JonnyD

Posting a follow-up on this. I haven't been on the site for a while. I recently went dairy free (in addition to gluten free for celiac) and had an almost immediate positive response in my EoE symptoms. My doctor gave me a recent study on EoE and the two leading allergens by far were identified as wheat and dairy. I'd been suspicious of other allegens...

I was diagnosed celiac almost 2 years ago now. I recently started generic zoloft (sertraline) at the 50mg level. It's been a couple months and I plan to give it at least a year before deciding to keep it or go off. I'd caution you about making too many changes at once. When you do that, you don't know what's causing the effect. Is a bad day from a...

Not sure where you live but Cincinati Children's has a specialty clinic set up for Eosinophilic Disorders and I think they're one of the few that offers this. You can find out more with a quick internet search. My experience has been that GI and Allergy doctors tend to know some info about eosinophilic disorders but not a complete picture. At least I haven...

Momof2Boyz: Sorry, I don't have the eosinophil count. I need to request a copy of my records because I've had that question before. Sorry. I saw images from my scope though and it was textbook EE. 1974girl: I didn't have any noticable symptoms of EE other than occasional food getting caught in my esophagus (dysphagia). I started with the skin test...

I've been diagnosed with Celiac and EE too. From what I read, it's more common in boys than girls. In a first attempt to solve the EE, I tried swallowing Flovent for 12 weeks and had some success with it but the symptoms came back almost immediately after stopping the med. But, I'd rather not take a med if I don't have to. EE is essentially an allergy...

Judy Splawski is really good. We used to take my oldest daughter to her and were always happy. She's very nice too. I too stay away from the Cleveland Clinic. JonnyD Disclaimer: Not sure if it matters but my oldest did not have celiac but we saw Dr Splawski for other GI issues.

I'd suggest counting calories and/or reducing what you are eating. I've been pretty active for a long time and only recently started dropping weight but it's correlated with fewer calories. Be real careful of portion size and how much you are eating in the process. Even if you are eating the 'right stuff', you won't start dropping if you're consuming too...

I was diagnosed at about the same time and have been gluten free since. I was also diagnosed with Eosinophilic Esophagitis. From what I understand, multiple auto-immune disorders are common. I recently started a food journal to try to figure things out with my diet. It's a bit of a pain but worth it. I found it best to keep a pretty simple diet in the...

Completely your call. If it were me, I'd stay on gluten for now and have the biopsy. Knowledge is power. Plus, positive bloodwork with a positive biopsy make the diet easier to stick to.

We have a shared house. Our house is full of gluten products. Most dinners are gluten free. We have shared cookware (with some dedicated gluten-free ones too) and it hasn't been a problem. I must react to a higher level of CC. But, I do wash my hands all the time and my wife is good when gluten-free preparing meals. A total gluten-free house just wouldn...

I was diagnosed with Celiac as well as Eosinophlic Esophagitis (EE). I've been gluten free for almost a year now. But, I've often experienced the throat clogging from the EE. For EE, your esophagus reacts to an allergen in your diet and flares up for 12 days. I've recently started a food journal to see if I can narrow down what's bothering me. If you...

Thanks for all the input. I'm formulating a diet right now and am hopeful that I can identify my other food issues.

Hi, All, I hope you can help. I've been gluten free for almost a year but still suffer from an allergy to something(or multiple things?) in my diet. I'm going to have to do an elimination diet soon and am hoping for some advice. Just so you know, I've been allergy tested but those results all came back negative. A strict elimination diet is the only...

Thanks. I'm going to have to do the Elimination diet. My food allery tests also came back negative across the board but I've been still having problems. How did you undertake the elimination diet for your daughter? What foods did you start with and how did you re-introduce other foods? I've seen conflicting information on how to follow this. Thanks...

I was diagnosed celiac via bloodtest. During my scope, I found out that I also have Eosinophilic Esophagitis (EE), which is another auto-immune disorder affecting the esophagus. I've read a lot about it and even tried medication with some marginal success. My throat is often 'tingly' after I eat and I've occasionally gotten food caught in it when it's...