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JoshB

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JoshB

  1. JoshB
    23andme.com
  2. JoshB
    My molars never fully formed (had to be closed by the dentist), and I still have a couple that haven't erupted. I usually had a couple different canker sores going at any one time. This didn't help diagnose however, and no doctor ever even suggested celiac disease until I myself insisted on testing.
  3. JoshB
    Depending on what study you're looking at your risks are only 5~10%. Still, for such a serious thing I would be inclined to test. If worse comes to worse, you can order the test yourself for about $250 (with the "total serum" option). Depending on your insurance, you might not being paying much more in the end.
  4. JoshB
    Yes. Your digestive system is very effective and massively redundant. You have to have quite a lot of damage to actually start having absorption problems. Malabsorption is not necessarily celiac disease anyway. You're probably wanting a standard celiac panel from Quest or Labcorp or your local equivalent. There's lots of things that cause celiac-like...
  5. JoshB
    No, no. You're not stupid. Genetics results are confusing. I don't know anything special about it. I just had the same questions myself back in the day and Google had answers. And yeah... a proper diagnosis would be nice. Much easier to tell family "Look. I have this alright? So stop complaining that I didn't eat your stuffing" than to tell them "Well...
  6. JoshB
    Your formatting is a bit odd, so I'm not sure I'm reading your results right. But it looks like you're DQ2.5 / DQ6. DQ2.5 (a subtype of DQ2) is the risk phenotype for celiacs. As a heterozygous DQ2.5 your absolute odds are around 10~15%. DQ 2.5 carriers make up 85% of celiac cases in the US, the remainder are DQ7.5 and DQ8.1. Hashimoto's is also a significant...
  7. JoshB
    Also, I do realize that there are several historical "What are your symptoms?" threads in the forum. In fact there are threads covering just about every aspect of what I want to ask. But I couldn't find one place that asked all the questions together. Also, most of the threads out there seem to be more restrictive. "Do your symptoms match these four symptoms...
  8. JoshB
    Absolutely. I wouldn't be able to track everything, and the results would only be a little meaningful as there would be too few people and mostly the symptoms can be pretty subjective. It just seems like it would be more information than is currently out there. I've been trying to find proper studies on this, but haven't had any luck. Doesn't work anyway...
  9. JoshB
    I did start a thread just asking in general, and that'll have to do. I wanted to do a poll though, because I was going to ask what symptoms people had before and after gluten free. It would be really nice to have them all nicely tabulated. Unfortunately, I don't think that the polls are going to cut it. You can't add enough questions and options, and the...
  10. JoshB
    DGP, looks good, but as the new kid on the block I think it's going to be more expensive and harder to find. From what I've read it has roughly the same sensitivity and specificity as current tests, though there is evidence that it's more effective for children. Open Original Shared Link
  11. JoshB
    I just got blood drawn for a six month maintenance/compliance test for Quest. They have two versions of the test. One was $160 but didn't include the "total serum", I think. The other was $250 and did check total serum.
  12. JoshB
    I tried to do this as a poll, and for some reason it didn't show. Just as well apparently because I was testing in another thread and polls don't seem to work very well. So. We all know that there are tons of symptoms. I'm wondering what's normal. I find a lot of references to what can go wrong, but not much as to how often those things go wrong, and...
  13. JoshB
    Actually, that's enough to see what's going on. We do see null votes. Great! Unfortunately it looks like there's a bug in tallying results... so maybe polls aren't at all useful.
  14. JoshB
    I want to better understand how the polls work on the forum. So I'm testing it out here. I'd appreciate it if people would click a each choice randomly between "little" and "lot". Also, please randomly choose a "little/lot" set to not check at all, as I want to be able to tell if we can see "null" votes.
  15. JoshB
    That sounds like a smart idea to me. Make sure you're eating gluten for a couple months then ask for a celiac panel. Unfortunately there doesn't seem to be a standardized name for the tests, but mainly everybody is running the same thing now. It should test for anti-transglutaminase(usually known as ATA or tTG) antibodies and/or for antiendomysial(usually...
  16. JoshB
    I've been gluten free for about 9 months now. The first couple months were worse. At this point my stomach issues are 60~70% better. Everything else is the same or worse. I probably had it for twenty years before diagnosis, which isn't uncommon. Unfortunately long term damage is supposed to take longer to heal, and might possibly not heal. Still, I'm grateful...
  17. JoshB
    Pros: *Make the doctors happy??? *Possibly confirm what you already know. *Maybe give you a good idea of just how damaged your gut is, though I've never figured out what we're supposed to do with that info. Cons: *Expensive. > $2000 *Dangerous. Anesthesia is not safe. That's why they have always have a separate anesthesiologist and he gets payed...
  18. JoshB
    Unfortunately different labs use different methods and reporting ranges, so absolute numbers like that aren't very helpful. As I understand it "IgA" indicates gluten antibodies. These do not prove or disprove celiac trouble, they are just suggestive. You can have false positives for a number of reasons, and you can have a false negative if your immune system...
  19. JoshB
    There's no such thing as a DNA test for gluten intolerance, and if you have a parent with celiac sprue the odds are that you do not have it yourself. Sure the odds that you do have it are higher than the general population (just as determined by family history), but even with a positive parent your odds would only be about 20%. DNA tests are very useful...
  20. JoshB
    My doc left a long rambling message about how my white blood count was normal and I didn't have arthritic marks and my this and that were normal, and then right when I'm about to hang up thinking that he has nothing to say, he ends with "and your ttG and gliadin antibodies are off the charts so you probably have celiac sprue."
  21. JoshB
    I don't think you can expect decent food from a school cafeteria, let alone decent gluten-free food. That said, how do you know it was gluten and not something else? Do you react that quickly? I think (though I'm not sure) that it takes me at least half a day to react.
  22. JoshB
    Get the blood test. It's fairly cheap and easy, and then you'll know for sure. Going gluten free is hard. It's expensive, and you'll desperately want things you can't have, and (if you're like me and others I've talked to) you may find that going gluten-free is physically painful. I was depressed and energy-less and felt like I was bruised all over for...
  23. JoshB
    Have had the same symptoms for a couple of years except in my hands more than my feet. My fingers and toes are also twisting a bit out of alignment. I'm a programmer so painful eyes and painful hands can make things... difficult. No rheumatoid or inflammatory markers. Doc is clueless and I've basically given up on figuring it out at this point. I just...
  24. JoshB
    You wouldn't be feeling bad because of gluten. You haven't been gluten free long enough for any problems to have resolved yet, so accidentally eating gluten isn't going to do anything to you at this point. I felt terrible for a month or so when I started eating gluten-free after Celiac diagnosis. From what I understand this is very common.
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