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westiepaws

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by westiepaws

  1. westiepaws

    ARCHIVED Dating

    westiepaws replied to Cookie's topic in Coping with Celiac Disease

    Hi! I dated a psychiatrist for a while right as and after I was being diagnosed. Having been schooled in traditional medicine, he initially thought I was being misled and/or was a hypochondriac. UNTIL I showed him the esteemed research citations in the back of the book "Dangerous Grains." (Lancet, NEJM, Gut, AMA, etc., etc.) Then he started keeping almond...
  2. westiepaws
    Hi! I have wondered the same thing you are wondering. When I was diagnosed, I didn't think I had ANY symptoms of celiac! I ONLY got tested because my mom was diagnosed!!! Yeah, I knew I was fatigued, but having been a spousal caregiver for 3 years and widowed for 1 1/2, I chalked the fatigue up to that. I went on the diet somewhat begrudgingly. ...
  3. westiepaws
    Hi, I tried to post this yesterday at this forum but it never showed up! I will be traveling to Seattle and would appreciate any recommendations of places to eat that are gluten-free and might accommodate soy/dairy intolerance. I have found Cafe Flora, Flying Apron Bakery, and of course Outback. There is a nearby PF Changs, but since I have to watch soy,...
  4. westiepaws
    Hi, I'm planning a trip to Seattle and would appreciate any recommendations on restaurants that are willing to accomodate gluten-, soy- and/or dairy-free requirements. So far I have found a listing for Outback, and online recommendations of Flying Apron Bakery and Cafe Flora. I have a feeling the bakery may not be able to accommodate the soy/dairy requirement...
  5. westiepaws
    I get a headache at the Harry's/Whole Foods where I shop when they are doing a ton-o-baking in the bakery and I walk through there, and also when I walk through the cheese section if there is a lot of pungent cheese out (also allergic to casien). I have solved the problem by just not going through that section of the store anymore. I know that it is not...
  6. westiepaws
    Isn't it **fascinating** that people don't question you if you are on the **Atkin's** diet (which has been questioned in terms of how healthy it is). But if you say, I have a freaking DISEASE, they think you don't know what the hell you are talking about? The people on Atkins have probably read **one** book about their diets -- that book. We, on the...
  7. westiepaws
    I thought it would be like any other medical situation, you just say it and describe it and people take your word for it. But it's really not. With celiac, people need time to digest the idea of the whole disease. It's like we've all been brainwashed into thinking "How can you live w/out the amber waves of grain in your gullet every day?" Often I suspect...
  8. westiepaws
    Bingo, the potassium sulfate is probably it! My mom is allergic to sulfates and sulfites also and it causes her major, major pain in guts and joints if she gets it by accident. Mom says is possible to get dried fruits that don't have sulfates in them. If you like dried cranberriers, the Ocean Spray dried cranberries are sufate/sulfite-free (the last...
  9. westiepaws
    Hey, that previous idea re: starch is interesting -- I've been noticing my stomach isn't handling those well, either. Maybe I will lay off those a while, too. Fruits are very good if you can eat them because they are a good source of antioxidants. My nutritionist always tells me to eat more fruit because of that. Also, she told me a nice remedy for...
  10. westiepaws
    Oh, p.s., if the label says "modified food starch," don't buy that, either. Because you don't know a) what food the starch came from, wheat, corn, potato, etc. and if it has any gluten in it. c) whether this month the product includes the same food starch that it did last month! Re: c, the reason they are allowed to just put "modified food...
  11. westiepaws
    Hi Mel, my nutritionist told me there may be as many as 170 GENES that predispose people to celiac. We just don't know for sure how many there will be. If you doubt that, consider that if you research the wheat growers' assns. here in the U.S. online, you can see one of their future goals is developing bio-engineered, gluten-free wheat. If *they*...
  12. westiepaws
    Hi my mom was an undiagnosed celiac when she had me and my brother. She had to take some sort of fertility-enhancing something with us to get pregnant but it worked. She was never dxed until last year; she is 64. I am almost positive my grandmother was celiac when she had my mom, too; my grandmother is in her 80s but has had symptoms that we now know are...
  13. westiepaws
    Hi AJ, to paraphrase Heather Locklear in her hair care commercials: "YOU'RE WORTH IT!" I know it can be a pain in the patooty to get some people on board with the gluten-free diet -- they just don't get it. Also, it can be a challenge to put one's foot down with one's husband. I know that because 2 1/2 years into my marriage my beloved was diagnosed...
  14. westiepaws
    Hi Ms. Sillyak how did your brother manage to escape the celiac gene? Or is he just ignoring reality and not getting tested (like my brother)? (Side note, I will be way grumpy if my brother gets celiac-related problems in his later years and expects moi to be his caregiver.....and he will be way grumpy when I refuse! And now back to our regularly scheduled...
  15. westiepaws
    Somebody mentioned that a burqua could be an option for a bad hair day. Half a burqua (the bottom half) -- or actually, better yet, a small tent from Sears! -- would be useful on the days when one gets glutened, to cover ye old rapidly expanding abdomen.
  16. westiepaws
    I would take am allergy-free side dish for the group and if necessary some additional things just for myself (or maybe just my own salad dressing, if they were making an allergy-free salad) to be sure I had enough to eat. My nutritionist's advice to me, as I'll soon be in a supper group that meets monthly as of next month, is to bring my own food when we...
  17. westiepaws
    He Mel, let's see -- I had initial blood work -- $1,000 worth!!! -- done at a local lab and sent to my endocrinologist. He was checking me for thyroid and adrenal problems, anything that could cause my fatigue/bloating/etc., to rule some things out. That bloodwork indicated allergies to gluten and possible celiac. (I got tested only because my mom was diagnosed...
  18. westiepaws
    Hi, I love the quote at the end of your message -- I'm a newbie, too! Usually I feel the effects w/in 12 hours max and am fatigued for at least a week . A few times I'v had symptoms and been like "Whaaaa?" In those cases, I figure I got glutened/soyed/dairied and didnt' know it. However, everyone is different on what happens when and how long, based on...
  19. westiepaws
    Hi Mel, Enterolab and my local endocrinologist are the only reasons I know that I have the antibiodies and the gene. In March I still showed as having at least twice the normal level of antibodies even thought I started going mostly gluten-free back in December 04, barring some accidents/ill-fated rationalizations. The people who run Enterolab are really...
  20. westiepaws
    Hi, please feel free to tease me if I read this totally wrong, but -- at the board for friends/family of celiacs, I could swear I just read that kissing someone who eats foods we are allergic to can expose us to those foods. Is this true? And you have the person chew gum or brush their teeth to protect you or something? And is it only kissing on the...
  21. westiepaws
    Well, as long as it doesn't cost Kaiti any money, I'm all for the ex-boyfriend looking like a butt! What a dingbat he must be! Kaiti, you and Angel should put together a book of funny things people say to celiacs when they are dating them. On a serious note, I am not surprised. My late husband was ill with cancer and died after 3 years (in hindsight...
  22. westiepaws
    Oh cool! I looked that up and it is only 30 minutes from here so I will check it out. Also just found some gluten-, soy- and dairy-free chocolate chips, as well as the same gluten-free/sf/df boullion in the gluten-free mall, so I ordered those to experiment with at home. If I can find a) substitutes for the basics (I've got the dry ingredients down pat...
  23. westiepaws
    Hey, that is a really good way to put it into perspective. Thanks, you two!!! I know that one reason I'm struggling because it's not just gluten, it's soy and cow's milk, too. Most gluten-free breads aren't even doable for me because the ones at my Whole Foods/Harry's usually have some soy or dairy in them at my grocery store. Tonight I will put signs...
  24. westiepaws
    Sally is right, it is true that the longer you stay off the bad stuff, the less it tastes good when you eat it. I am trying (and mostly succeeding) to eat all organic, too, as well as avoiding my allergic foods. The other day I tried a Coca-Cola, and you know? It tasted awful to me! It The thrill is totally gone. I'm just now adjusting to the reality...
  25. westiepaws
    Given that Jesus is omnipotent, I personally believe he is bigger than just one grain. He didn't limit his love, He doesn't limit his presence in our lives -- so why would He limit himself to one little grain? Probably He doesn't mind if we even have Oreos for communion (boy, I miss Oreos), as long as we "commune" with him in our hearts. Also, I do wonder...
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