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PainfulSpaghetti

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About Me

I'm 37, live in VA, and struggle with being a "yak", as do we all. I believe my sense of humor helps me cope, and try to keep a happy positive attitude. Sometimes I succeeed, sometimes not, but I always try. I blog on celiac.com, and on my own blog at http://painfulspaghetti.blogspot.com/. If life is like a box of chocolates, did everyone read the label to make sure they were gluten free?

  1. Thank You so much for your replies! I am so happy to meet you! Cougie, your story is so similar to m ine, I am so sorry you have had to suffer so much! It is terrifying when your body doesn't do what you tell it, and does things you didn't. I wish you all the luck in the world!
  2. That would be awesome! Thanks so much!!!!
  3. I miss the ease of making a sandwich. The thrill of fresh baked bread. An ice cold beer. Cinnamon buns ice cream. Ritz crackers. Graham crackers with peanut butter and bananas. Pie. cake. Cupcakes. But most of all, I miss pasta.
  4. I wanted to finally officially introduce myself, as I have been posting and have been neglecting to do so. I'm Kelly, I'm 37 and live in VA. I just this year finally realized it was the Gluten trying to do me in after being so sick I thought I would die. Having stroke like episodes and visting doctor after doctor. Being told by my Insurance company that...
  5. Welcome Peeptoad! Once your body begins to heal from the damage the gluten causes, it can be very hard on your system to introduce gluten back into it. Be very careful with your challenge, and try a small portion. Such as 1 cookie, or cracker. NOT a whole sandwich as I did. That was a bad idea for me!
  6. Sigh... I know, and I loooove dairy.
  7. I think all of us have slid down the slippery slope of wondering "Do I even have Celiac or a gluten allergy?" And we then think, "Oh I will just have one sandwich." Then yet again, we learn we are indeed intolerant of gluten, flour and wheat products, It's not in our heads, we are sick as dogs when we eat it. We can't have it. So, we run out and try to find...
  8. I am SO familiar with the mucus, and bleeding, too. I was diagnosed with Ulcerative Colitis, and then magically, the ulcerative colitis symptoms improved without Gluten in my diet, but I am still having trouble with candida overload, and that causes all sorts of nasty problems as well. I always say, Ok Today NO dairy, and then slip up with my coffee. So...
  9. I also went through a battery of tests for MS, and when I stopped eating gluten the stroke like symptoms associated with what they thought was surely MS did indeed go away. Those were terrifying! I went to doctors, a Neuro, a Rheumatologist, and physical therapy. I have been told I have severe fibromyalgia, tested repeatedly, and nothing I do, diet or otherwise...
  10. It can be frustraing, and difficult, BUT, your body will let you know what is best for YOU! All of us are different, unique, and have our own ways to cope, and things that make us feel better. A dietician will tell you common sense, which is to eat things that are natural and pure, contain no gluten, and have no chance of cross contamination. Veggies, rice...
  11. For me, I suffer from depression, cramping, gas, bloating, bad taste in my mouth, bleeding, headaches, brain fog, muscle weakness, joint pain, limb tingles, dizziness, some D, some C it varies, and alot of mucus in the stools. Even the teeniest bit will cause problems, and now my mouth will swell, and burn, and I get a rash. I do my very best to be a food...
  12. It sure does! It slowly but surely will get better. It takes awhile for our poor abused bodies to heal themselves, but it WILL get better!
  13. That recipe was gorgeous!
  14. Now if I could only get my iron stable...
  15. I have a strange "rash" on the inside of my cheeks that 3 doctors have looked and and just scratch their heads at, I'm postive it is some strain of thrush, due to the gluten intolerance, but thrush treatment does nothing for it, and it won't go away. I get sores in my mouth, and have one very small one on the inside of my lip that has been there for months...
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