10. MsCurious
    Hi KathrynL, So sorry you have to face a gluten challenge. I know you can hear many different versions of what that entails, and even different doctors seem to give different answers, but this video clip is Dr Joseph A Murray, head of celiac research at Mayo Clinic, Rochester, MN. It's a bit technical and really directed toward doctors, but if you watch...
  11. MsCurious
    Hi everybody, I've been popping in every few days, keeping tabs on how everybody is doing with testing, etc... and trying to get through the waiting period. I'm starting to feel a little anxious, and scared about all the changes coming down the pike. Testing is on Monday, so just a couple more days of waiting, and then I will go gluten free. That...
  12. MsCurious
    Good for you nuttmegs17! So good to hear you are having better luck with doc now! Hope you feel all better really soon.
  13. MsCurious
    Sounds to me like you DO have gluten intolerance, at the least. Mostly the people here that have self diagnosed from what I can tell, tried and tried to get idiot doctors to take them seriously, or couldn't get the doctors to do tests, so they removed the gluten to see if that helped and it did. Some tried to go back on gluten to get tested, but couldn't...
  14. MsCurious
    I'm so happy for you that you have an answer... and a solution! That's wonderful... good luck with your new gluten free lifestyle.
  15. MsCurious
    Thanks Igg. It's been such a long haul for me, with this testing, and finding new doc, etc. First blood test was January 25, and I don't have my endo/biopsy until April 11. Today was an exceptionally bad day for me. One of those days... the intolerance is really rearing its ugly head in a big way. Some days are not so bad but we had pasta (intentionally...
  16. MsCurious
    Sorry for the delay in responding, Emsstacey. I haven't been on until now. I'm not sure if the DGP was widely available 2.5 years ago, but the name is deamidated gliadin peptides. I'm not sure what the AGA is. I hope you get it figured out.
  17. MsCurious
    Hi goodnews, I'm no expert on the gallbladder topic, since I've not dealt with it myself, but I have seen many many posts on here relating to gallbladder, so I have to think it seems VERY connected to celiac disease. I'm curious about it too, because my GGrandmother, GAunt, Grandmother, Mom, and niece have all had gallbladders removed, and I do believe I...
  18. MsCurious
    That IS good news, goodnews! Great to hear you're getting so much done...and you'll have answers in no time. My Endo isn't until 2 more weeks, but I'm just trying to prepare myself so nothing is unknown. I'd rather know what they're going to do before I get there. I've done 3-4 days gluten free... just a couple of 'mini" tests here and there and I noticed...
  19. MsCurious
    That kind of is what it sounds like he might have meant, but I don't really know, because of how he worded things. Best things to do is to pin him down. Ask him if he thinks you may have a wheat allergy, and if so... test for it. OR, did he mean you might have gluten intolerance (which is not wheat allergy in the conventional sense). Make him tell you what...
  20. MsCurious
    After I eat something, I always feel like I have a brick in my stomach... not rock, but a brick with sharp/rough edges. I don't know if that's something others experience...and I wonder if maybe there's something entirely different wrong with me, and not celiac disease. Although, then I think of all the other things and the doubt subsides a little. But...
  21. MsCurious
    That's great news JessicaNYC! I know there are people out there who have never dealt with all these crazy symptoms lots of us have had, and they would think it "odd" for someone to say ... hey you have a disease... great news! LOL BUT... you know what I mean. It's just a relief to know what it is, and that you can control it! That's a whole lot better than...
  22. MsCurious
    OMG! I hope you fired that one fast... good grief! The DGP is the one I can't seem to get them to run. I believe it would be helpful.
  23. MsCurious
    Awwww.. Irish, I get sad everytime I hear bits of your story. I'm so sorry you had to have so many bad experiences. At least this one seems to be more limited. I'm not letting it go on... just nipping it in the bud. It really helps to have so many nice people giving me moral support to do that, though. I don't know if I would have been knowledgable enough...
  24. MsCurious
    I AGREE! That's just what I did with "GI Jerk" ... walked out, came home and cancelled my biopsy with him. I had to wait about 6 weeks extra...but I'd rather have a good doctor than a fast jerk working on me.
  25. MsCurious
    You are so right, Mushroom! Thank you so much for your reply, the support is very much appreciated. Sometimes I feel like my family is just tired of hearing about it or thinking about it... I think they don't want to deal with what is probably coming down the pike for some of them as well, and it will impact their families too... so based on that... I'm not...
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