pain*in*my*gut

I get that fullness in my throat when my Hashi's is flaring. It aches, too. My doc said it's because my thyroid is enlarged and pushing on my trachea. You need t3 and t4 testing. I would be willing to bet you have Hashi's and need supplementation. I had every one of your symptoms before I went on thyroid meds.

The positive EMA is virtually 100% specific for Celiac. You also have a positive DGP, which is also very specific for Celiac. I would not bother with a biopsy if I were you (but that is just me). Because your mom is Celiac, I would consider yourself diagnosed.

Have you had a recent Celiac blood panel done? Just because you were negative years ago does not mean that you stay negative. Those biopsy results sound suspicious to me. "Sandy"? Some docs won't dx Celiac unless the villi are totally flat, this is a common cause of falsely negative biopsies.

The ONLY tests that was positive for me was the DGP. It was very high. I cannot eat gluten or I get very ill, with symptoms exactly like yours. I wonder why your doc is not using the DGP, as it has replaced the anti-gliadin abs because it it much more specific for Celiac. Also, getting tested for the genes could help add some pieces of the puzzle.

Daily nausea could be a sign of gastroparesis. I have it. It's caused by your stomach emptying too slowly. An upper barium swallow study would give you more info on this condition than an endoscopy! I think you need a new doc!

^^^^This. Why wait for symptoms? By that time the damage has been done. Not to mention that kids sometimes have different manifestations of Celiac (cognitive issues, neurological, etc.) It's just a blood test. Get the genetic test first, because if they are negative, then you don't have to worry about it. If they have the genes, get them tested for...

Just my 2 cents.....if your biopsy is negative, please consider going gluten free anyway. Biopsies are very unreliable, and false negative results are very common. With your positive symptoms and bloodwork, you should not be consuming gluten. GI docs put WAY too much emphasis on that biopsy. You should also request genetic testing to see if you have the...

Hmmmm....are you sure you are strictly gluten free? I just found out the hard way that hydrolyzed Brewer's yeast has gluten when used as a flavoring in foods. Could you be getting cross contaminated in some way?

I see you are a male.....have they tested your testosterone levels? If that is low, it can cause fatigue. Just a thought!

Yikes! It sounds like your intestines were severely damaged, and that is going to take longer to heal. Six months is too soon to expect a full recovery. Are things any better, or is it still as bad as before you went gluten-free? And I also agree, you could have another issue going on besides the Celiac. What does your doc think?

I am one of the unlucky few who cannot tolerate even gluten-free oats. They make me sick the same way gluten does. Bummer!

Yeah, I know you are right. That is the plan for at least several months. I was definitely getting very complacent about making extra super sure my food was gluten-free. I even had nachos with queso dip at the movies a few weeks ago without even asking if it was gluten-free! Odds are it was NOT, as I was really sick that night. Duh. Live and learn!...

My GI doc actually said that if my Celiac panel came back positive, then we would "obviously" do another biopsy to try to get that positive biopsy. I told him I didn't need a positive biopsy to convince me that I have Celiac, and that the +DGP was enough for me (and my rheumatologist). He disagreed, and said there were other things that could cause positive...

Hi all! I have been gluten-free since September 2011, and my tummy has been good. Up until 6 weeks ago! I started having bouts of diarrhea, bloating, gas and reflux. Then the dreaded left sided abdominal pain came back (this was what lead me to my Celiac dx in the first place). My current GI, who is clueless about Celiac, wants me to have an upper GI...