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debbie-doodles

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  1. Hi there. Little bit of background: My daughter is now 5 and a half years old. She was diagnosed at 2 years old. I have been wondering about her diagnosis all along...thinking it might have been incorrect, but have had her gluten free for 3 and a half years. Her symptoms were poor sleep, lots of vomit, and diahrea and irritability. After lots of testing...
  2. Hi, my daughter has been gluten free for 3 years now..but is now starting kindergarten. What is a 504? and do I need to get it so her school helps her? I'm confused! Who should I get the note from..her PCP, or her gastro? Thanks!
  3. Last year for my daughter's birthday we took her to Disneyland and had a great experience with food options for her. Does anyone have any ideas about things/places she can eat in Universal Studios in Hollywood and at Knotts Berry Farm? Any info at all or anyone I can contact will be of great help! Thanks!!
  4. I just noticed that about Cocoa Puffs. I'd been buying them for my daughter and when I went to pick up some more, I checked the label like normal and saw WHEAT. I was so mad I could have thrown a serious tantrum right there in the store!
  5. okay, so even though the fries are NOT on the gluten free list on their website, they ARE gluten free if cooked in a dedicated frier? also, I had heard that the frosties were not safe because they had malt in them. Is that not true?
  6. Wow. this sounds amazing. Does anyone know if Disneyland has the same kind of service? We are going there this winter with our 3 year old daugter with celiac.
  7. I have a question about enterolab too....my daughter has been gluten free since april 2005. Can she still do the test and will it come back with correct results? Or has my daughter been gluten free for too long?
  8. I'm confused about this very topic. My daughter's initial work came back negative, but then she had a biopsy and the doctor said it was positive for celiac, but it could also be other things. So we went gluten free in April 05. He rebiopsied in Dec. 05 and said that a lot of the damage in her intestines had been healed and he was almost certain she...
  9. My daughter has been diagnosed with celiac disease. She is now 3 and a half and was diagnosed last april. First she had the test, which came back negative, but I was told that it could come back negative in many kids. So then she had a biopsy. The doctor thought she had it, so she made me put her on a gluten free diet. We did see improvement, but...
  10. I recently called Campbells about their new line that comes in the Gold Box. I think it might be Gold Label soups? Anyways...they said that all of those were gluten free EXCEPT the one. They even have a tomato version that is gluten free. I was pretty unbelieving the first time, so I called back and got a different person and they said the same...
  11. My daughter who has celiac is 3 and a half. I want to get her in a preschool in the fall. then next year it will be time for pre-kindergarten and then kindergarten. I am PETRIFIED to put her in a public school. here in Arizona the kindergartens have about 30-35 kids to one teacher. No way could one teacher keep a close enough eye on my daughter. I looked...
  12. Is there a government program or something that will give us grants to help pay for gluten-free food for our kids since it is a medical necessity? Any info would help...this is getting expensive. thanks!
  13. I had heard about an event in Phoenix, Arizona called "Make Tracks for Celiacs". I am sure they have it in other locations too. How do I find more information about this and get involved?
  14. Jo Ann, which Outback do you go to? I'm nervous about taking my daughter and wanted to know if you've had success at the one by me (McKellips and gilbert roads) I want to try the pizza place in Scottsdale even though it is farther away because i want to see the items available at the store across the street. I am so excited to try this.
  15. So is this due to the damage in her intestines already? Or from her intolerance to wheat? Or is there a chance that she has this instead of celiac? (still hoping I guess)
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