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Kimmik95

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kimmik95

  1. Lots of people have a severe gluten intolerance without having Celiac Disease. If the gluten-free diet works for him - do it! Good for you for following up and following your instincts. Be and advocate for your child and you will always do what's right!
  2. Good idea! We really struggle with this. Chris also has ADHD, so his meds cause an appetite suppressent through the day - which makes preparing a lunch he will eat even more challenging! We do: meat rollups Pudding cup pear cup orange drink/gatorade or: nacho lunchable pudding cup pear cup drink or: homemade chef salad ranch dressing...
  3. Chris lucked out this year that his teacher's husband has Celiac Disease, so she was very well aware and understanding of his situations. I'm guessing not all teachers are as understanding. I made some homemade cupcakes, frosted them, and put them in the freezer. I take in 2-3 at a time for his teacher to keep in the faculty lounge for birthday parties...
  4. There are some pretty decent breads available (UDI's, I think, is by far the best). I would second the kitchen aid mixer over a breadmaker, honestly, I use my mixer constantly and if I want to make bread, I mix it in the mixer and then cook it in a bread pan. I would try out the gluten-free breads first to see if there are any your daughter likes before...
  5. I would certainly keep an eye on it. You could try working on elimination to give yourself an idea. If you are nursing, you would have to eliminate too. Dairy is a very common thing for babies to have an issue with too.
  6. I don't, but I've heard it can do great things. I have a friend who tried it, but she didn't see any change. I'm glad it worked for your daughter.
  7. Thanks for the info. I'm a very Type A personality - I think I had all the reasearch and talking to people done within about a week of receiving the DS diagnosis at 16 weeks! I have 2 other children, one of which I pumped and fed for 5 months and the other who nursed for about a year, so the process of breastfeeding isn't a question. I have my plans in...
  8. I'll definitely put more thought into the breastmilk issue. I dread the idea of going gluten free. Thanks. They should only wisk her away if she's having some issues because of the growth restriction. If the doctors feel that it's necessary to take her directly to the NICU, I won't argue. I trust my doctors and her initial health is the most important...
  9. Ugh! It depends. You could see initial reactions within a few hours, but may see reactions develop over the next day or so. My son was given gluten (lots of it) at a daycamp over Christmas break and I noticed extreme irritability immediately upon picking him up. Within about a day he developed a tic (which laster the better part of 6 weeks). He never...
  10. Thanks for the reply. That was actually from a study in 1998 on 6 mothers. There's been lots of contradictory stuff since then. I'm planning on talking to a lactation consultant here in the next week or so, so I'll see if she has any info that's recent for me.
  11. Chris's GI suggested using pediasure (not sure if that contains dairy or not). I was thinking you could also get Ensure in a non-dairy form. Ensure is 250 calories and we also give Chris whole milk. He drinks a milkshake every night that I have up to about 800 calories too We use whole milk, bananas, ice cream, and chocolate syrup. The calories are...
  12. Some people react worse than others to consuming gluten, but anyone who has Celiac Disease and consumes gluten will kick off the autoimmune response and do damage internally even if they don't feel it. My son had very mild reactions to gluten before he was diagnosed with celiac disease, but he was given gluten at a daycamp in December and developed a tic...
  13. I'm big into whole, organic foods, so it's nice to know we have lots of choices in that department! We don't totally eat gluten-free as a family, but we're probably 90%. My daughter (she's 3) is a really picky eater and alot of what she likes is gluten based, so I'm not going to force her to go gluten-free. She does like alot of Christopher's gluten-free...
  14. From what I understand, it can take up to 2 years to totally heal, but 6 months is a reasonable time to hope for. My son (he's almost 7) was diagnosed the end of November through a biopsy and he's be gluten-free since that point. He also has ADHD, so while his eating is more normal (not the I'm starving to death binges of before), he's now feeling the affects...
  15. My son is 6 (will be 7 the end of March) and was just diagnosed in November. The best way to start is just go cold turkey. It's alot to take on and can be overwhelming at first, but we caught on quickly and now it's really not that hard, only 3 months later. The biggest problem with having 1 person in a house diagnosed is that you have to decide how gluten...
  16. Your son sounds like he might have ADHD, so let me tell you about my son. My son was diagnosed with ADHD when he was 5. His big thing has always been impulse control. He'll be 7 at the end of March. He's on ADHD medication that very much controls his impulsiveness. One of the concerns his doctor has always had is a total lack of weight gain for the...
  17. THanks for your resonse. I agree with you that the medical community doesn't really know. I've read stuff supporting and against about every angle! I wanted some real people to tell me what they've done, so thanks! When Chris' doctor suggested the gluten-free for Phoebe, I thought it was a descent idea. I mean, why deal with possible gluten-free issues...
  18. My ideal is to breastfeed and I have all my resources lined up for that. My son refused to nurse as a baby and I had very little support for the nursing, so I pumped and fed for about 5 months and I absolutely refuse to do that again. I will pump for a bit to help Phoebe start nursing if needed, but it won't go 5 months. My daughter nursed like a champ...
  19. Thanks for the info. I'm going to try to breastfeed (cheaper, easier, etc), but there are alot of unknowns, so we'll see what happens. I have one child who nursed well and one who refused, so it'll be interesting to see where this one stands.
  20. My son was diagnosed with celiac disease in November 2010. He went immediately gluten-free, and I would say out house in general is about 90% gluten-free. I have a 3 year old daughter who still eats some gluten and my husband and I eat some gluten. I am currently pregnant with a daughter (32 weeks) who has Down Syndrome. From what I understand, she has...
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