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gfpirate

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by gfpirate

  1. gfpirate
    The other day I went to Starbucks and ordered a cinnamon dolce latte. I had taken just a few tiny sips and then decided to research if it was gluten free for peace of mind. I read that the flavor powder they use has "denatured wheat" in it and that the "gluten protein was removed". Regardless, I quickly threw my drink away. I know that it was my own mistake...
  2. gfpirate
    This is a very valid question. I simply think it is because it's something we have to explain on a daily basis. Who likes explaining the same thing over and over over? It can be frustrating. It seems that most people are better at understanding, say, a peanut allergy. Most people do not know what gluten is, I sure didn't before I was diagnosed! When I think...
  3. gfpirate
    I've also had a similar experience as posted above... A lady my mom works with told me that she had Celiac as well. (This was when I was first diagnosed). I believed her at first but as time went on and I did more research, it seemed as if she was stretching the truth... this was confirmed when she walked in with a big bag of Chick Fil A and said that she...
  4. gfpirate
    Love the video! I've had a lot of varied reactions from people when they find out about my condition. I go to high school, and since kids there can be so rude and arrogant, I try to keep my condidition a secret. It seems every time I tell someone, an avalanche of questions follows. I've had people say things such as, "I would kill myself if I had...
  5. gfpirate
    Hi, so my non-celiac friend and I were discussing what being poisoned feels like. Granted, if you don't have the disease, it's pretty hard to try to understand what it feels like. So, just for fun, tell how you feel when you get 'glutenated'. What does is FEEL like? A knife? Pins and needles? Dull throbbing? Just for fun
  6. gfpirate
    I absolutely have this problem! Although it doesn't exactly make me mad, it makes me feel sad. Why can't my body just process normal food like normal people? Why does EVERYTHING have gluten in it? And how come NO ONE knows what Celiac is??? The best thing to do is just focus on what you can eat. I'm sure almost every restaurant will have a salad or a steak...
  7. gfpirate
    Today, my family and I were discussing what we would eat for Christmas Eve dinner... we decided on chicken and artichoke pasta, and my mom said that she would try to find a gluten-free cream of chicken soup mix, since I already had my own pasta and the cream of chicken was the only other questionable ingredient. My dad said, "No, no, no, don't go changing...
  8. gfpirate
    Hey... it happens! Sounds like just the kind of mistake I would make
  9. gfpirate
    I know exactly how you feel... people can be so curious! And sometimes, I think people ask just because they think it's polite. I usually just say that I can't have most baked goods and pastas... I know that there is so much more to it than that, but I also don't want to give them a health class lesson explaining it all... I get bored of it after a while...
  10. gfpirate
    It sure is awesome! My neighbors once had my family over for dinner, and they, being aware of my Celiac, went all out to make sure everything was gluten-free! Being a French theme, we had beef bourguignon, with which they used corn starch to thicken instead of flour, and it was DELICIOUS! We were there while she was actually cooking the dish, so I was able...
  11. gfpirate
    Oh dear, I'm very sorry that happened! And unfortuantely, this proabably won't be the last time something like this happens... you know, there's the people that think it's okay to use white flour instead of wheat flour! But sometimes we are lucky enough to come across people who understand it and are more than willing to accommodate it... it's even better...
  12. gfpirate
    Yes, I was very happy to give it to my mom who LOVES dark chocolate:)) You're totally right, if I didn't have Celiac I probably would assume chocolate didn't have wheat in it also:p
  13. gfpirate
    Today we were doing a secret santa exchange for a club that I'm in. Beforehand, we all had to write on pieces of paper what our favorite candy was, etc; so the person drawing our name would have an idea of what to get us. For mine, I specified that I'm allergic to wheat (I figured that would be easier than saying gluten, because more people know what wheat...
  14. gfpirate
    Celiac does tend to run in families, but that doesn't always mean everyone will have it. So yes, you could essentially be the only one in your family with Celiac (I am). Yes, gluten intolerance can be so severe, even the slightest crumbs/cross contamination can trigger symptoms. Just be very careful with what you eat! And when in doubt, DON'T eat it.....
  15. gfpirate
    The symptoms of Celiac have a such a far range... it's not always stomach or intestinal issues. Headaches (migraines), neuropathy, muscle/joint weakness, etc, etc; are all symptoms. The only downside of getting a diagnosis is that you have to go back to gluten for a few weeks. I would talk to a doctor about this first, of course. It sounds like you very...
  16. gfpirate
    I am genuinely sorry for the 'bad' advice (though I wouldn't exactly call it bad). I just figured you probably don't want to keep eating gluten if that is what's making you miserable. It's hard to just stop eating 'normal' food cold turkey and go to a super healthy diet, those were just gluten-free options to keep in mind if you are craving something that...
  17. gfpirate
    I was once at a restaurant and asked for a gluten-free menu, which was a normal menu, with safe items marked with a *. I noticed that there were chicken nuggets marked as safe, so, just to be on the safe side, I asked the waitress what was in them. She said "Oh, they're gluten free! We use a beer batter!" *facepalm* Needless to say, I ordered something else...
  18. gfpirate
    YES YES AND YES!!!! It's amazing how evil gluten can be. Your symptoms are quite similar to what mine were, though every case is different. My advice to you would be to adopt the gluten-free diet for about a month or so... and I mean cold turkey, no gluten whatsoever. If you feel better, then there ya go, case closed. If not, I would reccomment seeing...
  19. gfpirate
    I totally understand your dilemma with the buying lunch thing... high school isn't always easy. Soon enough though, I realized that it's better just to bring my own lunch and dare to be different rather than suffer the consequences of cross contamination and hidden ingredients. Most schools provide options like fresh fruit and chef's salad, which are most...
  20. gfpirate
    You very well could have an allergy/celiac. The blood tests aren't always accurate, and you could get a false negative. The best thing for you to do is to try the gluten free diet for a month or so, and see if your conditions have improved. As for food and travel, I would suggest bringing your own food. Fresh fruits and vegetables are always safe, nuts ...
  21. gfpirate
    Hey there, I'm new to this site, but have been gluten-free for 8 months now:) I'd have to say the most annoying thing about Celiac is everyone else's cluelessness! For some reason, it always bothers me when I go to a restaurant and the waitstaff has no idea what I'm talking about when I ask about gluten free options. But I know that this is a double...
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