Jump to content

hockeymomofceliacchild

Advanced Members
 View Profile  See their activity

  • Posts

    69

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by hockeymomofceliacchild

  1. hockeymomofceliacchild
    I agree with this my son was recently diagnosed and we were told because his levels were really high he most likely had celiac but the scope would confirm it. As the pediatrician suggested this is a life long thing so make sure. The fact that we needed complete comfirmation so we could claim the added expense for his food was a factor too. I also have...
  2. hockeymomofceliacchild
    LOL O.K now you are dating your self and me, You lost me after "lost boys" that I remember! lol but as for the rest ....I was barely a twinkle in my daddies eye
  3. hockeymomofceliacchild
    10 years!!!! OMG (that is all I have to say. lol)
  4. hockeymomofceliacchild
    LOL Thanks, I actually understood your post but I was confused by Lisas reply to my post I think being on here when I am dead tired could be a factor in this case. lol I didn't read anything into her comment I just didn't understand anything in her comment! LOL Mommy brain and lack of sleep I guess.
  5. hockeymomofceliacchild
    Sorry, not much help. My son went to a pediatric GI in Toronto Dr. Kovac and she was awesome. When my husband had his colonoscopy at the Barrie Endoscopy clinic, the docotor was very knowledgable, I thought. If our blood work comes back positive we will be going there for a scope. I don't have the paperwork near me so I don't know what his name is off hand...
  6. hockeymomofceliacchild
    Aha Buffy the vampire slayer! lol Haven't seen that it a LONG time. lol I have to confess I haven't read the books, been reading Percy Jackson and the olympians with my son. I took my niece to see Twilight and thought it was o.k. but when I saw the second one I was hooked I loved it. Bought the third one for three of my nieces to insure I could watch...
  7. hockeymomofceliacchild
    So are you saying because he drank for so many years he could have the testing done for celiac and have a false positive? When you say advanced testing what does that intail? My brother only had a skin biopsy because he has DH. My son had a blood test and they tested three different antibodies his results were 80's/90's/ and over 100. Then he had a scope...
  8. hockeymomofceliacchild
    Very interesting, my dad is an alcholic or should I say recovering alcholic I never dreamed he could do it. my brother and my son both have celiac and I think my dad is contemplating getting checked too he says he has always had similar issues as my son when he was younger. We are all getting checked it would be interesting if my mom or dad have it.
  9. hockeymomofceliacchild
    I'm glad this made your day As a mom just learning all about allergys such as this every little tiny bit of information no matter how insignificant you may think it is, is like a huge "WOW" glad I learned that. I instantly phoned my mom in my excitement to tell her what I learned and was so happy I could possibly shorten the length of time my son would have...
  10. hockeymomofceliacchild
    You have to have him tested. If it comes back negative then fine, it will rule it out and you can look for another reason for it. My son is six years old and I insisted he be tested, my doctor said the rash was just echema and highly unlikely to be celiac due to the fact that he didn't show signs of gastral issues. If my brother didnt have it I would probably...
  11. hockeymomofceliacchild
    Again Peter this is good to know I was told that anything that said spices was potentially not safe. I've been researching specific brands to find out if they are gluten free. Knowing this makes things much more simple.
  12. hockeymomofceliacchild
    This is really interesting. With going gluten free we have been searching for foods he could eat and seem to be doing the nachos and cheese thing a lot, popcorn you name it, so had my brother. lol Not realizing the salt was flaring their dh. Interesting about the milk here in Canada. I took my whole familiy of regular milk about two years ago. It costs...
  13. hockeymomofceliacchild
    I would say that was very well said in fact Thank you so much for taking the time to explain it to me! This and all the other comments help alot thanks everyone. So if I can ask another stupid question "what foods have iodine? Other than iodized salt ,fish/ seafood as you suggested and milk products as the form of Carageenan? Thanks again
  14. hockeymomofceliacchild
    Thanks again Peter lol Glad to hear it is marked on the menu this will make it way easier. Boston Pizza is one of my sons favorite restaurant he actually loves the chicken pecan salad, we are just gonna have to get that one with out the crispy chicken. lol
  15. hockeymomofceliacchild
    Cheating is a personal choice those with serious and very uncomfortable symptoms probably wouldn't even dream of it. My brother was diagnosed about 10 years ago he wouldn't dream of cheating his DH (skin rash) kicks in. My son was just diagnosed and I hope to get him gluten free as soon as I can (need to learn where all it is hiding first). As for myself...
  16. hockeymomofceliacchild
    Thanks Peter for the advise
  17. hockeymomofceliacchild
    Thanks for posting this I'm desperately searching for restaurants that are here in Ont. I had heard that boston pizza had gluten free and I knew you had to let them know it was due to celiac but I guess I would have thought the toppings they would offer would have been gluten free too. And we would have ordered the meat as my son only likes meat on his pizza...
  18. hockeymomofceliacchild
    My son was recently diagnosed with celiac. We have been going gluten free at home but we are a family who eats out alot and especially when we are away at the arena for hockey games. But we have been avoiding eating out because it is too overwhelming just yet. But we are heading to Hamilton for a hockey tournament during March break and I'm a little nervous...
  19. hockeymomofceliacchild
    My son too was just diagnosed with celiac he has a rash all over himself I assume he has DH like his uncle. He is six years old and I have been doing A LOT of research and love this site. He was told at the dermitoligist that his rash was from echema even though he has celiac because his rash was not in all the "typical" areas. (note today I noticed...
  20. hockeymomofceliacchild
    I keep reading discussions about iodine and DH I am not sure of the connection between the two. My son has celiac and a rash (assuming Dh as uncle has it too) but should I eliminate iodine too? and why? Thanks for the help we are so new to this and so much to learn I love this site and all the questions and responces not enough time in the day to read them...
  21. hockeymomofceliacchild
    I'm glad you posted this my son is only gluten free for three weeks and his rash is getting worse instead of better. But we did the gluten overload before his tests. Does it take a while before it all gets out of his system? I didn't realize how sensitive DH was and how little it takes to flare it up, so I guess because we are just learning it will take us...
  22. hockeymomofceliacchild
    I have to add- I was watching my son get undressed for hockey and what should I see but a rash on his lower back and shoulder blades....do you think the doctor will still think it is just echema? lol
  23. hockeymomofceliacchild
    Thank you everyone for your response, I am glad I followed my instinct and had him tested I told my husband it would be the only time I wanted to be wrong about something! lol I had a feeling there would be other people out there with Non-typical areas with DH. We will still treat his areas like echema just in case but I will not be having a follow...
  24. hockeymomofceliacchild
    My six year old son has recentely been diagnosed with celiac. We kept thinking his rash was from other things over the year but I had an A-ha moment and insisted he be tested. My doctor was quite certain it was echema because he had no gastral issues to go along with the ichy rash. (later realizing bulky stools is a sign and many other symptoms that go along...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.