MsCurious
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Latest Celiac Disease News & Research:
Everything posted by MsCurious
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Hey Raven, What test is this specifically? Gluten Sensitivity Gene Test Aug 2007 I saw that on your sig and wondered... Thank ya! -
UPDATE: Reg doc just called and said he scheduled a phone appointment for me with an allergist!? Hmmmm... I did speak to him again about the IgA deficiency possibility and the alternative tTG for people that have that. He said he would do more research and if I couldn't get the tests I want with allergist... then he would order them. I'm thinking the...
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Okay, I need more input from the "people in the know"! After all the tears, then anger, and frustration after my GI episode yesterday, I decided to roll up my sleeves and do what they won't! Step one: the facts: 1. I know my symptoms and they point to celiac disease... NOT IBS! 2. I have a postive genetic marker for celiac disease DQ2/2.5 3. tTG IgA...
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Now THAT is encouraging! Thanks for sharing that shopgirl!
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Thanks, so much Mushroom for your support and sound advice. I was thinking about doing just that! I wrote a post to you...the phone was ringing... carpet cleaner came, and husband called... when I got back to the screen ... I couldn't tell if I posted it or not! Hoping it shows up on page two! LOL I have more info from the conversation with my regular...
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Yeah, he was beyond CLUELESS! Thanks for words of support!
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Thanks for the support and helpful thoughts, cassP.
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The bottom of the class was my exact thoughts...and I told my husband that very thing. He thinks I should find a different doctor, and so do I!
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Today I got a call ... there was a cancellation... did I want to be seen? YES! So I went to this GI I had never met or heard of... within our HMO group. He was condescending, pompous, egomaniacal, insensitive, and obstinate! He talked AT ME ... not with me, and as I told him my history, and listed my symptoms and family history, etc. He said, you don't...
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Hi Mushroom, You are so very welcome! It makes me happy that I could actually find something useful for you and others. Everyone has been so helpful to me! It's nice to be able to contribute in some small positive way.
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Thanks Jenn!
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You know, its probably a very typical story. One of connecting the dots. I feel kind of like an idiot that I just accepted feeling crappy for decades, but I attributed all the chronic digestive stuff to "being like my dad" ... who I think also may have celiac disease or NCGS. And the fatigue and headaches etc, I attributed to being a single mom, working full...
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Yep... I'd say your family carries genes that fall into the group that does have celiac disease but doesn't fall in the "typical 98%" ..but I think, like you... they isolated that gene in so many people of european ancestry.. specifically UK, Sweden Ireland...and those areas... so that became their focus. I think there are a LOT of genetic links that they...
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ARCHIVED First Appt With The Gi...
MsCurious replied to Hammod's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ugh! Sorry you had to have such a bad experience with your GI! I go in for my first consultation with my new GI on the first, and I'm HOPING but not hopful of having a better experience than that. Its just a crime that they don't believe or listen to patients. I think though, that people who have never suffered with chronic symptoms like these... that they... -
Hi Marz, Thanks so much for sharing your info... that gives me hope! I'm still hangin! I just realized... I need to learn how to just quote parts of posts! Where are the lessons for that?
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Hi Igg... so nice to meet you! Thanks for your reply... its nice to talk with someone in the same shoes. I just got off the phone with GI Department about an hour ago... FINALLY! They called and scheduled a consultation with GI doctor. My regular doctor referred me with a very strange note. He didn't give me the results of my genetic test, but said...
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ARCHIVED Has Anyone Had Tests That Tell You What Foods You're Intolerant To?
MsCurious replied to MsCurious's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks so much for your response burdee! Did your doctor order all of the tests, or did you do them on your own? Thanks again! -
Thank you, Raven You continue to be such a supportive and helpful resource on here, and for that I thank you so much.
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ARCHIVED Starting The Diet...need A Little Help
MsCurious replied to zebaldwin's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
OMG.... I never thought of that! But I have the same thing with makeup, and could never figure out why it would make my eyes water, etc. That could be it! -
I have heard about tests that tell you what foods you have a high intolerance to, and those that don't bother you. Ultimately, that is the information I really am interested in. I don't really care what label is stuck on it or me, just want to feel better. This seems like an invaluable tool! Has anyone had experience with this? Know what the tests are...
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ARCHIVED Mucus In Stool?
MsCurious replied to salexander421's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the link, Alex. It was very interesting. The more knowledge the better! And ditto on the thread topic. Seems to be common. -
Been feeling lousy lately as usual but today, sicker than a dog. I've had a headache for 5 going on 6 days with no break, and been extremely tired. Low grade sore throat which I have more often than not and trying to figure out what triggered such a terrible day today. Tummy ache, huge bloating (looks like 6 months pregnant! BLAH!).... cramping, nausea "Big...
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That was as of April 2010. Mayo is pretty in-touch with current studies and research, as you can see if you bother to read about current research, they collaborate with doctors in UK, Sweden, and many other places. If there is something more current, my apologies for not knowing, but I, like many others here, are still searching for answers and educating...
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Hi everybody, I'm still here... still playing the waiting game, but things are progressing forward. I went through (and probably still a little bit) the roller coaster of emotions, fears, self doubt, etc. But I've been doing some really heavy duty research, as I'm sure most of you have and I've decided on my plan of attack. 1. No more self doubt...
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I reposted the link...and it works for me. Hopefully it will work for everybody that's interested.
