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MitziG

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MitziG last won the day on January 11 2015

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    Mschwax14@outlook.com

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  • Gender
    Female
  • Interests
    Dx via blood and biopsy April 2011, two kids dx at the same time
    Dx with Interstitial Cystitis April 2011
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    Virginia

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  1. MitziG
    Hi all, haven't been on here in a few years, because all was well and celiac wasn't on my mind so much as when we were first diagnosed back in 2011. However, my son (13) is once again suffering, and I don't know what is up. About a year ago, he developed the same type of abdominal pains he initially had, along with concurrent depression and anxiety....
  2. MitziG
    I think it would be totally doable. They rely far less on processed foods over there- having fresh whole foods at meals would allow for a lot of options. Her hosts could just be advised of her needs and maybe allow her a spot specifically for her food prep.
  3. MitziG
    The hiatal hernia may very likely be responsible for your bad breath- basically it is letting all of those nasty gut chemicals be expelled through your mouth. Yummy. Depending on when and what you have eaten may affect why your doctor said it was not halitosis. Anyway, a few recommendations... #1 fix the hernia...easy peasy, you can find diagrams online...
  4. MitziG
    Oh SMH the idiocy of doctors never ceases to amaze me. With a first degree relative with celiac, your chances are 1 in 12. Throw in your symptoms, a questionable biopsy and a positive ANA and you might as well be waving a red flag at them. Sigh. Hope by now you have gotten some answers. I am so very sorry about losing your baby. How awful. Stories like yours...
  5. MitziG
    Have you found anything more out? I see your post is a couple months old. If not, was just going to ask if they did an EMA test at all? A positive EMA would definitely mean celiac. My only idea for the increase in ttg is that the disease is continuing to progress because he is getting cross contaminated by gluten. If you have gluten in the house, it is really...
  6. MitziG
    Also, constipation is a hallmark of celiac. My 11 year old was on laxatives from 2 months until he was five...because he was undiagnosed and I didn't know any better to ask about celiac. He was BREASTFED and constipated..that just doesn't happen unless something is really off. They just didn't bother to find out what it was. Gave him acid reflux pills for...
  7. MitziG
    No doubt about it, sorry. Your daughter most likely has it also. Low positive is like being "a little bit pregnant." You can actually have massive intestinal damage have completely negative blood work. She needs an endoscopy done pronto. If you want to put your son through it, keep in mind, celiac can be easily missed with an endoscopy. The intestinal area...
  8. MitziG
    Curious to see what you find out. He certainly can have a negative panel and still be celiac. I would push for an endoscopy.
  9. MitziG
    Your ttg is positive, dgp negative. Ttg is generally Celiac but can also elevate with other autoimmune disorders. If you get a positive EMA then you have celiac. Gene test is controversial at best- if you have the genes or makes it more likely you have celiac, that is all. Glad you are finding a more knowledgeable dr.
  10. MitziG
    SMH it is Drs like this that drive me bananas. Stupid GI and he doesn't know what to look for. #1 Positive EMA = celiac. Period. #2 Celiac can not be diagnosed with a colonoscopy. He is either dumb or just wanted to bill for an extra test. #3 Celiac is easy to miss in a biopsy. It is often patchy and many drs only take one or two samples...which I would...
  11. MitziG
    You have celiac. Your low IGA is causing false negatives most likely. Dgp test I specific only celiac. However, having a diagnosis is helpful because without having it, doctors wont take you seriously when you say you need to be gluten-free. If you are hospitalized, you may not get to order from a gluten-free menu without a diagnosis. Many times it will be...
  12. MitziG
    Alot of celiacs will react to dairy in the same way as gluten. The proteins look similar and our immune systems often think they are the same. Joint and body aches are really common with both.
  13. MitziG
    Alot of celiacs will react to dairy in the same way as gluten. The proteins look similar and our immune systems often think they are the same. Joint and body aches are really common with both.
  14. MitziG
    Word of advice when it comes to doctors...be prepared to tell, not ask. Most of them (even GIs) don't know diddly squat about celiac. Spend a few hours on this forum and you will know more than they learned in medical school. Be your daughters advocate. She almost definitely has celiac and don't let them convince you otherwise. Also, the biopsy, BEFORE she...
  15. MitziG
    Of course you can taste gluten! It is called DELICIOUSNESS. Gives it away every time for me. As in, "Wow, these enchiladas are soooo good I cant believe these are corn tortillas!" They weren't. Three days in the hospital, months of pain afterwards. Something being delicious makes me highly suspicious now.
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