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MarionG

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MarionG

  1. MarionG
    No I was never diagnosed. I didn't have insurance or money at the time, but gluten was killing me so I cut it out and felt alot better. Recently though I started having symptoms again and seizures. I ended up in the ER twice so I had to finally try and get diagnosed. I think I was getting CC though and that's why the symptoms came back. I didn't think much...
  2. MarionG
    Thanks for the reply! That's starting to make alot more sense. These results were from 1 week gluten challenge. I was off gluten for about 2 yrs prior, so the Dr. suggested a gluten challenge but I only made it 1 week because my symptoms were so severe.
  3. MarionG
    Hi All, I was wondering if you guys could help me to interpret these test results? These are from a celiacs blood panel that they did. Unfortunately I couldn't make it through the gluten challenge, I only lasted a week. Lab: CELIAC DISEASE PANEL Name Value ...
  4. MarionG
    I used to have really bad C too. If you can I would recommend seeing a nutritionist familiar with people with Celiacs disease. After alot of trial and error, a combination of probiotics in the morning and a product called "Hydrozyme" with each meal plus a magnesium pill has eliminated the problem. C can be caused by a myriad of issues. For me it was lack...
  5. MarionG
    Hi All, I was diagnosed about 3 months ago via blood test. I was gluten lite for a few years so I had to do a gluten challenge which was horrible and landed me in the hospital 3 times. Anyhow, It's been three months totally gluten free. I live alone so it was no problem to replace all my pots and pans and anything that may have been contaminated. I also...
  6. MarionG
    Hi, I just wanted to second the option to fire your doctor and say that you are not alone! I literally went through NINE doctors before I found one who didn't say it was all in my head. One of my most striking memories is being in the hospital for the third time in a month, I was having seizures, unable to move, only semi conscious. I heard the doctors...
  7. MarionG
    Thank you for the replies! These baking mixes were probably discontinued I got them at grocery outlet. The company told me they do test for gluten but they're not made in a gluten free facility. The ingredients of the cocoa brownie mix are: Cane sugar, brown rice flour, cocoa powder (processed with alkali), potato starch, natural flavor (maltodextrin...
  8. MarionG
    Hi All, I keep getting gluted from something and I'm trying to find the culprit. I was wondering if anyone has had reactions to Simply Organic baking mixes? like the brownies or cake mixes? Thank you! Marion
  9. MarionG
    Hi All, I just wanted to let y'all know about a great Dr. In Grass Valley Ca. He's an amazing diagnostition, and very compassionate. He's also very open to any new research. His name is Dr. Frost, I would recommend him to anyone who has a hard to diagnose case, he's very good at listening to all the details. In fact, everyone calls him "House" after the...
  10. MarionG
    I've heard of a lot of people who get false negatives on their blood tests. In my experience with Drs. You have to just be very firm. I've had 5 different Drs. over 11 years tell me it was all in my head and try to give me antidepressants. Unfortunately your experience is very common. Try to get a new Dr. Just keep going to different ones until you find someone...
  11. MarionG
    Thank you for the replies! and thank you bartfull for the great article link. I went to my Dr. and he agreed that I need to go gluten free immediately since my symptoms were so severe. He said with my family history (Grandma is Celiac) and with my symptoms, he's just going to do a gene test, and if I've got the genes he'll just diagnose me. Jeeze! no wonder...
  12. MarionG
    Hi All! Thank you everyone for all the awesome information on this site! My Dr. decided to have me do a gluten challenge for the next six weeks. I am now entering week two of the challenge. I have read that you need to consume 1-2 pieces of bread for your body to produce adequate levels of antibodies for testing. I've been eating 1-2 pieces a day...
  13. MarionG
    It could be multiple food intolerances. At first when I went gluten free, I was still feeling sick ALL the time! then I realized that I am sugar intolerant. This mean any type of fructose. Cane sugar, maple syrup, honey, agave etc. So I cut that out too. I didn't even hardly eat fruit for awhile! Then recently I was still feeling gluted sometimes, and I realized...
  14. MarionG
    I'm glad I found this thread. I was just diagnosed about a month ago and have been completely gluten free since then. Recently however, I noticed that I was getting sooo tired in the mornings right after I had breakfast. I thought it had to be a cross contamination issue or maybe I was allergic to coconut which I had been eating at breakfast. Now I am wondering...
  15. MarionG
    This is an article I think everyone especially doctors should read: Open Original Shared Link
  16. MarionG
    I am so sorry that happend to you. People that don't have Celiacs cannot understand what we go through. You can explain to people what it does to you. If you need to, do it multiple times. This has been a very effective tool for me especially in the beginning. Next time they decide to go to a restaurant where you cannot eat don't go. It might be a bummer...
  17. MarionG
    Hi All! When I was a kid my mom said I never stopped crying. I was so bad that one day our neighbor came over and said "ohh I am so sorry about your daughter is there anything I can do?" My mom explained I wasn't sick I just cried...All the time. I had always had constipation problems. There were weeks that I didn't go. My parents would regularly...
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