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Latest Celiac Disease News & Research:
Everything posted by Flasaltwater
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ARCHIVED Anyone Else Always Hungry?
Flasaltwater replied to bny06's topic in Coping with Celiac Disease
I am always hungry I eat all day long and I still loose weight I just weighed myself and I went from 109 to 108 but this is over the 6 weeks of being Gluten free. I feel like I'm starving most the time. -
ARCHIVED After Being Glutened Do You Ever Pass This?
Flasaltwater replied to GFreeMO's topic in Coping with Celiac Disease
I have this however its not as bad as it was when I was consuming Gluten dairy super bad also All my slimy mucus out the but is almost stopped completely. I am still noticing a oily layer at the top of the water I also have some floating stool some not mostly when I consume food with a high fat content like hamburger cream cheese use to do this to me also... -
ARCHIVED Got Some Of My Bloodwork Back Friday Severe Anemia
Flasaltwater replied to Flasaltwater's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It doesn't say wheat grass it says Gluten free. Also the Dr called me this morning and left a msg on my cell telling me that based on my anemia I should follow up with a hematologist. I tried to call her back but was left on hold for probably a good 20 minutes so I hung up and called back and told them I would be in tomorrow to get copies of all my labs... -
ARCHIVED Got Some Of My Bloodwork Back Friday Severe Anemia
Flasaltwater replied to Flasaltwater's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm thinking just for my own sanity if I continue to get well I will not be stuffing wheat or Gluten down my throat just to get a Diagnoses. I may send for the genetics test I'm worried about my youngest he is type 1 Diabetes when we go to his Endo in October I m requesting to have him tested. My Oldest daughter is already being tested she has most of the... -
ARCHIVED Got Some Of My Bloodwork Back Friday Severe Anemia
Flasaltwater replied to Flasaltwater's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes I am 6 weeks Gluten free I'm not sure my stomach could handle Gluten or dairy right now. I know I have to eat it again to get the right diagnosis. Not sure I am willing to do this. I am taking 1 ferrous Sulfate with 1000mgs of Vitamin C in the afternoon I had 1 tablespoon of Black strap molasses evening I just took 30ml of Floradix Ferrous Glutenate ... -
ARCHIVED Got Some Of My Bloodwork Back Friday Severe Anemia
Flasaltwater replied to Flasaltwater's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What slow release do you take? No I do not feel faint or Dizzy.I actully started feeling better taking the Floriadix. I think back in October of last year to January I must have been even lower because I did feel dizzy going up and down the stairs but because I knew it must be my iron I started taking it again felt better but then stopped and just started... -
ARCHIVED Got Some Of My Bloodwork Back Friday Severe Anemia
Flasaltwater replied to Flasaltwater's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
She'll be back Monday, however I will be taking all my lab results to a different Dr that was referred to me. These people do not listen. I'm seriously sick of it. -
ARCHIVED Got Some Of My Bloodwork Back Friday Severe Anemia
Flasaltwater posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ok As in my signature I have been fighting Anemia for a long long time this is nothing new to me. A different Dr called with my Lab results because the one I saw was not in. He basically scared the crap out of me. My iron level is at 6.8 he is asking me if I feel dizzy, rapid heart beat etc I tell him No I feel fine. Ugg He then proceeds to tell me sometimes... -
ARCHIVED Anemia Takeing 3X The Amonut Of Floradix
Flasaltwater replied to Flasaltwater's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well I read the dosage a little closer and it actually says 10ml 2 times a day so I really wasn't Overdosing I kind of wish I would have took more because my labs came back abnormal. Will start a new topic for this. In case anyone is searching for severe Anemia. -
ARCHIVED Anemia Takeing 3X The Amonut Of Floradix
Flasaltwater posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just realized this evening I have been taking 3x the amount of the daily dose of Floradix Iron + B Vitamins. It calls for 10ml Ive been taking 30 ml. I guess I needed it because it hasn't made me sick. I knew I was feeling better with more energy. I had Labs done this morning can't wait to see what my Iron level is. Has anyone every doubles up or tippled... -
ARCHIVED Skin Biopsy Results Today
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
Thank you for posting this. I bookmarked it so I could read more. Well I thought because she did not say DH I would help myself to some rock shrimp at lunch.I've noticed some slight swelling in my bumps since then and a they are starting to itch some this evening. That shrimp was good but not worth aggravating my rash. Which I have almost under control. My... -
I was diagnosed with prurigo nodularis. She did tell me to continue to stay off of Gluten and wheat and any other associated grains since I had already been off for 6 weeks and was feeling better. I go for bloodwork in the morning to check my B12 and iron levels and thyroid. I wanted to post this since I do not believe I have read it anywhere here but I found...
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ARCHIVED Went To Derm Today And Got Biopsy
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
Since she thinks I have prurigo do you think that they might be testing for DH?? -
ARCHIVED Went To Derm Today And Got Biopsy
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
Sorry not to seam stupid but what exactly does this mean? -
ARCHIVED Went To Derm Today And Got Biopsy
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
I just got off the phone wiht the nurse I told her I need her to look in my chart and tell me exactly what the Dr is trying to rule out and she told me Prurigo whatever this is. I have not had time to look this up since I am at work but took a little time just to post this real quik. -
ARCHIVED Went To Derm Today And Got Biopsy
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
Well her and I are going to have a little chat when I go back when I siggested she biopsy near the one on my leg which is the newest and she refused. I knew I was not going to get anywhere with her. Now I have a stich on my back with a fat bandage that is itching the bejesus out of me since yesterdy. -
ARCHIVED Went To Derm Today And Got Biopsy
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
Yeah I kind of got the impression that they were looking at me like I had 10 heads. -
ARCHIVED Went To Derm Today And Got Biopsy
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
I told her I have a close relative with celiac's and at the advice of a family member I am 4 weeks gluten and wheat free. I also explained how much better I feel since removing from my diet and that my skin is clearing up except when I eat something with iodine. Her assistants response to that was maybe I'm allergic to iodine. I don't think they were taking... -
I don't think her and I were on the same page. I really am not sure she was even listening to me. looked me over everywhere and I mean everywhere. then she ran her hands up and down my arms not sure what the heck she was doing then she said we need to do a biopsy. OK I'm thinking this is great I didn't have to suggest it. So she asked me where the newest...
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ARCHIVED Completely gluten-free Resturaunts?
Flasaltwater replied to CeliacMom2008's topic in Gluten-Free Restaurants
There is a 100% Gluten free Bakery called the Bald Strawberry in Cape Canaveral Florida that makes Gluten free Sandwich's and Pizza's. Yum!!! They even make a breakfast Pizza. I had the Ruben omg was it good, I was in heaven. This would also be good information for anyone cruising into Port Canaveral where the ships doc its not really far from there. -
ARCHIVED Wanted To Share A Photo Of What's Left On My Upper Back And Scars
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
This is exactly how it feels and is for me I must have gotten into something today I'm itchy pretty bad right now. I live in Florida so I am sure there is some sun damage from extended times at the beach. I will be sure that she is aware of how to do this biopsy. I need her to do it right. I have photos with worse scars then that I am newly Gluten free... -
ARCHIVED Wanted To Share A Photo Of What's Left On My Upper Back And Scars
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
This is one of the back of leg just under my bottom. This is a few of the scars that are bigger because these were the bigger had more fluid in them. -
ARCHIVED Wanted To Share A Photo Of What's Left On My Upper Back And Scars
Flasaltwater replied to Flasaltwater's topic in Dermatitis Herpetiformis
Most of those are about a year old. I do have the purplish scars on my behind and legs and arms those are my fresher scars. I do also tend to pick at them they drive me crazy, these scars were all at one time fluid filled itchy painful bumps. I hope they can give something to make them go away ill try to post the ones on my arms later. My cousin who is celiacs... -
ARCHIVED Wanted To Share A Photo Of What's Left On My Upper Back And Scars
Flasaltwater posted a topic in Dermatitis Herpetiformis
Thought this might help someone else compare what they have its so hard to try and figure out what rash you have. This is whats left of mine on my upper back and scars from a years worth a bad rash. My skin is ruined basically, this is the most painful and itchy rash I have ever had in my life yuk! Do I need to be eating Gluten to get my skin Biopsy... -
ARCHIVED Good Quality Multi Vits
Flasaltwater replied to Leper Messiah's topic in Coping with Celiac Disease
Sorry I don't know the answer and not trying to hijack the thread but I would like to know like you. If someone also suggest a liquid as well as I do not absorb anything unless its liquid with C.