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JoshB

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JoshB

  1. JoshB
    Gotta vote against the New Planet. I wanted to like it, really I did. Unfortunately it's costs more than Spaten, and it's about on the same level as gluten free "bread". Learn to like wine.
  2. JoshB

    ARCHIVED Nausea!

    JoshB replied to watata's topic in Coping with Celiac Disease

    Hate to be the bearer of bad new, but... Lots and lots of people get worse before the get better. I did. You've got a chain of auto-immune reactions going off. It just starts off with your body hating gluten, when you have celiac disease your body has started hating itself, and so it damages your stomach, which sets off more immune response, which damages...
  3. JoshB
    So... this isn't a popular viewpoint on this forum, but as far as I can tell it is the viewpoint backed up by actual evidence: If you test negative on the blood test you almost certainly do not have celiac disease. There is a 1-2% false negative rate, but these should be flagged by a very low "total serum" or "total IgA". Your doctor should have examined...
  4. JoshB
    I don't think so. Gluten containing ingredients can supposedly be found (though I've never actually seen it) as binders in pills. The very last thing they want in any injected medication is "binding". Actually, from what I've read, wheat starch is so heavily processed for medical purposes that it shouldn't matter even if it is used in pill; it's supposed...
  5. JoshB
    This exact thing happened to me a couple weeks ago. I decided to just chance picking the pita triangles off... not the best idea. Oh well. It happens.
  6. JoshB
    All of the diagnostic tests center around either improper antibodies or actual damage in your intestines. If you've been good on your diet, you won't have either of those even if you do have celiac disease. You can look at your genes; try 23andme.com, but be aware that this is not a test for celiac disease. At the most, looking at your DNA can only tell...
  7. JoshB
    Depends on what was "positive" some of the blood tests are very sensitive, but not specific to celiac disease. The biopsy is very specific but not very sensitive.
  8. JoshB
    38 which counts as sufficient, they say. I drink a good bit of milk, try to get some sun and take some supplements (just over the counter). Worth noting that Wikipedia says 30~50 is the desired range, and that anything over 50 doesn't provide increased benefit and is in fact a little risky.
  9. JoshB
    One of my big questions when I learned about celiac disease was "How long will it take to improve?" At this point, I still have a lot of symptoms, but I thought it was worth mentioning that after 7 months gluten-free, my tTG-IGA levels have fallen from 9X more than the positive marker to .5X of "positive", and my anti-gliadin IgA have fallen from 17X to...
  10. JoshB
    I've been fine at PF Chang's a couple times. The founder's wife has celiac disease, if I remember, so they are pretty good about it. There are still only four or five "safe" items on the menu, but they are very tasty.
  11. JoshB
    Sounds to me like Open Original Shared Link had it happen twice. Terrible. No association with Celiac Disease so far as I know.
  12. JoshB
    "Accurate" isn't very well defined. Let's say the "blood test" in this case maybe EMA-IgG is very specific but not very sensitive. If it says you have celiac then you have it. Unfortunately there's a 10% or so chance that if you have celiac disease it might not tell you about it. In any case, it's all the same in the end, right? You can't eat gluten. What...
  13. JoshB
    Wait and see what the test says. Your antibodies probably would not have dropped in a single month.
  14. JoshB
    Ibuprofen helps a lot with joint and eye pain for me. I've not found anything that affects the stomach. Not tried mmj but I don't think I could use anything that would slow me down. To busy at work.
  15. JoshB
    I think you're [DQ 7.5]/[DQ 5]. [DQ 7.5] is an oddball. Pretty rare except in the middle east. It seems to confer some risk for celiac disease, but I haven't found anyone who says how much risk. Only a very small percentage of Celiacs have [DQ 7.5], but then [DQ 7.5] people make up a very small percentage of the population. [DQ 7.5] could potentially split...
  16. JoshB
    Heh. My stomach troubles were "stress" from when I was six.
  17. JoshB
    Eating out is tough, but I'm not sure you're cleaned out enough yet to really start having a distinct reaction. I would think that at two weeks your body hasn't even started to realize it's not being constantly provoked. It took me maybe four months to start having a reaction -- or at least one that would be felt above the general stomach symptoms which were...
  18. JoshB
    I'd say your best value is 23andme.com. You'll have to be willing to look up data on DQ from snpedia.com, though, because 23andme itself only flags DQ 2.5 (the major risk factor for celiac disease). I'm not sure if it's even possible to determine DQ 7.5 through genetics, and they don't tell you about DQ2.2 or DQ 8.1 on 23's website. To get that info you'll...
  19. JoshB
    They generally don't know as much, and as easy as it is to get angry about that, it's not really their fault. It's a very hard disease to catch, and a fairly small number of people have it. How much would you learn if you were a doctor and had two patients with a particular disease that they saw another specialist about anyway. If it even looks like you might...
  20. JoshB
    Transglutaminase IgG is concidered a little less reliable than ttG IgA, but everything I read says it is still very reliable, and you seem to have a strong positive. If it were me I would forgo the biopsy unless I needed it for insurance reasons or your own peace of mind. You already have a positive reading for a test which is more accurate than the biopsy...
  21. JoshB
    I'm asking because there are all sorts of "inflammation", and if your inflammation didn't resemble celiac inflammation you might be barking up the wrong tree. If it was celiac inflammation, then it seems like you have celiac disease. I don't think you can have it a "little bit". That's like being a "little bit" pregnant. Anti gliadin IgA antibodies are...
  22. JoshB
    I think anti-gliadin is supposed to drop quickly. Anti-tissue transglutaminase is thought to take much longer to resolve. Four months is not long. Your symptoms could all be from celiac disease. It tends to mimic other auto-immune diseases and can even provoke those actual disease if left to itself long enough. Celiac patients can have all sorts of raised...
  23. JoshB
    Second the DGP test idea as the older tests are not supposed to be at all accurate in children (though I don't think DGP is supposed to be perfect either). His TtG certainly seems suspicious. Also... your HLA type doesn't seem to put you at risk for celiac disease. You're (at least half) HLA DQ2.3 which is not a risk factor. Open Original Shared Link
  24. JoshB
    What's your blood work say? There's still some debate in the medical community over whether gluten intolerance exists. There's not been a whole lot done yet on how it should be defined, whether it's a permanent state or what the risks are, if any, beyond the general symptoms.
  25. JoshB
    I've been trying to eat with friends and family, eating off the gluten free menu if available and and if not trying to carefuly choose things like a simple salad without croutons. At this very moment I'm paying for it. Went to a Mexican place for lunch and got a tostada. It had a hidden layer of salsa that I noticed after one bite. I thought "Gee that looks...
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