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gf4life

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Everything posted by gf4life

  1. gf4life
    Hi Swimmer, You need to have your doctor do another set of bloodwork on you. Also have them do a total serum IgA to make sure that you are not IgA deficient , which would make you show a false negative. You sound very much like you do have celiac disease, and one negative test years ago, does not mean you don't have celiac disease. You may not have...
  2. gf4life
    Thank you Sarah, it sure helps to have all these other people to share expereinces with. celiacfreeman, I agree with you. I think it is important to have the colonoscopy as well. I had one in November, and I had some inflammation, but no polyps or anything. I think the inflammation was due to the gluten and the casein, which I had just found out I...
  3. gf4life

    ARCHIVED Obesity

    gf4life replied to gf4life's topic in Related Issues & Disorders

    Hi Mom of 5 Celiac, I was wondering if your husband is eating a lot of gluten free high-carb foods? Sometimes this can make people gain weight on the gluten-free diet. As for you being overweight as well, I assume that you have not been on the diet? If that is the case, then when you do get gluten free you may want to watch your high carb foods as well...
  4. gf4life
    Hi Sarah, Wow, that was quite a post! It got me thinking about my own situation, though. I only have one set of grandparents to send my kids to, and that is not going to happen anytime in the near future, I'm more concerned with when they come to visit us! I have not even mentioned celiac disease to them in regards to me, and was planning on waiting...
  5. gf4life
    Well, it might be safe , but it doesn't sound like it would be healthy. I'm not sure why they have to add all this junk into our food, but... You best bet would be to call the company to confirm if it is gluten-free or not. I did a little search, and you are right there are not any support groups in your area. Have you thought about maybe...
  6. gf4life
    ryebaby0, I would push for an earlier appointment date as well. There are some tests they can do on your son to look for specific deficiencies, like iron, B vitamins, calcium, and more. Then he could take specific supplements for these until he started healing more. Also, if he is still on dairy products this could delay his healing, since the...
  7. gf4life
    Hi Bella, The new board switched over at the end of December. It takes a bit of getting used to, but the new features are good. I think the best feature for me is being able to send e-mails or personal messages directly to other people on the board. It is certainly a lot easier than it used to be. If you have any specific questions and need help...
  8. gf4life
    Thank you Granny, I am so glad that today is my last day (voluntarily) eating gluten! I really appreciate your support. God bless, Mariann
  9. gf4life
    Just curious, but how many of you with the rumbling, noisy tummies are still eating dairy products?? I was thinking about it, and I am casein sensitive as well as gluten intolerant, and I get the rumbling, gassy, bloating and noise when I eat dairy, even while 100% gluten-free. Any of you still on dairy may want to just do a trial couple of days dairy...
  10. gf4life
    My husband is a bit upset by the fact that we will not be able to eat out as often, or at a wide variety of places. The one consolation is that he loves El Pollo Loco and their whole chicken pieces are gluten-free. So he can still get that and have the whole family eat it! I was just wondering how often you guys eat out. We used to go out at least once...
  11. gf4life
    My intestines are very noisy when I am on gluten. As well as very bloated and I am extremely gassy(and it is very painful). This is one of the first things to go away when I am gluten-free, and one of the first to return with a gluten accident. I would think that if you continue to have these noises in your intestines (or stomach) that you may want to...
  12. gf4life
    Carol, I have a copy of this paper. I was very impressed with the information stated in it. I had no idea as to the history of the stool testing, and I was glad to have a chance to read it. Thank you for posting it here. God bless, Mariann
  13. gf4life
    Hi everyone, I was out of town for a week and totally missed this string of posts. I just wanted to say something about the biopsy. dclark, if you have been gluten free for more than three weeks, one day on gluten will not cause enough damage to show on the biopsy. I assume you are going in this week and I hope that if it comes back negative that you...
  14. gf4life
    kvogt, I know it is insane the way they have the diagnostic process set up for celiac disease, but at least it is not as bad as it used to be. They used to do a biopsy first, then go gluten-free for 6 moths, then a second biopsy, then a gluten challenge for 6 months , and longer if symptoms did not return immediately. All for a diagnosis, which should...
  15. gf4life
    Lily, I love that! I'm having another endoscopy done on Tuesday and I'm really looking forward to that nap. I'm a busy mother of three and I never get a nap. My only concern was when I had a colonoscopy done a few months ago at the same place I woke up near the end. I don't want to wake up during the EGD, so I think I'll talk to them about it when I...
  16. gf4life
    I agree with you Susan, We do have to stand up and make the medical profession take notice. I am at the end of my gluten challenge right now, only 3 more days! It has been hard, but I do feel there are benefits to having a confirmed diagnosis. I have been sick all my life (I'm 31 now) and I have been told it was all in my head, or stress related...
  17. gf4life
    Hi LisaS, I found these support groups and a recommended doctor here on the Celiac.com site. I hope that they can point you to a good doctor in your area, or that you could see the one in Seattle. I would check the support groups first, and see whom they recommend. Local Celiac Disease Support Groups Anchorage Resource: Contact: Michelle...
  18. gf4life
    Marybet, If you live in the Chicago area you should contact the University of Chicago Celiac Disease Program. They have a lot of information on their website, and if you couldn't get in to see one of their doctors, then maybe they could put you in touch with another good one. They could also point you towards some support groups in your area. Here...
  19. gf4life
    It doesn't seem to matter what I call it, my doctor won't take me seriously, either. She insists on calling it "Sprue". She doesn't seem to like it when I call it Celiac Disease. I have to call it Celiac Sprue, or just Sprue when I am around her. I don't care what anybody calls it. If you have it, it won't go away just because some doctor doesn't believe...
  20. gf4life
    soul04, I figure your doctor probably meant "mild" in the sense that you are not yet producing enough antibodies to show positive on a blood test. That is a good doctor. Certainly the symptoms we celiacs have are not "mild" to us. I also tested negative on all the tests, and do actually have celiac disease. You weren't gluten free before the testing...
  21. gf4life
    Hi Sunny13, I have something to say about the blood tests. First off they are not 100% accurate, I don't think there are too many tests out there that are. But as for the tTG test being negative, first off the test has to be performed by a specialized lab, and it has to be done using human tTG and most regular labs use pig tTG. Unless you use...
  22. gf4life
    You should have the choice to be sedated or not. If you do not want to be "aware" of it and don't really want to remember the experience, then ask them to give you Versed, like jhmom recommended. I had this for both my endoscopy and my colonoscopy and don't remember anything from the endoscopy, but I did "wake up" near the end of the colonoscopy, but not...
  23. gf4life
    Hi Erinn, I found one that was recommended from the Celiac.com site: Dr Charles Menz Gastroenterologist 168 Brent St Suite 404 Ventura, California 93003 Tel: (805) 641-6525 Also there are some support groups in your area as well. These contacts are from the same website I posted above(Celiac Disease Foundation). I hope this helps. They should...
  24. gf4life
    Hi Newbie, You have a lot of damage in your intestines, and it takes some time to heal. This is not to say that you will experience this pain for a long time, but you might continue to experience some symptoms for a while. If the pain is severe, then you should consult your doctor. Have you also stopped all dairy? It would be wise to do this at least...
  25. gf4life
    Hi Jules, There are probably about the same number of people who are overweight Celiacs as there are underweight Celiacs! I am one of them. I have has weight problems up and down all my life until I had kids and them it was just up. I am now about 60lbs overweight and a newly diagnosed Celiac. I have spent the last two years educating myself...
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