Lucydesi

Fully agree with what people have said. Hope you feel better. I diagnosed myself with Celiac disease (which doctors just love )because none of the local doctors where I live even considered it. I had to keep pushing to get referred to great GI specialist who believed me and diagnosed me. I think ER docs for the most part are great, but really want to...

Sometimes it seems like all I have the energy for is work. I would like to do more but my job is pretty emotionally demanding so it seems like I don't have much energy for anything else. I do fun things on the weekends sometimes, but wish I could swing more of a social life. I wonder if anyone else struggles with the demands of work and energy levels....

We all do it but it will become more of a habit to read labels. I really like Align - the probiotic from Proctor and Gamble. You can get it any where but it is expensive. I don't give blood any more although I would like to. It just makes me too tired. Don't induce vomiting . . . you will just have to gut it out if you will excuse the pun. Really try...

If you need a great gastroenterologist (sp), Dr. Gregory Sayuk in St. Louis is the best. He believed that there was something wrong and diagnosed me.

I can certainly relate. At lunch when I am eating something "weird" or not having cake for a birthday party, I just try to keep it simple and say "oh, I cannot eat wheat." Sometimes people want more info, but usually I get the look like that says I must be exaggerating. I remember I was that way when a friend of mine got diagnosed many years ago. I didn...

Wow, I think that is a great way too put it. My perceptions are changed for a while and it really sucks. People can really annoy me and I would normally just blow it off. I agree about the antidepressants, they can only do so much. Seems like gluten can override their effectiveness. I am really getting careful with everything now including lipstick....

Just wondering how gluten affects your mood. I have been diagnosed with depression for years and take an antidepressant which generally helps. How can I describe this . . . I can tell when I have accidentally gotten gluten because my mood can just go down the tubes. It can take me a couple of days to feel better and happier. Usually I am very fatigued...

I have been diagnosed with RLS. Unfortunately it has not gone away. Maybe improved a little. Is there a connection between Celiac and RLS. Never thought of it before.

I am so excited to see this. I went to a ENT and she told me that she thought the sores were coming from my gut. This eventually led to my diagnosis of Celiac disease. I too have been tested for strep throat, given antibiotics, and pain meds because they thought I had the flu. I could barely swallow. They always seemed a little surprised when I didn...

I can certainly relate. Like you I still have uncomfortable sensations in my stomach and almost a pressure feeling sometimes in my bowels. I really like the probiotic Align for pain in my intestines if I inadvertently get gluten. Some days I feel pretty good and others I feel tired and depressed. In many ways I feel "lucky" to have this autoimmune disorder...

Thanks so much for the tips. I am pretty sure MSG is an issue for me, and my mom becomes very ill if she eats it. I don't think I am lactose intolerant because once I quit the wheat/gluten, the burping and bloating went away when eating cereal and milk, and I don't have that if I drink milk now. How did you know that milk is an issue for you? The only way...

Yes, I ran a low-grade fever for at least a year before I was diagnosed with Celiac disease. I am not sure why, but once I went gluten-free my temperature returned to normal. If I eat inadvertently eat gluten, I can get the fever back. For me, it spikes in the afternoons and makes me feel lousy.

I was officially diagnosed with Celiac disease about three years ago and cannot begin to tell you how much better I feel not eating gluten. Like many people, over the past 30 years I was misdiagnosed with IBS, diverticulitus (sp), etc. I feel so much better now and have lost a lost of the joint pain, depression, and low grade fever but I find that I still...