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lovesaceliac

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lovesaceliac

  1. lovesaceliac
    April in KCs response was so good. I think that's one of the trickiest situations, well-meaning friends who are going out of their way to "help" but not being informed enough to avoid cross contamination or gluten containing ingredients, and then the gluten-intolerant person looking ungrateful when he/she can't eat what was offered. I think it would...
  2. lovesaceliac
    Please give some advice Meatballman to me, the gluten-eating wife of a super-sensitive celiac...I find myself on occasion apologizing to him when I eat gluten in front of him. I can't help it! I know he wishes he could share...what's more annoying - me turning down his suggestion that I have that cinnamon roll (becuase he feels guilty if I don't eat what...
  3. lovesaceliac
    I am the wife of a super sensitive celiac and we experience the same thing. One of my husband's reactions to gluten is depression and anger. He'll say, "I'm just so angry!" and unfortunately as the one closest to him it often gets directed at me. I adore this man. He is the best friend, husband, and father, but when he gets glutened he turns into an awful...
  4. lovesaceliac
    My husband can usually tell within minutes of eating the offending food (always cross contamination only, he never intentionally eats gluten and we are very careful.) His first symptom is "brain fog" which goes away after a while. His worst symptoms appear the next day: severe joint pain, extreme fatigue (usally spends an entire day asleep in bed), followed...
  5. lovesaceliac
    That we can't even trust the "gluten free" options at most restaurants. Well meaning friends say, "such and such a place has gluten free pizza now!" Not a chance my super-sensitive celiac husband could eat it safely. Stupid cross-contamination.
  6. lovesaceliac
    That's hard to answer. I feel like I'm still figuring that out (almost three years later!) My husband is the great cook in the family and as a matter of scheduling/division of labor - I do most of the cooking. We love ethinc food and I'm not great at that kind of cooking. That's where we really miss going out: Indian, Thai, Veitnamese, Ethiopian - how...
  7. lovesaceliac
    Wow...thanks for the compassionate responses. This forum has been so theraputic for me. My first night on, I was up most of the night feeling so validated by reading what seemed like our experiences over and over again. It was so nice to feel like we weren't crazy when even loving family members had a hard time masking their disbelief that this is "real...
  8. lovesaceliac
    So what happened? Please update. I've considered the same kind of "test" myself - can't ever schedule it in to our hectic life though.
  9. lovesaceliac
    I'm also trying to figure this out (without health insurance.) Last time we forked out the bucks to go see a gastroenterologist was about 9 months after my husband went gluten free. Within a week of the new diet he said, "I'm never going back!" and in a month he had lost 20 lbs and regained a color, postive mood, and general health that I hadn't seen in...
  10. lovesaceliac
    Thank you so much everyone for your kind words. I have really enjoyed joining the community here. We've been at this for over two years now and it was only about a month ago that I spent several hours overnight reading these forums (feeling discouraged about a recent CC episode.) It was like I was reading our own life story. It was so validating to discover...
  11. lovesaceliac
    Wow...that is all so encouraging! Italy is coming way up on my travel list now. Thanks for the wonderful suggestions. Anyone have experience on wether or not gluten-free airline meals are actually gluten-free? Safe from cc? So many restuarants now offer gluten-free (and my very sensitive husband inevitably ends up getting glutened.) While I'm glad awareness...
  12. lovesaceliac
    I'm about to loose it. We keep a gluten free home to protect my very sensitive celiac husband. We've had a house guest for the last week (who by cooincidence just found out he was celiac and is now learning the ropes - so far he is asymptomatic, so he hasn't dealt w/cc and some of the other issues we do on a regular basis.) The guest was one of several...
  13. lovesaceliac
    Ok, so we're doing great gluten free at home - totally clean. But every time we travel my gluten-free husband ends up with a reaction due to cc at some restaurant (in spite of my best efforts to research in advance and talk to wait staff.) Now that our small business is doing well enough that we can realistically take a month off each summer to travel,...
  14. lovesaceliac
    The first six months were the hardest and at first it was very frustrating - you have to rethink how you do food, but now that I'm two and a half years into it, preparing meals, baking, etc. is all so natural. Made chocolate chip cookies tonight (using Pamela's mix and the recipe on back.) My husband will attest to the fact that my gluten free chocolate...
  15. lovesaceliac
    We're just over two years into this and unfortunately, still deal with gluten reactions on occasion. This is always due to CC. Our house is gluten-free and my celiac husband never intentionally eats anything with gluten...but CC at a restaurant or family member's house will knock him flat for three days. There seems to be a regular progression through...
  16. lovesaceliac
    A related question: I have two children (age 5 and age 3.) My husband has celiac disease (not confirmed by testing - our GI doctor says he is so sure of it the test is not necessary and nothing on earth would convince my husband or me to let him go back on gluten to get the diagnosis.) My children are both healthy, active, with no apparent stomach issues...
  17. lovesaceliac
    We keep a gluten free house for my husband, but the kids and I do eat gluten when we're out of the house. We just couldn't manage the cross contamination issues at home (a 1 yr old and 3 yr old were not helpful in that department.) It took six months for me to convince my husband that we had to go gluten free at home, but I know it was the right choice...
  18. lovesaceliac
    I heard there were tax breaks here in the U.S. as well? My husband still doesn't want to get tested, no amount of money could persuade him to go back on gluten - I'd be wary of living with him while he did it!
  19. lovesaceliac
    Unfortunately, I think it comes down to the individual staff at individual restaurants (chain or not.) We've been glutened eating the "gluten free" pizza at the B.J.s in Grand Junction, CO and at the B.J.s in Colorado Springs, CO. Our family policy is if a restaurant gets two strikes, they're out. No more B.J.s for us (although I did start making buffalo...
  20. lovesaceliac
    I just read several online testimonials about the bar of soap remedy. A miracle for some, doesn't work for others. But hey, might as well give it a try. I'm going to put it in bed tonight w/o telling him and I'll report back.
  21. lovesaceliac
    I get so frustrated I could cry sometimes when my husband has distinctive gluten reactions and I can't for the life of me determine where the gluten came from. What else should we be doing to care for his immune system? What are some other triggers common to people with gluten intolerance?
  22. lovesaceliac
    Wow hpymomof3 - my heart really goes out to you. The sleep schedule you describe is almost identical to that of my husband in our last year of college (almost ten years before we found out he was gluten intolerant.) His big issue at the time was restless leg syndrom, which when we found requip was controlled and now is sleep is just bad instead of awful...
  23. lovesaceliac
    Unfortunately, this hasn't been the case for my husband who has been a chronic insomniac for over ten years. Going gluten free two years ago has totally changed our life - he's healthier, happier, thinner, stronger, etc...but still has restless leg syndrome and still sleeps poorly. Sleep is definatley worse when he gets glutened, but pretty bad all the...
  24. lovesaceliac
    My husband going gluten free has dramatically improved our marriage (14 years.) He struggled with so many of the same things you described in your husband (depression, anxiety, poor health) Sometimes I think it's a miracle that we made it through so many years of not knowing what was wrong (we only discovered his intolerance 2 years ago.) I chalk it up...
  25. lovesaceliac
    I am so sorry. I have felt the same frustration (cried some of the same tears) as I've tried to prevent cross contamination issues from making my gluten-free husband so ill. He's been gluten-free for two years and last year I finally convinced him that the entire house needs to be gluten-free as well. We do great at home, but even when we bring our own...
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