researchmomma

My sons biopsy came back normal. I don't have any other info but I will meet with the doctor next week to discuss other reasons for osteoporosis.

I just found this and it oddly gave me hope that he may have celiac disease: Low Bone Mass and celiac disease Individuals with bone mineral density more than 2.5 standard deviations below the sexspecific peak bone mass are presumed to have osteoporosis. Low bone mass is common in subjects with newly diagnosed celiac disease. The mechanism for this effect...

Cyclinglady, I have to agree with you completely. Well the endo is now fully engaged since my sons dexa scan showed osteoporosis. It just seems that if he got osteo-p from Celiac he would have low calcium and vit D levels. He has low vit D levels but normal calcium so that has confounded things with other physicians. Anyway, still waiting for the...

Just an update, all his tests for osteogenesis were negative but because he didn't have significantly low VitD and his is tall (albeit very thin), the endocrinologist didn't tihnk he could have Celiac. My son's blood work was indeed negative but he also is on a 70% gluten-free diet because he sister is intolerant. There are days when he is gluten-free...

I was here a few years back when I was trying to get testing for my daughter and you all were very helpful. Especially Irish Heart and a few others and I am still very grateful for their help. The GI did a gene test to rule out Celiac because of her GI issues with a negative Celiac blood panel. She does not carry the DQ2 or DQ8 genes. She was diagnosed...

Thank you for replying. The mono was negative but her Free T4 is low. More testing. Thanks again. I don't think that swollen spleen is from gluten. I think it has something to do with whatever she is fighting. I hope.

Hi, my daughter's reactions to being glutened seem to be getting more severe. We are very strict and cautious but we travelled recently and I left her for one hour with my relatives and she got glutened. She is 13 years old and when she is exposed now, she gets horrible stabbing pain in her side near her appendix which is her mesenteric lymph nodes as evidenced...

Yeah! That is great. There are lots of recipes for gluten-free brown bread! Google it. My fav is from www.glutenfreeonashoestring.com

Welcome to the Board and you are right, this is the place to vent. Someone posted about the emotions that one goes through with a Celiac Diagnosis. It was well stated but I can't find it. Maybe someone else can. You will find that you will try different products that others rave about and you may not like it. For example, we like Synder's gluten-free...

My neighbor's son was diagnosed at 18 months. Because he was so young, he doesn't "miss" things like the process foods that my 12 year old daughter miss. So that is one positive. I know your heart breaks for her but it will be OK. There is an adjustment period for this and we are watching a friend go through it right now. You will slowly figure out ways...

Ahhhh thanks

I went completely gluten-free when my daughter had to. I have endometriosis and noticed that I no longer have pain from that. I find that quite interesting. I also have more regular bowel function (I have always had a problem with constipation) and I also seem to have more energy. I am also a complete nutter and I am now baking like crazy so I started...

There are two big reasons that I would want that biopsy for a child with his history: 1) You want that scope to rule out other autoimmune disorders like Crohn's and Ulcerative Colitis. Left untreated, this can be devastating. That high tTg could be from other diseases, not just Celiac. If you had other tests, maybe you could get that positive Celiac...

I made this Cinnabon Clone and it rocked. My Celiac neighbors couldn't believe it was gluten-free. My gluten-free daughter was in heaven. I had one and wasn't hungry until dinner! Open Original Shared Link

Last night we made terriyaki grilled chicken with swiss, arugala, spicy humus and red onion. Served it with corn on the cob for the family (I am not a fan) and sweet potato french fries. I was pretty impressed with the Udi's buns.