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thegreatkatsby

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    Holyoke, MA

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  • DandelionH

    DandelionH

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About Me

Diagnosed in January 2011 after "migraine" symptoms reached a breaking point.

tTG >100

Gliadin IgA 73.3

Gliadin IgG 321.6

  1. It's definitely the coffee for me... decaf or not. The only kinds of coffee I can drink now and then are the fluffy ones with lots of milk/cream... and they have to be espresso drinks, not drip brewed. I don't know why the espresso is usually ok when the regular kind of coffee isn't... maybe it's the way it's extracted? Perhaps the high pressure has some...
  2. Thanks! We had to read it in high school, many moons ago, and one of my classmates nicknamed me. :)

  3. Clever name!!:>)--The Great Gatsby is one of my favorite novels.:>)

  4. Sort of... once you finally figure out what all the problems are/were.
  5. Something I just learned today that made me think of this topic again... apparently there is a new test out from Cyrex Labs that looks for cross-reactive foods in celiac and gluten intolerance people (in cross-reactivity the body mistakes another food for gluten and reacts accordingly.). Coffee is one of the top offenders for this. I first read about it...
  6. I stopped being able to drink regular coffee years ago... way before I was diagnosed as a celiac in January of this year. I don't know why I can't tolerate it, but it is upsetting. For some reason though, I can usually tolerate coffee drinks made with a lot of milk (i.e. lattes, frappacinos, etc). I don't know if the milk helps coat the stomach, or prevent...
  7. I'm glad someone brought this topic up again. I'm desperately in need to feedback and advice. I was diagnosed on January 25th of this year, and have tried to remain gluten-free since then. With the exception of one major screw-up (I didn't realize tums had gluten in them and was taking them for several days about two weeks ago before I realized they were...
  8. I don't know how much these symptoms are related to celiac or not--but after an intense workout (i.e. more than just a walk around the block or 30 minutes on the elliptical) I have noticed the following things: my whole body feels like it's swelling -- including my legs and feet (which puff up), and my abdomen feels uncomfortably swollen lack of flexibility...
  9. I went to Borders recently and was actually impressed that they had about 20+ gluten-free cookbooks in-stock in the store (they were in the health/medical section though--NOT the cookbooks section).
  10. eatmeat4good, you have described the way I have felt off and on for more than 10 years. Sometimes I feel like I'm "inside my head"... like I'm not really there... like I"m watching a movie of my life, or that I'm sitting in a seat in my head while things just happen and I simultaneously feel like I'm there and not. I've tried to describe this to people...
  11. I'm confused about the weight gain, because I'm significantly overweight and I always thought there was something fishy about it (because even though I don't exercise regularly, i'm a very "on the go" type and don't particularly binge eat or anything that would explain rapid weight gain--plus, after 3.5 years of skating 2-3 times a week for roller derby and...
  12. I think the heightened sense of smell is a symptom of, or a form of, a migraine. The worse my migraine symptoms get, the worse my sensitivity to everything gets... but I've dealt with the light/noise sensitivities for so long that I've adapted to dealing with them. Although I have an above-average sense of smell on a GOOD day... the extreme heightened sense...
  13. thegreatkatsby

    ARCHIVED Eggs

    In my case, I'm eating an omelet ordered off a gluten-free menu in a restaurant that is conscious about food allergies.
  14. I think it's interesting you say this--because I have suspicions about a potential link being glutened and weight gain. I know part of it is the extreme bloat and water retention... and then the lethargy following it (i.e. not moving enough)... but then maybe there's a metabolic reaction as well that slows down the digestive system in order to hold onto calories...
  15. I can tell you my diagnosis came as a surprise, because one of my closest friends is gluten intolerant and my symptoms have been so different! The manifestation that resulted in diagnosis was an extremely heightened sense of smell. It was so extreme that I could smell things that no one should have to smell (I'll leave it at that), as well as grossly exaggerated...
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