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gailc

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Latest Celiac Disease News & Research:

Everything posted by gailc

  1. gailc
    Negative biopsies-- what if you had allergy skin tests all using distilled water? What about a glucose tolerance test if you didn't drink the little bottle of syrup? I was not consuming gluten but they did the tests anyway. Why are doctors so adverse to accept that a person could be Celiac and still test negative? gailc --about 40 symptoms went...
  2. gailc
    is it possible I have become terribly sensitive to gluten since being gluten free for 2 months? --------- YES!! I was gluten free for two months except for some salad dressing which gave me cramps--a little soy sauce. Then I decided to eat gluten for blood tests and biopsies. 1/4 of a teaspoon of a cookie threw me into a bad allergic reaction...
  3. gailc
    I live a few feet from Seal Beach and I have never spoken with a person who is Celiac or gluten intolerant.
  4. gailc
    Same for me HOORAY, except when I get dosed. I used to wake up more tired than when i went to bed, then as the day went on I'd feel better then tired around 8 and second wind around 9 then stay up until about 3. Now i get tired around bed time and then REALLY tired and fall asleep right away. SWometimes I get tired earlier wake up about 7 hours later to...
  5. gailc
    Colonoscopy 3 days ago. I just did the ducolax and miralax prep a few days ago. Essentially 21 doses of laxative. this was the alternative to salt. If there was salt in either I could not taste it. Miralax in Gator ade, tasted like jello. I tasted Miralax powder and there was no taste. Ducolax was a coated pill. I weigh the same now as before so...
  6. gailc
    Open Original Shared Link La Victoria sauces each is listed at this link most are gluten free, I just noticed on a recent purchase it says on the bottle
  7. gailc
    I tried for two weeks to eat gluten for the tests and gave up. Mostly mental, I could deal with the symptoms coming back, but mentally I could not cope with the damage I was doing to my body. "FIRST, DO NO HARM" came to mind and I asked through a nurse if a gi doctor would convince me to continue eating gluten for the tests, and convince me it would...
  8. gailc
    " In other words about 30% of people with active celiac disease test negative no matter how much gltuen they ingest. " ------------------------ I certainly believe you but I am going back to the doctor in a few days and I want to ask you where you found the 30% number. Do you have a reference?Since I wasn't allowed to speak with a doctor only a nurse...
  9. gailc
  10. gailc
    --------------------------------- OK that's it!! I've been dosed. I though I had been but couldn't figure what did it. And dosed for about 5 days straight with Farmer John's bacon. I'm going for my colonoscopy finally a week from tomorrow, my driver gets all my bacon. I gave her a big box of food yesterday because I went through my spice shelf. Even...
  11. gailc
    My choking cleared up- on the diet, came back when off the diet, has now gone away on the diet. I'm now waiting to see if the ridges on my fingernails go away. Maybe 6 months to see?
  12. gailc
    > I used to have bruises all over my hands and arms, but no longer. .. I >used to have really bad post-nasal drip and that has improved >dramatically. Hi, I had the bruises too, mostly legs, they went away on the diet, came bach when went off the diet, since back on the diet they are growing fainter. proof enough for me. runny nose almost...
  13. gailc
    <Gail, have you ever tried eating organic grass-fed beef? Hi, I gave it up the second time because the cramps made me want to shoot myself. Also at the same time we had that Mad Cow scare, and I just said"that's it". I had given up hamburger several years before that. Hamburgers were the first kind of beef to bother me. The problem with beef...
  14. gailc

    ARCHIVED Hay Fever Poll

    gailc replied to SoyBoy's topic in Coping with Celiac Disease

    I forgot to say, my allergies would turn into raging sinus infections, colds, pleuresy, bronchitis(usually) and you name it. gail
  15. gailc

    ARCHIVED Hay Fever Poll

    gailc replied to SoyBoy's topic in Coping with Celiac Disease

    I had no allergies in San Francisco. I moved away then 3 years later I had very severe allergies in spring and summer until I moved again 200 miles away and they went away. After 3 years there the allergies came back. I moved again and had allergies after a few years. Then they mysteriously went away. Then they came back in the WINTER. Then those went...
  16. gailc
    I hope you are still watching. Would like to see your update on this matter. I had this every time for a year or so, cramps and sharp pain, burning afterwards. It went away in a week when I went gluten-free. Maybe you are missing a hidden gluten. I just found your post by googling to see if anyone else had it. gail
  17. gailc
    Ditto, Long Beach Mostly on how to deal with doctors and nurse practioners who only are interested in frequency of diarrea when you told themn over and over you don't have diarrea. Would be nice to sample recipes. Who wants a whole tray of an awful recipe? Nice to sample and then choose. gailc
  18. gailc
  19. gailc
    Oh yeah, I forgot to mention I am on gluten for the biopsy but I cannot do it. I'll go off gluten again tomorrow and move up the date for the colonoscopy and endoscopy and probably blow off the biopsy. After reading the latest book it makes no difference in TREATMENT celiac and non-celiac. I did verify the immunization I got in December was for the correct...
  20. gailc
    Please don't diminish ALL self-diagnosed people. I have not been diagnosed yet, results of the blood test should come in by Monday I imagine.The test already in show some anemia. I AM self diagnosed as at least gluten intolerant. and diagnosed 'allergic' to wheat 50 years ago by an allergy doctor who had me do nothing about it. I never knew I had any...
  21. gailc
    One more thing. I read in the paper on Wednesday a company was selling gluten free bread, but it wasn't. He got 11 years in the slammer for fraud.
  22. gailc
    I didn't say it outright so I'll say it now. I should have just taken your advice and not eat gluten, no little beer drinking emoticons or I would add one here for you (non-gluten beer that is). Want to read something interesting?? google 'celiac kaiser' and see mistreatment of patients.
  23. gailc
    Hi, I'm back. well about 6 weeks into being gluten free (actually quite easy for me) and a restaurant slipped some soy sauce into my salad dressing. I got to the bottom of the bowl and noticed UH OH dressing kinda tan. cramps before leaving the parking lot. Good I guess that my body tells me if I have eaten gluten. Then 2 1/2 weeks continuing...
  24. gailc
    I'm thinking you are right but I would still like to know if cancer screenings should be stepped up. I hate being knocked out anymore than necessary. gailc.
  25. gailc
    I don't care what label you put on what I have, I just would never go back to eating gluten to find out whether or not there was a label, because it is possible that I would not get a label after all that I agree with that, but if Celiac the incidence of colon cancer is so high 100x that I would want to have a colonoscopy more often. With celiacs is...
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