Jump to content

marycubs

Advanced Members
 View Profile  See their activity

  • Posts

    40

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by marycubs

  1. marycubs
    Hi - I posted this last week: "I found a site that I thought has a good overview of Celiac Disease - and wants to increase awareness of celiac disease. The personal stories section highlights how varied the symptoms can be - and how frustrating the lack of diagnosis can be. In case you haven't seen it : http://www.celiacawareness.org" Also...
  2. marycubs
    The website (www.celiac.nih.gov) has some educational materials for patients - I'm going to order one batch (25 for $5) and send them to some local physicians/GIs - including the ones who did not diagnose me correctly for 3 years. I'll have a cover memo asking that they review the material, as like many people, I have celiac disease and was not diagnosed...
  3. marycubs
    Hi - I found a site that I thought has a good overview of Celiac Disease - and wants to increase awareness of celiac disease. The personal stories section highlights how varied the symptoms can be - and how frustrating the lack of diagnosis can be. In case you haven't seen it : Open Original Shared Link Mary
  4. marycubs

    ARCHIVED Vitamin B12

    marycubs replied to a topic in Coping with Celiac Disease

    My B12 was at 307 several months ago and the doctor said it was fine and never retested me...saw the posting that new studies show under 400 may mean trouble. I'm going to a new doctor soon - am looking at all of my lab work from the last year (since being diagnosed with celiac disease May 2006) - and making a list of questions for her. B12 is on my...
  5. marycubs
    Hi Irishgirl and welcome ! This is a great forum to look at - there are many knowlegeable people here that can help you out. I do not tend to participate often - but come back to read the tips and wisdom of others at least weekly. There's a Delphi list of what foods are gluten-free (celiac3270 can help you with it) and a newbie package that Nini can...
  6. marycubs
    Great to see an article in a mainstream paper !! I emailed Dr. Mitchell thanking him for the article and explaining that over a 3 year period I had 4 Drs. (including a GI) label my symptoms as IBS and a result of stress/depression. After being being sick of feeling sick, I did research on the web - asked my Dr. for a celiac disease panel and was confirmed...
  7. marycubs
    Check the cocktail sauce - I was glutened by that once... it was a store brand. Good luck ! I know it can be hard to figure these things out. Mary
  8. marycubs
    Thank you all so much for your ideas. I hardly slept last night due to D, stomache pains, etc...so it was sooo great to read your messages this morning. Lollie - thanks I will check on the sleep apnea. I didn't know that could be associated with the palps. Ursula - I never would have thought of watermelon as a source of potassium ! I do have concerns...
  9. marycubs
    Hi all - I've not been an active participant - but periodically come in to read your wisdom (usually when I'm feeling down). This site and the people who contribute really are wonderful. I was diagnosed May 2005 and have been gluten-free except the errors along the way. I am committed to the gluten-free diet. After going gluten-free last year I felt...
  10. marycubs

    ARCHIVED Trouble With Doctors...

    marycubs replied to a topic in Doctors

    Nini - Just a word of sympathy for you. I went through such frustration with my own diagnosis..It took me 4 doctors (including a GI) before I found one that knew about celiac disease and agreed with my self diagnosis - and didn't just tell me its stress related or emotional. I can't imagine how much worse it must be for you when your dealing with your daughters...
  11. marycubs
    A friend at work sent this link to me....Its great that Celiac info is getting out there and going "mainstream". (However, around my home city the products that are out there are still pretty limited. But no doubt it is getting better !) Mary
  12. marycubs
    Penny - If your doctor hasn't checked your thyroid out yet, have that tested. A friend of mine had hypothyroid (low) and the forgetfulness, brain fog was very noticeable. Mary
  13. marycubs
    Hi - I agree with Coultier - I found Danna Korn's book Wheat Free Worry Free very helpful ! Mary
  14. marycubs
    Okay - just to add a little humor to our gluten free lives: when I read the topic "I've been glutened by a friend"... the Rollings Stones song "I'm just waitin on a friend" came to mind. I bet there are alot of songs we can play with - To the tune of "Born Free"... (for all you age 40+ posters): "Wheat Free... though pizza surrounds us...
  15. marycubs
    Hi and welcome I'm only a month into being Gluten Free myself, so I'm still learning. I searched the web and have found this site very helpful...I've spent lots of time reading past posts and reading what others think about certain brands of gluten-free foods, what advise they gave etc. Once the relief of finding out what you have is over, the reality...
  16. marycubs
    Hi - Just thought I'd give an update - it's a few days later and I feel much better..the really bad symptoms lasted for 2 days. I'll be more careful...thanks for all of your help.
  17. marycubs
    Okay - I think I updated my signature - I'm from central/upstate New York.
  18. marycubs
    Oops - my cubs fan remark was meant for blueshift !
  19. marycubs
    Michelle - As the other posters state - you are not alone. I too have the depression as a symptom of my celiac disease (and maybe it's not just from celiac disease - I have had other stresses on my life as of late). But I feel that I would not have hit such a low depression if it weren't for the other issues going on in my body. For me part of the...
  20. marycubs
    Nini - Today I feel like I have the plague !! I won't forget this 'learning experience' for a looonnng time !
  21. marycubs
    I've been gluten-free for about a month now... and overall I'm probably a 3. I've definitely been feeling better....and am hopeful for continued improvement. Today I'm a 1 - had a tacobell hard shell taco last night. Oops- found out there is definitely gluten in it...and my body is punishing me today for being so careless ! No more taco bell for me ! ...
  22. marycubs
    thanks for the information - I guess this reaction will kick me into taking this seriously and trying to stay 100% gluten-free. I agree - this board has been a great help to me - thanks ! Mary
  23. marycubs
    Hi all - I was diagnosed a month ago and have been trying to be gluten-free - I know that I've had alittle gluten here and there - in small amounts - I'm not 100% yet. However, I had a taco bell hard shell (corn) taco last night and am sicker today then I think I've ever been with celiac disease. I knew it could have cross contamination, but I thought...
  24. marycubs
    Thanks for the information - I'll pass it along. I'm not sure what the cause of her hypothyroid is...is there a way that they test to determine the cause ? I'll look at the sites you both mentioned and see what I can dig up. \thanks ! Mary
  25. marycubs
    Hi all - A friend/coworker of mine was just diagnosed with hypothyroidism... her levels were very low and she finally went into the hospital via the ER. She is now on medication. I knew she was having health problems (weight gain, forgetfulness, fatigue) and recommended she have her thyroid checked the day before she went in to the hospital. (She now...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.